Cadre éthique et innovation méthodologique : chercher avec des personnes en situation de maladie auto-immune rare
The issues related to chronic disease involve the implementation of comprehensive innovative research to update and report on the sensitive experience of patients. The research concerned by this contribution, included in the perspective of biographical research in education, aimed in particular, by...
Guardado en:
| Autor principal: | |
|---|---|
| Formato: | article |
| Lenguaje: | FR |
| Publicado: |
Université de Provence
2020
|
| Materias: | |
| Acceso en línea: | https://doaj.org/article/0cc3b55570b445a2ba5637ca1b1e869f |
| Etiquetas: |
Agregar Etiqueta
Sin Etiquetas, Sea el primero en etiquetar este registro!
|
| id |
oai:doaj.org-article:0cc3b55570b445a2ba5637ca1b1e869f |
|---|---|
| record_format |
dspace |
| spelling |
oai:doaj.org-article:0cc3b55570b445a2ba5637ca1b1e869f2021-12-02T11:24:02ZCadre éthique et innovation méthodologique : chercher avec des personnes en situation de maladie auto-immune rare1635-40791775-433X10.4000/questionsvives.5029https://doaj.org/article/0cc3b55570b445a2ba5637ca1b1e869f2020-12-01T00:00:00Zhttp://journals.openedition.org/questionsvives/5029https://doaj.org/toc/1635-4079https://doaj.org/toc/1775-433XThe issues related to chronic disease involve the implementation of comprehensive innovative research to update and report on the sensitive experience of patients. The research concerned by this contribution, included in the perspective of biographical research in education, aimed in particular, by relying on their subjectivity (Thievenaz J., & Tourette-Turgis, C., 2015), to identify and characterize the handicaps and the resources of patients with rare autoimmune systemic diseases. The aim was to improve their care and broaden the offerings in terms of therapeutic education. It was based on the narration of the experiences of patients, through a collaborative e-platform considered as favorable to the sharing and co-construction of knowledge. The methodological choices and their evolutions will be reported over the course of the research in an attempt to move towards a sensitive and respectful understanding and restitution of the participants’ experience.Anne DizerboUniversité de Provencearticlechronic diseasemethodologypower to actco-construction of knowledgeEducationLFRQuestions Vives, Vol 34 (2020) |
| institution |
DOAJ |
| collection |
DOAJ |
| language |
FR |
| topic |
chronic disease methodology power to act co-construction of knowledge Education L |
| spellingShingle |
chronic disease methodology power to act co-construction of knowledge Education L Anne Dizerbo Cadre éthique et innovation méthodologique : chercher avec des personnes en situation de maladie auto-immune rare |
| description |
The issues related to chronic disease involve the implementation of comprehensive innovative research to update and report on the sensitive experience of patients. The research concerned by this contribution, included in the perspective of biographical research in education, aimed in particular, by relying on their subjectivity (Thievenaz J., & Tourette-Turgis, C., 2015), to identify and characterize the handicaps and the resources of patients with rare autoimmune systemic diseases. The aim was to improve their care and broaden the offerings in terms of therapeutic education. It was based on the narration of the experiences of patients, through a collaborative e-platform considered as favorable to the sharing and co-construction of knowledge. The methodological choices and their evolutions will be reported over the course of the research in an attempt to move towards a sensitive and respectful understanding and restitution of the participants’ experience. |
| format |
article |
| author |
Anne Dizerbo |
| author_facet |
Anne Dizerbo |
| author_sort |
Anne Dizerbo |
| title |
Cadre éthique et innovation méthodologique : chercher avec des personnes en situation de maladie auto-immune rare |
| title_short |
Cadre éthique et innovation méthodologique : chercher avec des personnes en situation de maladie auto-immune rare |
| title_full |
Cadre éthique et innovation méthodologique : chercher avec des personnes en situation de maladie auto-immune rare |
| title_fullStr |
Cadre éthique et innovation méthodologique : chercher avec des personnes en situation de maladie auto-immune rare |
| title_full_unstemmed |
Cadre éthique et innovation méthodologique : chercher avec des personnes en situation de maladie auto-immune rare |
| title_sort |
cadre éthique et innovation méthodologique : chercher avec des personnes en situation de maladie auto-immune rare |
| publisher |
Université de Provence |
| publishDate |
2020 |
| url |
https://doaj.org/article/0cc3b55570b445a2ba5637ca1b1e869f |
| work_keys_str_mv |
AT annedizerbo cadreethiqueetinnovationmethodologiquechercheravecdespersonnesensituationdemaladieautoimmunerare |
| _version_ |
1718395921110138880 |