Impacts and Burden of Niemann pick Type-C: a patient and caregiver perspective

Impacts and Burden of Niemann pick Type-C: a patient and caregiver perspective

Abstract Background Niemann-Pick disease type C (NPC) is a debilitating condition that impacts patients’ and caregivers’ quality of life (QOL) and reduces the patient’s life expectancy. Since there is little qualitative research from the perspective of patients and family caregivers, this study expl...

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Autores principales: Eugen Mengel, Marc C. Patterson, Michael Chladek, Christina Guldberg, Christine í Dali, Tara Symonds, Lucy Lloyd-Price, Toni Mathieson, Joslyn Crowe, Claire Burbridge
Formato: article
Lenguaje:EN
Publicado: BMC 2021
Materias:
Niemann pick Type-C
NPC
Impacts
Illness burden
Qualitative
Medicine
R
Acceso en línea:https://doaj.org/article/04afd113d8674f91a5645ce4861fc91f
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