Assessing Momentary Well-Being in People Living With Dementia: A Systematic Review of Observational Instruments

Optimizing the possibility to lead good lives is at the core of treatment and care for people with dementia. This may be monitored by assessing well-being and quality of life. However, cognitive impairment following dementia may complicate recall-based assessment with questionnaires, and proxy-ratin...

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Autores principales:	Kristine Gustavsen Madsø, Elisabeth Flo-Groeneboom, Nancy A. Pachana, Inger Hilde Nordhus
Formato:	article
Lenguaje:	EN
Publicado:	Frontiers Media S.A. 2021
Materias:	well-being dementia observation emotion systematic review psychometric properties Psychology BF1-990
Acceso en línea:	https://doaj.org/article/0be11950ead94905b15efe84e4afa21e
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spelling	oai:doaj.org-article:0be11950ead94905b15efe84e4afa21e2021-11-30T11:44:21ZAssessing Momentary Well-Being in People Living With Dementia: A Systematic Review of Observational Instruments1664-107810.3389/fpsyg.2021.742510https://doaj.org/article/0be11950ead94905b15efe84e4afa21e2021-11-01T00:00:00Zhttps://www.frontiersin.org/articles/10.3389/fpsyg.2021.742510/fullhttps://doaj.org/toc/1664-1078Optimizing the possibility to lead good lives is at the core of treatment and care for people with dementia. This may be monitored by assessing well-being and quality of life. However, cognitive impairment following dementia may complicate recall-based assessment with questionnaires, and proxy-ratings from family-caregivers do not correspond well to self-reports. Thus, using observational measures represents a potentially advanced option. Systematic reviews evaluating measurement properties, interpretability and feasibility of observational instruments assessing well-being in people living with dementia are lacking. Thus, this review performed systematic searches to find peer reviewed validated instruments of relevance in the databases MEDLINE, EMBASE, PsycINFO, Web of Science, CINAHL and ProQuest. Twenty-two instruments assessing well-being were included for evaluation of measurement properties based on the systematic approach of the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN). The evaluation included risk of bias on study level, and assessment of measurement properties on instrument level including content validity, construct validity, structural validity, internal consistency, measurement invariance, cross-cultural validity, measurement error and inter-rater/intra-rater/test–retest reliability and responsiveness. Additionally, the feasibility and interpretability of the measures were evaluated. No single instrument could be recommended based on existing publications. Thus, we provide general recommendations about further assessment and development of these instruments. Finally, we describe the most promising instruments and offer guidance with respect to their implementation and use in clinical and research contexts.Kristine Gustavsen MadsøKristine Gustavsen MadsøElisabeth Flo-GroeneboomNancy A. PachanaInger Hilde NordhusInger Hilde NordhusFrontiers Media S.A.articlewell-beingdementiaobservationemotionsystematic reviewpsychometric propertiesPsychologyBF1-990ENFrontiers in Psychology, Vol 12 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	well-being dementia observation emotion systematic review psychometric properties Psychology BF1-990
spellingShingle	well-being dementia observation emotion systematic review psychometric properties Psychology BF1-990 Kristine Gustavsen Madsø Kristine Gustavsen Madsø Elisabeth Flo-Groeneboom Nancy A. Pachana Inger Hilde Nordhus Inger Hilde Nordhus Assessing Momentary Well-Being in People Living With Dementia: A Systematic Review of Observational Instruments
description	Optimizing the possibility to lead good lives is at the core of treatment and care for people with dementia. This may be monitored by assessing well-being and quality of life. However, cognitive impairment following dementia may complicate recall-based assessment with questionnaires, and proxy-ratings from family-caregivers do not correspond well to self-reports. Thus, using observational measures represents a potentially advanced option. Systematic reviews evaluating measurement properties, interpretability and feasibility of observational instruments assessing well-being in people living with dementia are lacking. Thus, this review performed systematic searches to find peer reviewed validated instruments of relevance in the databases MEDLINE, EMBASE, PsycINFO, Web of Science, CINAHL and ProQuest. Twenty-two instruments assessing well-being were included for evaluation of measurement properties based on the systematic approach of the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN). The evaluation included risk of bias on study level, and assessment of measurement properties on instrument level including content validity, construct validity, structural validity, internal consistency, measurement invariance, cross-cultural validity, measurement error and inter-rater/intra-rater/test–retest reliability and responsiveness. Additionally, the feasibility and interpretability of the measures were evaluated. No single instrument could be recommended based on existing publications. Thus, we provide general recommendations about further assessment and development of these instruments. Finally, we describe the most promising instruments and offer guidance with respect to their implementation and use in clinical and research contexts.
format	article
author	Kristine Gustavsen Madsø Kristine Gustavsen Madsø Elisabeth Flo-Groeneboom Nancy A. Pachana Inger Hilde Nordhus Inger Hilde Nordhus
author_facet	Kristine Gustavsen Madsø Kristine Gustavsen Madsø Elisabeth Flo-Groeneboom Nancy A. Pachana Inger Hilde Nordhus Inger Hilde Nordhus
author_sort	Kristine Gustavsen Madsø
title	Assessing Momentary Well-Being in People Living With Dementia: A Systematic Review of Observational Instruments
title_short	Assessing Momentary Well-Being in People Living With Dementia: A Systematic Review of Observational Instruments
title_full	Assessing Momentary Well-Being in People Living With Dementia: A Systematic Review of Observational Instruments
title_fullStr	Assessing Momentary Well-Being in People Living With Dementia: A Systematic Review of Observational Instruments
title_full_unstemmed	Assessing Momentary Well-Being in People Living With Dementia: A Systematic Review of Observational Instruments
title_sort	assessing momentary well-being in people living with dementia: a systematic review of observational instruments
publisher	Frontiers Media S.A.
publishDate	2021
url	https://doaj.org/article/0be11950ead94905b15efe84e4afa21e
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Assessing Momentary Well-Being in People Living With Dementia: A Systematic Review of Observational Instruments

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