Does she think she’s supported? Maternal perceptions of their experiences in the neonatal intensive care unit

Parents’ involvement in the care of their infants in the neonatal intensive care unit (NICU) is critically important, leading many NICUs to implement policies and practices of family-centered care (FCC). Analyzing narrative interviews, we examined whether mothers of premature infants who participate...

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Autores principales:	Emily Lilo, Richard Shaw, Julia Corcoran, Amy Storfer-Isser, Sarah Horwitz
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2016
Materias:	perceptions of care family-centered care maternal satisfaction maternal experience Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/030de75e95a548f8a9926a705b044219
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spelling	oai:doaj.org-article:030de75e95a548f8a9926a705b0442192021-11-15T04:21:38ZDoes she think she’s supported? Maternal perceptions of their experiences in the neonatal intensive care unit2372-0247https://doaj.org/article/030de75e95a548f8a9926a705b0442192016-04-01T00:00:00Zhttps://pxjournal.org/journal/vol3/iss1/4https://doaj.org/toc/2372-0247Parents’ involvement in the care of their infants in the neonatal intensive care unit (NICU) is critically important, leading many NICUs to implement policies and practices of family-centered care (FCC). Analyzing narrative interviews, we examined whether mothers of premature infants who participated in an intervention to help reduce anxiety, stress, and depression felt that their NICU experience reflected four key nursing behaviors previously identified as being necessary to achieving FCC. Fifty-six narratives derived from semi-structured interviews with the mothers were analyzed qualitatively and quantitatively to examine whether the women experienced emotional support, parent empowerment, welcoming environment, and parent education, as well as whether differences in reported experiences were related to sociodemographic factors or maternal coping styles. Overall, the mothers reported more negative than positive experiences with respect to the four behaviors, and those who had negative interactions with the hospital staff felt a sense of disenfranchisement and failure as mothers. Sociodemographic factors and coping styles were significantly associated with the mothers’ perceptions of their experiences, although these relationships were not consistent. Achieving actual FCC in the NICU may require parent-informed evidence-based changes in NICU personnel training and infrastructure.Emily LiloRichard ShawJulia CorcoranAmy Storfer-IsserSarah HorwitzThe Beryl Institutearticleperceptions of carefamily-centered carematernal satisfactionmaternal experienceMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2016)
institution	DOAJ
collection	DOAJ
language	EN
topic	perceptions of care family-centered care maternal satisfaction maternal experience Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	perceptions of care family-centered care maternal satisfaction maternal experience Medicine (General) R5-920 Public aspects of medicine RA1-1270 Emily Lilo Richard Shaw Julia Corcoran Amy Storfer-Isser Sarah Horwitz Does she think she’s supported? Maternal perceptions of their experiences in the neonatal intensive care unit
description	Parents’ involvement in the care of their infants in the neonatal intensive care unit (NICU) is critically important, leading many NICUs to implement policies and practices of family-centered care (FCC). Analyzing narrative interviews, we examined whether mothers of premature infants who participated in an intervention to help reduce anxiety, stress, and depression felt that their NICU experience reflected four key nursing behaviors previously identified as being necessary to achieving FCC. Fifty-six narratives derived from semi-structured interviews with the mothers were analyzed qualitatively and quantitatively to examine whether the women experienced emotional support, parent empowerment, welcoming environment, and parent education, as well as whether differences in reported experiences were related to sociodemographic factors or maternal coping styles. Overall, the mothers reported more negative than positive experiences with respect to the four behaviors, and those who had negative interactions with the hospital staff felt a sense of disenfranchisement and failure as mothers. Sociodemographic factors and coping styles were significantly associated with the mothers’ perceptions of their experiences, although these relationships were not consistent. Achieving actual FCC in the NICU may require parent-informed evidence-based changes in NICU personnel training and infrastructure.
format	article
author	Emily Lilo Richard Shaw Julia Corcoran Amy Storfer-Isser Sarah Horwitz
author_facet	Emily Lilo Richard Shaw Julia Corcoran Amy Storfer-Isser Sarah Horwitz
author_sort	Emily Lilo
title	Does she think she’s supported? Maternal perceptions of their experiences in the neonatal intensive care unit
title_short	Does she think she’s supported? Maternal perceptions of their experiences in the neonatal intensive care unit
title_full	Does she think she’s supported? Maternal perceptions of their experiences in the neonatal intensive care unit
title_fullStr	Does she think she’s supported? Maternal perceptions of their experiences in the neonatal intensive care unit
title_full_unstemmed	Does she think she’s supported? Maternal perceptions of their experiences in the neonatal intensive care unit
title_sort	does she think she’s supported? maternal perceptions of their experiences in the neonatal intensive care unit
publisher	The Beryl Institute
publishDate	2016
url	https://doaj.org/article/030de75e95a548f8a9926a705b044219
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Does she think she’s supported? Maternal perceptions of their experiences in the neonatal intensive care unit

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