Process Evaluation of Internet-Based Cognitive Behavioral Therapy Intervention for Informal Caregivers

Background: Informal caregivers are individuals who provide care for ill, frail, or otherwise dependent family members, siblings, or friends. Due to the caregiving demands, informal caregivers are known to experience negative mental health symptoms, such as stress or anxiety. Interventions based on...

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Autores principales:	Ieva Biliunaite, Evaldas Kazlauskas, Robbert Sanderman, Gerhard Andersson
Formato:	article
Lenguaje:	EN
Publicado:	Frontiers Media S.A. 2021
Materias:	process evaluation ICBT informal caregivers feasibility focus group Medicine (General) R5-920
Acceso en línea:	https://doaj.org/article/0aab62addd534793a56d381dcce682a7
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spelling	oai:doaj.org-article:0aab62addd534793a56d381dcce682a72021-11-12T04:32:36ZProcess Evaluation of Internet-Based Cognitive Behavioral Therapy Intervention for Informal Caregivers2296-858X10.3389/fmed.2021.725510https://doaj.org/article/0aab62addd534793a56d381dcce682a72021-11-01T00:00:00Zhttps://www.frontiersin.org/articles/10.3389/fmed.2021.725510/fullhttps://doaj.org/toc/2296-858XBackground: Informal caregivers are individuals who provide care for ill, frail, or otherwise dependent family members, siblings, or friends. Due to the caregiving demands, informal caregivers are known to experience negative mental health symptoms, such as stress or anxiety. Interventions based on Internet-based Cognitive Behavioral Therapy (ICBT) principles have been previously found to be effective for different populations and could also be considered as a plausible support option for informal caregivers. However, findings regarding effectiveness alone might not be sufficient for informing about the overall feasibility of the intervention.Objective: The aim of this process evaluation study was to evaluate the feasibility of a previously developed ICBT intervention for informal caregivers in Lithuania. More specifically, we evaluated the suitability of the intervention in relation to its content and delivery mode.Methods: Two studies were conducted. Study 1 consisted of participant evaluations of an 8-week, 8-module long therapist supported ICBT intervention. Evaluations for the Study 1 were retrieved from previously unused data, obtained from pilot testing of the intervention in which 63 informal caregivers took part. The evaluations contained of qualitative data (participant comments), as well as quantitative data (evaluations of each of the sessions). The Study 2 was an online stakeholder focus-group discussion conducted via Zoom. Eight stakeholders took part in the discussion, among whom there were social workers, medical professionals as well as individuals with caregiving experience themselves. Data were analyzed using descriptive statistics, thematic analysis, and data coding.Results: Results of the Study 1 showed that most of the pilot randomized controlled trial participants evaluated content and format of the intervention positively. These results were complemented by the findings in the Study 2, in which stakeholders evaluated the intervention as suitable and promising. In addition, stakeholders made certain suggestions for improving the intervention's usability for the informal caregivers. This included improving the instructions, providing with more guidance, and considering personalization options.Conclusion: The process evaluation helped to evaluate the feasibility of the ICBT intervention for informal caregivers in Lithuania from the two perspectives: users and stakeholders. Our findings suggest that the intervention is suitable for the target population.Ieva BiliunaiteEvaldas KazlauskasRobbert SandermanRobbert SandermanGerhard AnderssonGerhard AnderssonGerhard AnderssonFrontiers Media S.A.articleprocess evaluationICBTinformal caregiversfeasibilityfocus groupMedicine (General)R5-920ENFrontiers in Medicine, Vol 8 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	process evaluation ICBT informal caregivers feasibility focus group Medicine (General) R5-920
spellingShingle	process evaluation ICBT informal caregivers feasibility focus group Medicine (General) R5-920 Ieva Biliunaite Evaldas Kazlauskas Robbert Sanderman Robbert Sanderman Gerhard Andersson Gerhard Andersson Gerhard Andersson Process Evaluation of Internet-Based Cognitive Behavioral Therapy Intervention for Informal Caregivers
description	Background: Informal caregivers are individuals who provide care for ill, frail, or otherwise dependent family members, siblings, or friends. Due to the caregiving demands, informal caregivers are known to experience negative mental health symptoms, such as stress or anxiety. Interventions based on Internet-based Cognitive Behavioral Therapy (ICBT) principles have been previously found to be effective for different populations and could also be considered as a plausible support option for informal caregivers. However, findings regarding effectiveness alone might not be sufficient for informing about the overall feasibility of the intervention.Objective: The aim of this process evaluation study was to evaluate the feasibility of a previously developed ICBT intervention for informal caregivers in Lithuania. More specifically, we evaluated the suitability of the intervention in relation to its content and delivery mode.Methods: Two studies were conducted. Study 1 consisted of participant evaluations of an 8-week, 8-module long therapist supported ICBT intervention. Evaluations for the Study 1 were retrieved from previously unused data, obtained from pilot testing of the intervention in which 63 informal caregivers took part. The evaluations contained of qualitative data (participant comments), as well as quantitative data (evaluations of each of the sessions). The Study 2 was an online stakeholder focus-group discussion conducted via Zoom. Eight stakeholders took part in the discussion, among whom there were social workers, medical professionals as well as individuals with caregiving experience themselves. Data were analyzed using descriptive statistics, thematic analysis, and data coding.Results: Results of the Study 1 showed that most of the pilot randomized controlled trial participants evaluated content and format of the intervention positively. These results were complemented by the findings in the Study 2, in which stakeholders evaluated the intervention as suitable and promising. In addition, stakeholders made certain suggestions for improving the intervention's usability for the informal caregivers. This included improving the instructions, providing with more guidance, and considering personalization options.Conclusion: The process evaluation helped to evaluate the feasibility of the ICBT intervention for informal caregivers in Lithuania from the two perspectives: users and stakeholders. Our findings suggest that the intervention is suitable for the target population.
format	article
author	Ieva Biliunaite Evaldas Kazlauskas Robbert Sanderman Robbert Sanderman Gerhard Andersson Gerhard Andersson Gerhard Andersson
author_facet	Ieva Biliunaite Evaldas Kazlauskas Robbert Sanderman Robbert Sanderman Gerhard Andersson Gerhard Andersson Gerhard Andersson
author_sort	Ieva Biliunaite
title	Process Evaluation of Internet-Based Cognitive Behavioral Therapy Intervention for Informal Caregivers
title_short	Process Evaluation of Internet-Based Cognitive Behavioral Therapy Intervention for Informal Caregivers
title_full	Process Evaluation of Internet-Based Cognitive Behavioral Therapy Intervention for Informal Caregivers
title_fullStr	Process Evaluation of Internet-Based Cognitive Behavioral Therapy Intervention for Informal Caregivers
title_full_unstemmed	Process Evaluation of Internet-Based Cognitive Behavioral Therapy Intervention for Informal Caregivers
title_sort	process evaluation of internet-based cognitive behavioral therapy intervention for informal caregivers
publisher	Frontiers Media S.A.
publishDate	2021
url	https://doaj.org/article/0aab62addd534793a56d381dcce682a7
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Process Evaluation of Internet-Based Cognitive Behavioral Therapy Intervention for Informal Caregivers

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