Influence of Caretakers’ Health Literacy on Delays to Traumatic Brain Injury Care in Uganda

Background: Traumatic brain injury (TBI) is a life-altering condition, and delays to care can significantly impact outcomes. In Uganda, where nurse shortages are prevalent, patients’ family members are the primary caretakers of these patients and play an important role in ensuring patients’ access t...

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Autores principales:	Chinemerem Nwosu, Charis A. Spears, Charles Pate, Deborah T. Gold, Gary Bennett, Michael Haglund, Anthony Fuller
Formato:	article
Lenguaje:	EN
Publicado:	Ubiquity Press 2020
Materias:	Infectious and parasitic diseases RC109-216 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/0874f8975629447a91436e6df03733ec
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spelling	oai:doaj.org-article:0874f8975629447a91436e6df03733ec2021-12-02T12:48:57ZInfluence of Caretakers’ Health Literacy on Delays to Traumatic Brain Injury Care in Uganda2214-999610.5334/aogh.2978https://doaj.org/article/0874f8975629447a91436e6df03733ec2020-10-01T00:00:00Zhttps://annalsofglobalhealth.org/articles/2978https://doaj.org/toc/2214-9996Background: Traumatic brain injury (TBI) is a life-altering condition, and delays to care can significantly impact outcomes. In Uganda, where nurse shortages are prevalent, patients’ family members are the primary caretakers of these patients and play an important role in ensuring patients’ access to timely care. However, caretakers often have little or no knowledge of appropriate patient care. Caretakers’ ability to navigate the healthcare system and find and use health information to support their patients can impact delays in seeking, reaching, and receiving care. Objectives: This study seeks to determine the factors that impact TBI patient caretakers’ health literacy and examine how these factors influence delays in care. Methods: This study was carried out in the Mulago National Referral Hospital neurosurgical ward, where 27 adult caretakers were interviewed using semi-structured, in-depth, qualitative interviews. “The Three Delay Framework” was utilized to understand participants’ experiences in seeking, reaching, and receiving care for TBI patients. Thematic content analysis and manual coding was used to analyze interview transcripts and identify overarching themes in participant responses. Findings: The main health literacy themes identified were Extrinsic, Intrinsic and Health System Factors. Nine sub-themes were identified: Government Support, Community Support, Financial Burdens, Lack of Medical Resources, Access to Health Information, Physician Support, Emotional Challenges, Navigational Skills, and Understanding of Health Information. These components were found to influence the delays to care to varying degrees. Financial Burdens, Government Support, Emotional Challenges, Physician Support and Lack of Medical Resources were recurring factors across the three delays. Conclusion: The health literacy factors identified in this study influence caretakers’ functional health literacy and delays to care in a co-dependent manner. A better understanding of how these factors impact patient outcomes is necessary for the development of interventions targeted at improving a caretaker’s ability to maneuver the healthcare system and support patients in resource-poor settings.Chinemerem NwosuCharis A. SpearsCharles PateDeborah T. GoldGary BennettMichael HaglundAnthony FullerUbiquity PressarticleInfectious and parasitic diseasesRC109-216Public aspects of medicineRA1-1270ENAnnals of Global Health, Vol 86, Iss 1 (2020)
institution	DOAJ
collection	DOAJ
language	EN
topic	Infectious and parasitic diseases RC109-216 Public aspects of medicine RA1-1270
spellingShingle	Infectious and parasitic diseases RC109-216 Public aspects of medicine RA1-1270 Chinemerem Nwosu Charis A. Spears Charles Pate Deborah T. Gold Gary Bennett Michael Haglund Anthony Fuller Influence of Caretakers’ Health Literacy on Delays to Traumatic Brain Injury Care in Uganda
description	Background: Traumatic brain injury (TBI) is a life-altering condition, and delays to care can significantly impact outcomes. In Uganda, where nurse shortages are prevalent, patients’ family members are the primary caretakers of these patients and play an important role in ensuring patients’ access to timely care. However, caretakers often have little or no knowledge of appropriate patient care. Caretakers’ ability to navigate the healthcare system and find and use health information to support their patients can impact delays in seeking, reaching, and receiving care. Objectives: This study seeks to determine the factors that impact TBI patient caretakers’ health literacy and examine how these factors influence delays in care. Methods: This study was carried out in the Mulago National Referral Hospital neurosurgical ward, where 27 adult caretakers were interviewed using semi-structured, in-depth, qualitative interviews. “The Three Delay Framework” was utilized to understand participants’ experiences in seeking, reaching, and receiving care for TBI patients. Thematic content analysis and manual coding was used to analyze interview transcripts and identify overarching themes in participant responses. Findings: The main health literacy themes identified were Extrinsic, Intrinsic and Health System Factors. Nine sub-themes were identified: Government Support, Community Support, Financial Burdens, Lack of Medical Resources, Access to Health Information, Physician Support, Emotional Challenges, Navigational Skills, and Understanding of Health Information. These components were found to influence the delays to care to varying degrees. Financial Burdens, Government Support, Emotional Challenges, Physician Support and Lack of Medical Resources were recurring factors across the three delays. Conclusion: The health literacy factors identified in this study influence caretakers’ functional health literacy and delays to care in a co-dependent manner. A better understanding of how these factors impact patient outcomes is necessary for the development of interventions targeted at improving a caretaker’s ability to maneuver the healthcare system and support patients in resource-poor settings.
format	article
author	Chinemerem Nwosu Charis A. Spears Charles Pate Deborah T. Gold Gary Bennett Michael Haglund Anthony Fuller
author_facet	Chinemerem Nwosu Charis A. Spears Charles Pate Deborah T. Gold Gary Bennett Michael Haglund Anthony Fuller
author_sort	Chinemerem Nwosu
title	Influence of Caretakers’ Health Literacy on Delays to Traumatic Brain Injury Care in Uganda
title_short	Influence of Caretakers’ Health Literacy on Delays to Traumatic Brain Injury Care in Uganda
title_full	Influence of Caretakers’ Health Literacy on Delays to Traumatic Brain Injury Care in Uganda
title_fullStr	Influence of Caretakers’ Health Literacy on Delays to Traumatic Brain Injury Care in Uganda
title_full_unstemmed	Influence of Caretakers’ Health Literacy on Delays to Traumatic Brain Injury Care in Uganda
title_sort	influence of caretakers’ health literacy on delays to traumatic brain injury care in uganda
publisher	Ubiquity Press
publishDate	2020
url	https://doaj.org/article/0874f8975629447a91436e6df03733ec
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Influence of Caretakers’ Health Literacy on Delays to Traumatic Brain Injury Care in Uganda

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