MAIN CAREGIVER’S EXPERIENCE IN MEETING SELF-CARE NEEDS AMONG ADOLESCENTS WITH ASD IN PONTIANAK MUNICIPALITY, WEST BORNEO, INDONESIA: A QUALITATIVE STUDY

Background: Autism spectrum disorder (ASD) is a complex developmental disorder, increasing in number, faster than that of other developmental disorders in the world. This complex disorder affects a child’s self-autonomy, which is important for individual self-care. Objective : This study is to expl...

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Autores principales:	Lilis Lestari, Elisabeth. S. Herini, Indria Laksmi Gamayanti
Formato:	article
Lenguaje:	EN
Publicado:	Belitung Raya Foundation 2017
Materias:	Caregiver experience main caregiver adolescent ASD self-care basic needs Nursing RT1-120
Acceso en línea:	https://doaj.org/article/016980e59fb94a6599785795d5314f38
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spelling	oai:doaj.org-article:016980e59fb94a6599785795d5314f382021-12-02T11:21:18ZMAIN CAREGIVER’S EXPERIENCE IN MEETING SELF-CARE NEEDS AMONG ADOLESCENTS WITH ASD IN PONTIANAK MUNICIPALITY, WEST BORNEO, INDONESIA: A QUALITATIVE STUDY2477-40732477-4073https://doaj.org/article/016980e59fb94a6599785795d5314f382017-08-01T00:00:00Zhttp://belitungraya.org/BRP/index.php/bnj/article/view/123https://doaj.org/toc/2477-4073https://doaj.org/toc/2477-4073Background: Autism spectrum disorder (ASD) is a complex developmental disorder, increasing in number, faster than that of other developmental disorders in the world. This complex disorder affects a child’s self-autonomy, which is important for individual self-care. Objective : This study is to explore main caregivers’ experience to meet self-care needs among adolescents with ASD in Pontianak, West Borneo, Indonesia. Methods: Qualitative semi-structured in-depth interviews were done with 7 main caregivers that have lived together and taken care of the adolescents with ASD in Pontianak Municipality, West Borneo Province. Sampling was taken with purposive sampling (maximum variation). Source (interviews) and method (observations of self-care activities and documents like photos, learning reports and field notes) triangulations were taken on 1 participant and 7 autistic adolescents. Participants’ statements were recorded by using a voice recorder, and then transcribed, coded, interpreted, and categorized in order that sub-topics and main topics could be formed. Results: The study identified five main topics: i.e., 1) Autonomy in self-care; 2) Care effort; 3) Feelings, support, and expectations. Three findings of the study emphasize the potentials of children with autism to be autonomous in daily self-care. Conclusions: Adolescents with ASD can potentially meet the needs of their daily care independently. Lilis LestariElisabeth. S. HeriniIndria Laksmi GamayantiBelitung Raya FoundationarticleCaregiver experiencemain caregiveradolescentASDself-carebasic needsNursingRT1-120ENBelitung Nursing Journal, Vol 3, Iss 4, Pp 316-328 (2017)
institution	DOAJ
collection	DOAJ
language	EN
topic	Caregiver experience main caregiver adolescent ASD self-care basic needs Nursing RT1-120
spellingShingle	Caregiver experience main caregiver adolescent ASD self-care basic needs Nursing RT1-120 Lilis Lestari Elisabeth. S. Herini Indria Laksmi Gamayanti MAIN CAREGIVER’S EXPERIENCE IN MEETING SELF-CARE NEEDS AMONG ADOLESCENTS WITH ASD IN PONTIANAK MUNICIPALITY, WEST BORNEO, INDONESIA: A QUALITATIVE STUDY
description	Background: Autism spectrum disorder (ASD) is a complex developmental disorder, increasing in number, faster than that of other developmental disorders in the world. This complex disorder affects a child’s self-autonomy, which is important for individual self-care. Objective : This study is to explore main caregivers’ experience to meet self-care needs among adolescents with ASD in Pontianak, West Borneo, Indonesia. Methods: Qualitative semi-structured in-depth interviews were done with 7 main caregivers that have lived together and taken care of the adolescents with ASD in Pontianak Municipality, West Borneo Province. Sampling was taken with purposive sampling (maximum variation). Source (interviews) and method (observations of self-care activities and documents like photos, learning reports and field notes) triangulations were taken on 1 participant and 7 autistic adolescents. Participants’ statements were recorded by using a voice recorder, and then transcribed, coded, interpreted, and categorized in order that sub-topics and main topics could be formed. Results: The study identified five main topics: i.e., 1) Autonomy in self-care; 2) Care effort; 3) Feelings, support, and expectations. Three findings of the study emphasize the potentials of children with autism to be autonomous in daily self-care. Conclusions: Adolescents with ASD can potentially meet the needs of their daily care independently.
format	article
author	Lilis Lestari Elisabeth. S. Herini Indria Laksmi Gamayanti
author_facet	Lilis Lestari Elisabeth. S. Herini Indria Laksmi Gamayanti
author_sort	Lilis Lestari
title	MAIN CAREGIVER’S EXPERIENCE IN MEETING SELF-CARE NEEDS AMONG ADOLESCENTS WITH ASD IN PONTIANAK MUNICIPALITY, WEST BORNEO, INDONESIA: A QUALITATIVE STUDY
title_short	MAIN CAREGIVER’S EXPERIENCE IN MEETING SELF-CARE NEEDS AMONG ADOLESCENTS WITH ASD IN PONTIANAK MUNICIPALITY, WEST BORNEO, INDONESIA: A QUALITATIVE STUDY
title_full	MAIN CAREGIVER’S EXPERIENCE IN MEETING SELF-CARE NEEDS AMONG ADOLESCENTS WITH ASD IN PONTIANAK MUNICIPALITY, WEST BORNEO, INDONESIA: A QUALITATIVE STUDY
title_fullStr	MAIN CAREGIVER’S EXPERIENCE IN MEETING SELF-CARE NEEDS AMONG ADOLESCENTS WITH ASD IN PONTIANAK MUNICIPALITY, WEST BORNEO, INDONESIA: A QUALITATIVE STUDY
title_full_unstemmed	MAIN CAREGIVER’S EXPERIENCE IN MEETING SELF-CARE NEEDS AMONG ADOLESCENTS WITH ASD IN PONTIANAK MUNICIPALITY, WEST BORNEO, INDONESIA: A QUALITATIVE STUDY
title_sort	main caregiver’s experience in meeting self-care needs among adolescents with asd in pontianak municipality, west borneo, indonesia: a qualitative study
publisher	Belitung Raya Foundation
publishDate	2017
url	https://doaj.org/article/016980e59fb94a6599785795d5314f38
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MAIN CAREGIVER’S EXPERIENCE IN MEETING SELF-CARE NEEDS AMONG ADOLESCENTS WITH ASD IN PONTIANAK MUNICIPALITY, WEST BORNEO, INDONESIA: A QUALITATIVE STUDY

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