Understanding the Barriers and Facilitators to Sharing Patient-Generated Health Data Using Digital Technology for People Living With Long-Term Health Conditions: A Narrative Review

Using digital technology to share patient-generated health data has the potential to improve the self-management of multiple long-term health conditions. Sharing these data can allow patients to receive additional support from healthcare professionals and peer communities, as well as enhance their u...

Descripción completa

Guardado en:

Detalles Bibliográficos
Autores principales:	Emma Simpson, Richard Brown, Elizabeth Sillence, Lynne Coventry, Karen Lloyd, Jo Gibbs, Shema Tariq, Abigail C. Durrant
Formato:	article
Lenguaje:	EN
Publicado:	Frontiers Media S.A. 2021
Materias:	data sharing patient-generated health data technology long-term health conditions trust identity Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/004fdf3b07184b6eba972125a41fd93e
Etiquetas:	Agregar Etiqueta Sin Etiquetas, Sea el primero en etiquetar este registro!

id	oai:doaj.org-article:004fdf3b07184b6eba972125a41fd93e
record_format	dspace
spelling	oai:doaj.org-article:004fdf3b07184b6eba972125a41fd93e2021-11-30T12:44:23ZUnderstanding the Barriers and Facilitators to Sharing Patient-Generated Health Data Using Digital Technology for People Living With Long-Term Health Conditions: A Narrative Review2296-256510.3389/fpubh.2021.641424https://doaj.org/article/004fdf3b07184b6eba972125a41fd93e2021-11-01T00:00:00Zhttps://www.frontiersin.org/articles/10.3389/fpubh.2021.641424/fullhttps://doaj.org/toc/2296-2565Using digital technology to share patient-generated health data has the potential to improve the self-management of multiple long-term health conditions. Sharing these data can allow patients to receive additional support from healthcare professionals and peer communities, as well as enhance their understanding of their own health. A deeper understanding of the concerns raised by those living with long-term health conditions when considering whether to share health data via digital technology may help to facilitate effective data sharing practices in the future. The aim of this review is to identify whether trust, identity, privacy and security concerns present barriers to the successful sharing of patient-generated data using digital technology by those living with long-term health conditions. We also address the impact of stigma on concerns surrounding sharing health data with others. Searches of CINAHL, PsychInfo and Web of Knowledge were conducted in December 2019 and again in October 2020 producing 2,581 results. An iterative review process resulted in a final dataset of 23 peer-reviewed articles. A thorough analysis of the selected articles found that issues surrounding trust, identity, privacy and security clearly present barriers to the sharing of patient-generated data across multiple sharing contexts. The presence of enacted stigma also acts as a barrier to sharing across multiple settings. We found that the majority of literature focuses on clinical settings with relatively little attention being given to sharing with third parties. Finally, we suggest the need for more solution-based research to overcome the discussed barriers to sharing.Emma SimpsonRichard BrownElizabeth SillenceLynne CoventryKaren LloydJo GibbsShema TariqAbigail C. DurrantFrontiers Media S.A.articledata sharingpatient-generated health datatechnologylong-term health conditionstrustidentityPublic aspects of medicineRA1-1270ENFrontiers in Public Health, Vol 9 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	data sharing patient-generated health data technology long-term health conditions trust identity Public aspects of medicine RA1-1270
spellingShingle	data sharing patient-generated health data technology long-term health conditions trust identity Public aspects of medicine RA1-1270 Emma Simpson Richard Brown Elizabeth Sillence Lynne Coventry Karen Lloyd Jo Gibbs Shema Tariq Abigail C. Durrant Understanding the Barriers and Facilitators to Sharing Patient-Generated Health Data Using Digital Technology for People Living With Long-Term Health Conditions: A Narrative Review
description	Using digital technology to share patient-generated health data has the potential to improve the self-management of multiple long-term health conditions. Sharing these data can allow patients to receive additional support from healthcare professionals and peer communities, as well as enhance their understanding of their own health. A deeper understanding of the concerns raised by those living with long-term health conditions when considering whether to share health data via digital technology may help to facilitate effective data sharing practices in the future. The aim of this review is to identify whether trust, identity, privacy and security concerns present barriers to the successful sharing of patient-generated data using digital technology by those living with long-term health conditions. We also address the impact of stigma on concerns surrounding sharing health data with others. Searches of CINAHL, PsychInfo and Web of Knowledge were conducted in December 2019 and again in October 2020 producing 2,581 results. An iterative review process resulted in a final dataset of 23 peer-reviewed articles. A thorough analysis of the selected articles found that issues surrounding trust, identity, privacy and security clearly present barriers to the sharing of patient-generated data across multiple sharing contexts. The presence of enacted stigma also acts as a barrier to sharing across multiple settings. We found that the majority of literature focuses on clinical settings with relatively little attention being given to sharing with third parties. Finally, we suggest the need for more solution-based research to overcome the discussed barriers to sharing.
format	article
author	Emma Simpson Richard Brown Elizabeth Sillence Lynne Coventry Karen Lloyd Jo Gibbs Shema Tariq Abigail C. Durrant
author_facet	Emma Simpson Richard Brown Elizabeth Sillence Lynne Coventry Karen Lloyd Jo Gibbs Shema Tariq Abigail C. Durrant
author_sort	Emma Simpson
title	Understanding the Barriers and Facilitators to Sharing Patient-Generated Health Data Using Digital Technology for People Living With Long-Term Health Conditions: A Narrative Review
title_short	Understanding the Barriers and Facilitators to Sharing Patient-Generated Health Data Using Digital Technology for People Living With Long-Term Health Conditions: A Narrative Review
title_full	Understanding the Barriers and Facilitators to Sharing Patient-Generated Health Data Using Digital Technology for People Living With Long-Term Health Conditions: A Narrative Review
title_fullStr	Understanding the Barriers and Facilitators to Sharing Patient-Generated Health Data Using Digital Technology for People Living With Long-Term Health Conditions: A Narrative Review
title_full_unstemmed	Understanding the Barriers and Facilitators to Sharing Patient-Generated Health Data Using Digital Technology for People Living With Long-Term Health Conditions: A Narrative Review
title_sort	understanding the barriers and facilitators to sharing patient-generated health data using digital technology for people living with long-term health conditions: a narrative review
publisher	Frontiers Media S.A.
publishDate	2021
url	https://doaj.org/article/004fdf3b07184b6eba972125a41fd93e
work_keys_str_mv	AT emmasimpson understandingthebarriersandfacilitatorstosharingpatientgeneratedhealthdatausingdigitaltechnologyforpeoplelivingwithlongtermhealthconditionsanarrativereview AT richardbrown understandingthebarriersandfacilitatorstosharingpatientgeneratedhealthdatausingdigitaltechnologyforpeoplelivingwithlongtermhealthconditionsanarrativereview AT elizabethsillence understandingthebarriersandfacilitatorstosharingpatientgeneratedhealthdatausingdigitaltechnologyforpeoplelivingwithlongtermhealthconditionsanarrativereview AT lynnecoventry understandingthebarriersandfacilitatorstosharingpatientgeneratedhealthdatausingdigitaltechnologyforpeoplelivingwithlongtermhealthconditionsanarrativereview AT karenlloyd understandingthebarriersandfacilitatorstosharingpatientgeneratedhealthdatausingdigitaltechnologyforpeoplelivingwithlongtermhealthconditionsanarrativereview AT jogibbs understandingthebarriersandfacilitatorstosharingpatientgeneratedhealthdatausingdigitaltechnologyforpeoplelivingwithlongtermhealthconditionsanarrativereview AT shematariq understandingthebarriersandfacilitatorstosharingpatientgeneratedhealthdatausingdigitaltechnologyforpeoplelivingwithlongtermhealthconditionsanarrativereview AT abigailcdurrant understandingthebarriersandfacilitatorstosharingpatientgeneratedhealthdatausingdigitaltechnologyforpeoplelivingwithlongtermhealthconditionsanarrativereview
_version_	1718406542375518208

Understanding the Barriers and Facilitators to Sharing Patient-Generated Health Data Using Digital Technology for People Living With Long-Term Health Conditions: A Narrative Review

Ejemplares similares