Original parts: Aging and reckoning with cystic fibrosis related kidney disease

Kidney disease increasingly impacts people with cystic fibrosis (CF) as adult patients continue to survive longer. Yet the literature on CF related kidney disease focuses little on amplifying the voices of people aging with the condition. This article presents perspectives on CF related kidney disea...

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Autor principal:	Alexandra Nowakowski
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2018
Materias:	cystic fibrosis kidney disease aging illness management patient experience Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/0c4d2d188e2a488bb4def4b0eae9fc31
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spelling	oai:doaj.org-article:0c4d2d188e2a488bb4def4b0eae9fc312021-11-15T04:25:45ZOriginal parts: Aging and reckoning with cystic fibrosis related kidney disease2372-0247https://doaj.org/article/0c4d2d188e2a488bb4def4b0eae9fc312018-04-01T00:00:00Zhttps://pxjournal.org/journal/vol5/iss1/3https://doaj.org/toc/2372-0247Kidney disease increasingly impacts people with cystic fibrosis (CF) as adult patients continue to survive longer. Yet the literature on CF related kidney disease focuses little on amplifying the voices of people aging with the condition. This article presents perspectives on CF related kidney disease from a medical sociologist who is themselves managing these issues. It (1) gives an overview of relevant literature and trends in epidemiological data on kidney disease and CF, (2) details the author’s own process of adjusting to progressive changes in renal function, and (3) outlines opportunities for clinicians to make a positive impact for patients by centering their voices.Alexandra NowakowskiThe Beryl Institutearticlecystic fibrosiskidney diseaseagingillness managementpatient experienceMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2018)
institution	DOAJ
collection	DOAJ
language	EN
topic	cystic fibrosis kidney disease aging illness management patient experience Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	cystic fibrosis kidney disease aging illness management patient experience Medicine (General) R5-920 Public aspects of medicine RA1-1270 Alexandra Nowakowski Original parts: Aging and reckoning with cystic fibrosis related kidney disease
description	Kidney disease increasingly impacts people with cystic fibrosis (CF) as adult patients continue to survive longer. Yet the literature on CF related kidney disease focuses little on amplifying the voices of people aging with the condition. This article presents perspectives on CF related kidney disease from a medical sociologist who is themselves managing these issues. It (1) gives an overview of relevant literature and trends in epidemiological data on kidney disease and CF, (2) details the author’s own process of adjusting to progressive changes in renal function, and (3) outlines opportunities for clinicians to make a positive impact for patients by centering their voices.
format	article
author	Alexandra Nowakowski
author_facet	Alexandra Nowakowski
author_sort	Alexandra Nowakowski
title	Original parts: Aging and reckoning with cystic fibrosis related kidney disease
title_short	Original parts: Aging and reckoning with cystic fibrosis related kidney disease
title_full	Original parts: Aging and reckoning with cystic fibrosis related kidney disease
title_fullStr	Original parts: Aging and reckoning with cystic fibrosis related kidney disease
title_full_unstemmed	Original parts: Aging and reckoning with cystic fibrosis related kidney disease
title_sort	original parts: aging and reckoning with cystic fibrosis related kidney disease
publisher	The Beryl Institute
publishDate	2018
url	https://doaj.org/article/0c4d2d188e2a488bb4def4b0eae9fc31
work_keys_str_mv	AT alexandranowakowski originalpartsagingandreckoningwithcysticfibrosisrelatedkidneydisease
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Original parts: Aging and reckoning with cystic fibrosis related kidney disease

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