Online narrative exposure therapy for parents of children with neurodevelopmental disabilities suffering from posttraumatic stress symptoms – study protocol of a randomized controlled trial

Background Parents of children with intellectual and neurodevelopmental disorders (IDD) often experience traumatic events in the care of their children. This leads to comparatively high numbers of mental health problems such as posttraumatic stress disorder (PTSD) in those parents. Intervention appr...

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Autores principales: Elisa Kaltenbach, Michelle Chisholm, Ting Xiong, Donna Thomson, Anselm Crombach, Patrick J. McGrath
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Lenguaje:EN
Publicado: Taylor & Francis Group 2021
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spelling oai:doaj.org-article:015c49b6b9ce436ebb83415818b2ef0d2021-12-01T14:40:59ZOnline narrative exposure therapy for parents of children with neurodevelopmental disabilities suffering from posttraumatic stress symptoms – study protocol of a randomized controlled trial2000-806610.1080/20008198.2021.1991650https://doaj.org/article/015c49b6b9ce436ebb83415818b2ef0d2021-01-01T00:00:00Zhttp://dx.doi.org/10.1080/20008198.2021.1991650https://doaj.org/toc/2000-8066Background Parents of children with intellectual and neurodevelopmental disorders (IDD) often experience traumatic events in the care of their children. This leads to comparatively high numbers of mental health problems such as posttraumatic stress disorder (PTSD) in those parents. Intervention approaches for parents of children with IDD are scarce and many parents remain without support. Objective This study aims to test the feasibility and efficacy of online Narrative Exposure Therapy (eNET) with parents of children with IDD. Methods The study follows a randomized waitlist-control design. eNET is an exposure-based PTSD intervention and includes 8–12 90-minute sessions. All sessions will be conducted via video calls with trained paraprofessionals. We aim to include 50 parents, approximately 25 in the immediate intervention group and 25 in the waitlist group. Waitlist participants will receive the same intervention after a three-month wait period. All participants need to either fulfill full or subclinical PTSD symptoms according to DSM-5. Feasibility and efficacy of the intervention will be measured with pre, post, and 2 and 6 months follow-up surveys focusing on PTSD symptoms. Secondary outcomes include other health-related outcomes such as physical symptoms, depression symptoms, anxiety symptoms and functionality. Conclusions The proposed study allows us to test the feasibility and efficacy of eNET in a sample of parents of children with IDD. There are so far no published studies on the evidence of eNET; this study is one of the first randomized controlled trials investigating the feasibility and efficacy of eNET and therefore will have implications on further research and practice. Clinical trial registration: NCT04385927 Date and version identifier: 22 July 2021Elisa KaltenbachMichelle ChisholmTing XiongDonna ThomsonAnselm CrombachPatrick J. McGrathTaylor & Francis GrouparticleparentdisabilityptsdrctexposureenetinterventiontraumaPsychiatryRC435-571ENEuropean Journal of Psychotraumatology, Vol 12, Iss 1 (2021)
institution DOAJ
collection DOAJ
language EN
topic parent
disability
ptsd
rct
exposure
enet
intervention
trauma
Psychiatry
RC435-571
spellingShingle parent
disability
ptsd
rct
exposure
enet
intervention
trauma
Psychiatry
RC435-571
Elisa Kaltenbach
Michelle Chisholm
Ting Xiong
Donna Thomson
Anselm Crombach
Patrick J. McGrath
Online narrative exposure therapy for parents of children with neurodevelopmental disabilities suffering from posttraumatic stress symptoms – study protocol of a randomized controlled trial
description Background Parents of children with intellectual and neurodevelopmental disorders (IDD) often experience traumatic events in the care of their children. This leads to comparatively high numbers of mental health problems such as posttraumatic stress disorder (PTSD) in those parents. Intervention approaches for parents of children with IDD are scarce and many parents remain without support. Objective This study aims to test the feasibility and efficacy of online Narrative Exposure Therapy (eNET) with parents of children with IDD. Methods The study follows a randomized waitlist-control design. eNET is an exposure-based PTSD intervention and includes 8–12 90-minute sessions. All sessions will be conducted via video calls with trained paraprofessionals. We aim to include 50 parents, approximately 25 in the immediate intervention group and 25 in the waitlist group. Waitlist participants will receive the same intervention after a three-month wait period. All participants need to either fulfill full or subclinical PTSD symptoms according to DSM-5. Feasibility and efficacy of the intervention will be measured with pre, post, and 2 and 6 months follow-up surveys focusing on PTSD symptoms. Secondary outcomes include other health-related outcomes such as physical symptoms, depression symptoms, anxiety symptoms and functionality. Conclusions The proposed study allows us to test the feasibility and efficacy of eNET in a sample of parents of children with IDD. There are so far no published studies on the evidence of eNET; this study is one of the first randomized controlled trials investigating the feasibility and efficacy of eNET and therefore will have implications on further research and practice. Clinical trial registration: NCT04385927 Date and version identifier: 22 July 2021
format article
author Elisa Kaltenbach
Michelle Chisholm
Ting Xiong
Donna Thomson
Anselm Crombach
Patrick J. McGrath
author_facet Elisa Kaltenbach
Michelle Chisholm
Ting Xiong
Donna Thomson
Anselm Crombach
Patrick J. McGrath
author_sort Elisa Kaltenbach
title Online narrative exposure therapy for parents of children with neurodevelopmental disabilities suffering from posttraumatic stress symptoms – study protocol of a randomized controlled trial
title_short Online narrative exposure therapy for parents of children with neurodevelopmental disabilities suffering from posttraumatic stress symptoms – study protocol of a randomized controlled trial
title_full Online narrative exposure therapy for parents of children with neurodevelopmental disabilities suffering from posttraumatic stress symptoms – study protocol of a randomized controlled trial
title_fullStr Online narrative exposure therapy for parents of children with neurodevelopmental disabilities suffering from posttraumatic stress symptoms – study protocol of a randomized controlled trial
title_full_unstemmed Online narrative exposure therapy for parents of children with neurodevelopmental disabilities suffering from posttraumatic stress symptoms – study protocol of a randomized controlled trial
title_sort online narrative exposure therapy for parents of children with neurodevelopmental disabilities suffering from posttraumatic stress symptoms – study protocol of a randomized controlled trial
publisher Taylor & Francis Group
publishDate 2021
url https://doaj.org/article/015c49b6b9ce436ebb83415818b2ef0d
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