Far and wide: Exploring provider utilization of remote service provision for genome‐wide sequencing in Canada

Abstract Background In Canada, funding for genome‐wide sequencing (GWS; exome and whole genome) is provincially regulated. We characterized the uptake of GWS by genetics health professionals (GHPs) across Canada and describe how they use remote technologies for patient access to GWS and genomic coun...

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Autores principales:	Emily A. Enns, Tasha Wainstein, Nick Dragojlovic, Nicola Kopac, GenCOUNSEL Study, Larry D. Lynd, Alison M. Elliott
Formato:	article
Lenguaje:	EN
Publicado:	Wiley 2021
Materias:	access genetic counseling genome‐wide sequencing remote service provision telehealth telemedicine Genetics QH426-470
Acceso en línea:	https://doaj.org/article/08417bdebc3e4030a219bbe476003ca9
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spelling	oai:doaj.org-article:08417bdebc3e4030a219bbe476003ca92021-11-10T16:39:23ZFar and wide: Exploring provider utilization of remote service provision for genome‐wide sequencing in Canada2324-926910.1002/mgg3.1784https://doaj.org/article/08417bdebc3e4030a219bbe476003ca92021-10-01T00:00:00Zhttps://doi.org/10.1002/mgg3.1784https://doaj.org/toc/2324-9269Abstract Background In Canada, funding for genome‐wide sequencing (GWS; exome and whole genome) is provincially regulated. We characterized the uptake of GWS by genetics health professionals (GHPs) across Canada and describe how they use remote technologies for patient access to GWS and genomic counseling. Methods We distributed a survey to 574 Canadian GHPs addressing: GWS use, remote technologies (e.g., telephone, videoconferencing) for GWS and provider opinions regarding these technologies. Data were summarized using descriptive statistics. Associations between variables were evaluated using Chi‐square and Fisher's Exact tests for categorical data, and t‐tests or Mann–Whitney U tests for continuous data. Results Of 116 GHPs, 50% reported using GWS in the last year and 57% of GWS users reported using remote technologies. Clinical geneticists who did not use GWS reported lack of provincial funding as the principal reason. Remote technologies were most commonly used for informed consent and results, and rarely used for initial consultations. Average wait times for a GWS appointment were shorter for remote appointments (mean 44.2 (SD 40.2) weeks) than for in‐person (mean 58.2 (SD 42.9), p = 0.036). Conclusion The use of GWS varied across Canada, professional designation, and discipline. Funding remains a barrier to GWS access. Remote technologies increase patient access with reduced wait times.Emily A. EnnsTasha WainsteinNick DragojlovicNicola KopacGenCOUNSEL StudyLarry D. LyndAlison M. ElliottWileyarticleaccessgenetic counselinggenome‐wide sequencingremote service provisiontelehealthtelemedicineGeneticsQH426-470ENMolecular Genetics & Genomic Medicine, Vol 9, Iss 10, Pp n/a-n/a (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	access genetic counseling genome‐wide sequencing remote service provision telehealth telemedicine Genetics QH426-470
spellingShingle	access genetic counseling genome‐wide sequencing remote service provision telehealth telemedicine Genetics QH426-470 Emily A. Enns Tasha Wainstein Nick Dragojlovic Nicola Kopac GenCOUNSEL Study Larry D. Lynd Alison M. Elliott Far and wide: Exploring provider utilization of remote service provision for genome‐wide sequencing in Canada
description	Abstract Background In Canada, funding for genome‐wide sequencing (GWS; exome and whole genome) is provincially regulated. We characterized the uptake of GWS by genetics health professionals (GHPs) across Canada and describe how they use remote technologies for patient access to GWS and genomic counseling. Methods We distributed a survey to 574 Canadian GHPs addressing: GWS use, remote technologies (e.g., telephone, videoconferencing) for GWS and provider opinions regarding these technologies. Data were summarized using descriptive statistics. Associations between variables were evaluated using Chi‐square and Fisher's Exact tests for categorical data, and t‐tests or Mann–Whitney U tests for continuous data. Results Of 116 GHPs, 50% reported using GWS in the last year and 57% of GWS users reported using remote technologies. Clinical geneticists who did not use GWS reported lack of provincial funding as the principal reason. Remote technologies were most commonly used for informed consent and results, and rarely used for initial consultations. Average wait times for a GWS appointment were shorter for remote appointments (mean 44.2 (SD 40.2) weeks) than for in‐person (mean 58.2 (SD 42.9), p = 0.036). Conclusion The use of GWS varied across Canada, professional designation, and discipline. Funding remains a barrier to GWS access. Remote technologies increase patient access with reduced wait times.
format	article
author	Emily A. Enns Tasha Wainstein Nick Dragojlovic Nicola Kopac GenCOUNSEL Study Larry D. Lynd Alison M. Elliott
author_facet	Emily A. Enns Tasha Wainstein Nick Dragojlovic Nicola Kopac GenCOUNSEL Study Larry D. Lynd Alison M. Elliott
author_sort	Emily A. Enns
title	Far and wide: Exploring provider utilization of remote service provision for genome‐wide sequencing in Canada
title_short	Far and wide: Exploring provider utilization of remote service provision for genome‐wide sequencing in Canada
title_full	Far and wide: Exploring provider utilization of remote service provision for genome‐wide sequencing in Canada
title_fullStr	Far and wide: Exploring provider utilization of remote service provision for genome‐wide sequencing in Canada
title_full_unstemmed	Far and wide: Exploring provider utilization of remote service provision for genome‐wide sequencing in Canada
title_sort	far and wide: exploring provider utilization of remote service provision for genome‐wide sequencing in canada
publisher	Wiley
publishDate	2021
url	https://doaj.org/article/08417bdebc3e4030a219bbe476003ca9
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Far and wide: Exploring provider utilization of remote service provision for genome‐wide sequencing in Canada

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