A Cross-sectional Study of Patients and Physicians on the Impact of Myeloproliferative Neoplasms on Patient Health: The Landmark Survey From Taiwan

Patients with myeloproliferative neoplasm (MPN), including myelofibrosis, polycythemia vera, and essential thrombocythemia, experience a pronounced symptom burden. This study aimed to collect information from physicians and patients in Taiwan to explore their perceptions regarding MPN, treatment goa...

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Autores principales:	Cheng-Shyong Chang, Chieh-Wen Chen, I-Ju Chiang, Fan-Chen Ku, Yee-Ming Lee, Asif Siddiqui
Formato:	article
Lenguaje:	EN
Publicado:	SAGE Publishing 2021
Materias:	Medicine (General) R5-920
Acceso en línea:	https://doaj.org/article/039478eb227945e08b1a18d5bade431f
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spelling	oai:doaj.org-article:039478eb227945e08b1a18d5bade431f2021-12-01T23:04:18ZA Cross-sectional Study of Patients and Physicians on the Impact of Myeloproliferative Neoplasms on Patient Health: The Landmark Survey From Taiwan2374-374310.1177/23743735211059053https://doaj.org/article/039478eb227945e08b1a18d5bade431f2021-11-01T00:00:00Zhttps://doi.org/10.1177/23743735211059053https://doaj.org/toc/2374-3743Patients with myeloproliferative neoplasm (MPN), including myelofibrosis, polycythemia vera, and essential thrombocythemia, experience a pronounced symptom burden. This study aimed to collect information from physicians and patients in Taiwan to explore their perceptions regarding MPN, treatment goals, and satisfaction with disease management. A cross-sectional, online survey was conducted among patients and physicians from September 2018 to November 2018 in Taiwan as a subset of the expansion of the Landmark survey. Overall, 50 patients with MPN and 30 physicians participated in this study. The symptom burden was low, with the mean number of symptoms experienced being 1.8. The most frequent symptom per physicians’ perception was fatigue, whereas it is not the most common symptom from MPN patients’ perspective. Blood count was the key indicator to determine treatment success from patients’ view, whereas presence of a new symptom was the key indicator from physicians’ perspective. Concordant with previous studies, our study revealed a lack of alignment between physician and patient perceptions relating to treatment goals and disease management. Nevertheless, the physical, emotional, work/activities and financial impacts on patients were minimal in Taiwan.Cheng-Shyong ChangChieh-Wen ChenI-Ju ChiangFan-Chen KuYee-Ming LeeAsif SiddiquiSAGE PublishingarticleMedicine (General)R5-920ENJournal of Patient Experience, Vol 8 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Medicine (General) R5-920
spellingShingle	Medicine (General) R5-920 Cheng-Shyong Chang Chieh-Wen Chen I-Ju Chiang Fan-Chen Ku Yee-Ming Lee Asif Siddiqui A Cross-sectional Study of Patients and Physicians on the Impact of Myeloproliferative Neoplasms on Patient Health: The Landmark Survey From Taiwan
description	Patients with myeloproliferative neoplasm (MPN), including myelofibrosis, polycythemia vera, and essential thrombocythemia, experience a pronounced symptom burden. This study aimed to collect information from physicians and patients in Taiwan to explore their perceptions regarding MPN, treatment goals, and satisfaction with disease management. A cross-sectional, online survey was conducted among patients and physicians from September 2018 to November 2018 in Taiwan as a subset of the expansion of the Landmark survey. Overall, 50 patients with MPN and 30 physicians participated in this study. The symptom burden was low, with the mean number of symptoms experienced being 1.8. The most frequent symptom per physicians’ perception was fatigue, whereas it is not the most common symptom from MPN patients’ perspective. Blood count was the key indicator to determine treatment success from patients’ view, whereas presence of a new symptom was the key indicator from physicians’ perspective. Concordant with previous studies, our study revealed a lack of alignment between physician and patient perceptions relating to treatment goals and disease management. Nevertheless, the physical, emotional, work/activities and financial impacts on patients were minimal in Taiwan.
format	article
author	Cheng-Shyong Chang Chieh-Wen Chen I-Ju Chiang Fan-Chen Ku Yee-Ming Lee Asif Siddiqui
author_facet	Cheng-Shyong Chang Chieh-Wen Chen I-Ju Chiang Fan-Chen Ku Yee-Ming Lee Asif Siddiqui
author_sort	Cheng-Shyong Chang
title	A Cross-sectional Study of Patients and Physicians on the Impact of Myeloproliferative Neoplasms on Patient Health: The Landmark Survey From Taiwan
title_short	A Cross-sectional Study of Patients and Physicians on the Impact of Myeloproliferative Neoplasms on Patient Health: The Landmark Survey From Taiwan
title_full	A Cross-sectional Study of Patients and Physicians on the Impact of Myeloproliferative Neoplasms on Patient Health: The Landmark Survey From Taiwan
title_fullStr	A Cross-sectional Study of Patients and Physicians on the Impact of Myeloproliferative Neoplasms on Patient Health: The Landmark Survey From Taiwan
title_full_unstemmed	A Cross-sectional Study of Patients and Physicians on the Impact of Myeloproliferative Neoplasms on Patient Health: The Landmark Survey From Taiwan
title_sort	cross-sectional study of patients and physicians on the impact of myeloproliferative neoplasms on patient health: the landmark survey from taiwan
publisher	SAGE Publishing
publishDate	2021
url	https://doaj.org/article/039478eb227945e08b1a18d5bade431f
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A Cross-sectional Study of Patients and Physicians on the Impact of Myeloproliferative Neoplasms on Patient Health: The Landmark Survey From Taiwan

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