Collecting child-patient feedback: A systematic review on the patient-reported outcome measures for hospitalized children

Accurate reporting of patient experiences is a crucial resource for hospitals engaged in patient-and-family-centered care (PFCC). However, studies suggest that most children do not respond to patient satisfaction surveys and are instead represented by their parents or guardians. This study reviewed...

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Autores principales:	Haneen Ali, Astin Cole, Adam Sienkiewicz, Steffie Rosene, Reagan Shaffer, Robert Thames
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2020
Materias:	hospitalized children quality feedback experience satisfaction Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/05f5588445e0405ab4efc6566b8c5e6e
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spelling	oai:doaj.org-article:05f5588445e0405ab4efc6566b8c5e6e2021-11-15T04:31:27ZCollecting child-patient feedback: A systematic review on the patient-reported outcome measures for hospitalized children2372-0247https://doaj.org/article/05f5588445e0405ab4efc6566b8c5e6e2020-11-01T00:00:00Zhttps://pxjournal.org/journal/vol7/iss3/9https://doaj.org/toc/2372-0247Accurate reporting of patient experiences is a crucial resource for hospitals engaged in patient-and-family-centered care (PFCC). However, studies suggest that most children do not respond to patient satisfaction surveys and are instead represented by their parents or guardians. This study reviewed instruments used to obtain feedback from children about their healthcare experiences for two purposes: 1) To understand the limitations of current tools and 2) To determine if creating a new instrument is necessary. A systematic review was performed on PubMed, Medline, CINAHL, and Web of Science to identify peer-reviewed questionnaires designed to collect children's healthcare experiences. Out of the 9,822 retrieved studies, 17 met the inclusion criteria. Among the seventeen studies, only one provided versions of the study for non-English speaking respondents. Only seven studies developed their questionnaires, nine studies used tools developed by other authors, and one study did not specify. Only 58.82% of the included studies collected both the child and their parents' responses, and the remaining 41.18 % collected data solely from the child. Lastly, the included studies relied too heavily on questions that required the child to recall detailed accounts of their hospital experiences, the quality of their hospital room, and the hospital equipment used in their treatment. The study finds that these questions not only led to mixed results, it also limited self-reporting. Further, the study acknowledges the need to develop a superior instrument that asks children for their perspective of their healthcare experiences in an age-appropriate and culturally accessible way. <strong>Experience Framework</strong> This article is associated with the Policy & Measurement lens of The Beryl Institute Experience Framework. (<a href="http://bit.ly/ExperienceFramework">http://bit.ly/ExperienceFramework</a>) <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Policy%20%26%20Measurement%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PolicyMeasurement">Access other resources</a> related to this lens.</li> </ul>Haneen AliAstin ColeAdam SienkiewiczSteffie RoseneReagan ShafferRobert ThamesThe Beryl Institutearticlehospitalized childrenqualityfeedbackexperiencesatisfactionMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2020)
institution	DOAJ
collection	DOAJ
language	EN
topic	hospitalized children quality feedback experience satisfaction Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	hospitalized children quality feedback experience satisfaction Medicine (General) R5-920 Public aspects of medicine RA1-1270 Haneen Ali Astin Cole Adam Sienkiewicz Steffie Rosene Reagan Shaffer Robert Thames Collecting child-patient feedback: A systematic review on the patient-reported outcome measures for hospitalized children
description	Accurate reporting of patient experiences is a crucial resource for hospitals engaged in patient-and-family-centered care (PFCC). However, studies suggest that most children do not respond to patient satisfaction surveys and are instead represented by their parents or guardians. This study reviewed instruments used to obtain feedback from children about their healthcare experiences for two purposes: 1) To understand the limitations of current tools and 2) To determine if creating a new instrument is necessary. A systematic review was performed on PubMed, Medline, CINAHL, and Web of Science to identify peer-reviewed questionnaires designed to collect children's healthcare experiences. Out of the 9,822 retrieved studies, 17 met the inclusion criteria. Among the seventeen studies, only one provided versions of the study for non-English speaking respondents. Only seven studies developed their questionnaires, nine studies used tools developed by other authors, and one study did not specify. Only 58.82% of the included studies collected both the child and their parents' responses, and the remaining 41.18 % collected data solely from the child. Lastly, the included studies relied too heavily on questions that required the child to recall detailed accounts of their hospital experiences, the quality of their hospital room, and the hospital equipment used in their treatment. The study finds that these questions not only led to mixed results, it also limited self-reporting. Further, the study acknowledges the need to develop a superior instrument that asks children for their perspective of their healthcare experiences in an age-appropriate and culturally accessible way. <strong>Experience Framework</strong> This article is associated with the Policy & Measurement lens of The Beryl Institute Experience Framework. (<a href="http://bit.ly/ExperienceFramework">http://bit.ly/ExperienceFramework</a>) <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Policy%20%26%20Measurement%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PolicyMeasurement">Access other resources</a> related to this lens.</li> </ul>
format	article
author	Haneen Ali Astin Cole Adam Sienkiewicz Steffie Rosene Reagan Shaffer Robert Thames
author_facet	Haneen Ali Astin Cole Adam Sienkiewicz Steffie Rosene Reagan Shaffer Robert Thames
author_sort	Haneen Ali
title	Collecting child-patient feedback: A systematic review on the patient-reported outcome measures for hospitalized children
title_short	Collecting child-patient feedback: A systematic review on the patient-reported outcome measures for hospitalized children
title_full	Collecting child-patient feedback: A systematic review on the patient-reported outcome measures for hospitalized children
title_fullStr	Collecting child-patient feedback: A systematic review on the patient-reported outcome measures for hospitalized children
title_full_unstemmed	Collecting child-patient feedback: A systematic review on the patient-reported outcome measures for hospitalized children
title_sort	collecting child-patient feedback: a systematic review on the patient-reported outcome measures for hospitalized children
publisher	The Beryl Institute
publishDate	2020
url	https://doaj.org/article/05f5588445e0405ab4efc6566b8c5e6e
work_keys_str_mv	AT haneenali collectingchildpatientfeedbackasystematicreviewonthepatientreportedoutcomemeasuresforhospitalizedchildren AT astincole collectingchildpatientfeedbackasystematicreviewonthepatientreportedoutcomemeasuresforhospitalizedchildren AT adamsienkiewicz collectingchildpatientfeedbackasystematicreviewonthepatientreportedoutcomemeasuresforhospitalizedchildren AT steffierosene collectingchildpatientfeedbackasystematicreviewonthepatientreportedoutcomemeasuresforhospitalizedchildren AT reaganshaffer collectingchildpatientfeedbackasystematicreviewonthepatientreportedoutcomemeasuresforhospitalizedchildren AT robertthames collectingchildpatientfeedbackasystematicreviewonthepatientreportedoutcomemeasuresforhospitalizedchildren
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Collecting child-patient feedback: A systematic review on the patient-reported outcome measures for hospitalized children

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