Living with a chronic disease: insights from patients with a low socioeconomic status

Abstract Background Little is known about how patients with low socioeconomic status (SES) experience their chronic disease, and how it impacts health-related quality of life (HRQoL). Compared to their more affluent counterparts, worse outcomes have been reported. A better understanding of the domai...

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Autores principales:	Lisa Van Wilder, Peter Pype, Fien Mertens, Elke Rammant, Els Clays, Brecht Devleesschauwer, Pauline Boeckxstaens, Delphine De Smedt
Formato:	article
Lenguaje:	EN
Publicado:	BMC 2021
Materias:	Chronic disease Health-related quality of life Socioeconomic status Health inequalities Conceptual model Medicine (General) R5-920
Acceso en línea:	https://doaj.org/article/0612ac0bac7b4a79b75ee997bb888d78
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spelling	oai:doaj.org-article:0612ac0bac7b4a79b75ee997bb888d782021-11-21T12:32:39ZLiving with a chronic disease: insights from patients with a low socioeconomic status10.1186/s12875-021-01578-71471-2296https://doaj.org/article/0612ac0bac7b4a79b75ee997bb888d782021-11-01T00:00:00Zhttps://doi.org/10.1186/s12875-021-01578-7https://doaj.org/toc/1471-2296Abstract Background Little is known about how patients with low socioeconomic status (SES) experience their chronic disease, and how it impacts health-related quality of life (HRQoL). Compared to their more affluent counterparts, worse outcomes have been reported. A better understanding of the domains of HRQoL that are relevant to these specific populations is therefore needed. We explored the experiences of living with a chronic disease in low SES persons. Methods A qualitative interview study was performed in Flanders, Belgium. Semi-structured interviews were conducted in chronically ill patients, selected through purposive sampling. Interviews were audio-recorded and transcribed verbatim. Analysis followed an inductive and iterative approach. Results Fifteen patients were interviewed. Six major themes were identified: a heavy bag to carry, loss of autonomous life, inner and outer loneliness, emotional imbalance, unmet need for support, and coping strategies. Patients experienced their illness as an additional problem on top of all other problems (i.e. financial/social problems, traumatic life events). In general, the disease burden and non-disease burden were mutually reinforcing, resulting in greater dependency, greater risk of social isolation, greater psychological distress, and greater risk of impaired HRQoL. Conclusions This study is the first to provide detailed insight into the experiences of living with a chronic disease in low SES persons. A conceptual model is proposed that can be used in daily clinical practice to raise awareness among clinicians and health care providers that the patient’s needs go beyond the disease itself. Future research is needed to validate and test the model.Lisa Van WilderPeter PypeFien MertensElke RammantEls ClaysBrecht DevleesschauwerPauline BoeckxstaensDelphine De SmedtBMCarticleChronic diseaseHealth-related quality of lifeSocioeconomic statusHealth inequalitiesConceptual modelMedicine (General)R5-920ENBMC Family Practice, Vol 22, Iss 1, Pp 1-11 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Chronic disease Health-related quality of life Socioeconomic status Health inequalities Conceptual model Medicine (General) R5-920
spellingShingle	Chronic disease Health-related quality of life Socioeconomic status Health inequalities Conceptual model Medicine (General) R5-920 Lisa Van Wilder Peter Pype Fien Mertens Elke Rammant Els Clays Brecht Devleesschauwer Pauline Boeckxstaens Delphine De Smedt Living with a chronic disease: insights from patients with a low socioeconomic status
description	Abstract Background Little is known about how patients with low socioeconomic status (SES) experience their chronic disease, and how it impacts health-related quality of life (HRQoL). Compared to their more affluent counterparts, worse outcomes have been reported. A better understanding of the domains of HRQoL that are relevant to these specific populations is therefore needed. We explored the experiences of living with a chronic disease in low SES persons. Methods A qualitative interview study was performed in Flanders, Belgium. Semi-structured interviews were conducted in chronically ill patients, selected through purposive sampling. Interviews were audio-recorded and transcribed verbatim. Analysis followed an inductive and iterative approach. Results Fifteen patients were interviewed. Six major themes were identified: a heavy bag to carry, loss of autonomous life, inner and outer loneliness, emotional imbalance, unmet need for support, and coping strategies. Patients experienced their illness as an additional problem on top of all other problems (i.e. financial/social problems, traumatic life events). In general, the disease burden and non-disease burden were mutually reinforcing, resulting in greater dependency, greater risk of social isolation, greater psychological distress, and greater risk of impaired HRQoL. Conclusions This study is the first to provide detailed insight into the experiences of living with a chronic disease in low SES persons. A conceptual model is proposed that can be used in daily clinical practice to raise awareness among clinicians and health care providers that the patient’s needs go beyond the disease itself. Future research is needed to validate and test the model.
format	article
author	Lisa Van Wilder Peter Pype Fien Mertens Elke Rammant Els Clays Brecht Devleesschauwer Pauline Boeckxstaens Delphine De Smedt
author_facet	Lisa Van Wilder Peter Pype Fien Mertens Elke Rammant Els Clays Brecht Devleesschauwer Pauline Boeckxstaens Delphine De Smedt
author_sort	Lisa Van Wilder
title	Living with a chronic disease: insights from patients with a low socioeconomic status
title_short	Living with a chronic disease: insights from patients with a low socioeconomic status
title_full	Living with a chronic disease: insights from patients with a low socioeconomic status
title_fullStr	Living with a chronic disease: insights from patients with a low socioeconomic status
title_full_unstemmed	Living with a chronic disease: insights from patients with a low socioeconomic status
title_sort	living with a chronic disease: insights from patients with a low socioeconomic status
publisher	BMC
publishDate	2021
url	https://doaj.org/article/0612ac0bac7b4a79b75ee997bb888d78
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Living with a chronic disease: insights from patients with a low socioeconomic status

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