Music therapy and Sanfilippo syndrome: an analysis of psychological and physiological variables of three case studies

Abstract Introduction Mucopolysaccharidosis type III (MPS III) or Sanfilippo syndrome is a neurodegenerative disease caused by the accumulation of mucopolysaccharides in the body. As the symptoms are wide ranging, it is a challenge to provide a diagnosis and psychological treatment for affected chil...

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Autores principales:	P. Pérez-Núñez, E. Lázaro, I. Amayra, J. F. López-Paz, P. Caballero, O. Martínez, M. Pérez, S. Berrocoso, M. Al-Rashaida, M. García, A. A. Rodríguez, P. M. Luna
Formato:	article
Lenguaje:	EN
Publicado:	BMC 2021
Materias:	Sanfilippo Music therapy Psychological and physiological variables Medicine R
Acceso en línea:	https://doaj.org/article/0d7ac5a060b34b628be331fd8b46ad13
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spelling	oai:doaj.org-article:0d7ac5a060b34b628be331fd8b46ad132021-11-21T12:26:04ZMusic therapy and Sanfilippo syndrome: an analysis of psychological and physiological variables of three case studies10.1186/s13023-021-02123-61750-1172https://doaj.org/article/0d7ac5a060b34b628be331fd8b46ad132021-11-01T00:00:00Zhttps://doi.org/10.1186/s13023-021-02123-6https://doaj.org/toc/1750-1172Abstract Introduction Mucopolysaccharidosis type III (MPS III) or Sanfilippo syndrome is a neurodegenerative disease caused by the accumulation of mucopolysaccharides in the body. As the symptoms are wide ranging, it is a challenge to provide a diagnosis and psychological treatment for affected children. Method The main objective of this study was to describe a form of music therapy treatment applied to three children diagnosed with MPS III. The psychological variables were evaluated by an ad hoc observation recording template, and the physiological variables were measured with a digital meter before and after each session. The perception of the parents was also considered through a semi-structured interview. Results An improvement in the psychological variables was shown in all cases. Changes in the physiological variables were also noted, although they varied according to each child. The parents report some benefit of music therapy and they share difficulty in assessing the extent of benefits of the music therapy. Discussion Findings indicate that music therapy can be a useful form of treatment with multiple benefits for children with conditions such as MPS III or similar conditions. However, further research is needed in this area and in the development of specific ways of evaluating music therapy.P. Pérez-NúñezE. LázaroI. AmayraJ. F. López-PazP. CaballeroO. MartínezM. PérezS. BerrocosoM. Al-RashaidaM. GarcíaA. A. RodríguezP. M. LunaBMCarticleSanfilippoMusic therapyPsychological and physiological variablesMedicineRENOrphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-14 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Sanfilippo Music therapy Psychological and physiological variables Medicine R
spellingShingle	Sanfilippo Music therapy Psychological and physiological variables Medicine R P. Pérez-Núñez E. Lázaro I. Amayra J. F. López-Paz P. Caballero O. Martínez M. Pérez S. Berrocoso M. Al-Rashaida M. García A. A. Rodríguez P. M. Luna Music therapy and Sanfilippo syndrome: an analysis of psychological and physiological variables of three case studies
description	Abstract Introduction Mucopolysaccharidosis type III (MPS III) or Sanfilippo syndrome is a neurodegenerative disease caused by the accumulation of mucopolysaccharides in the body. As the symptoms are wide ranging, it is a challenge to provide a diagnosis and psychological treatment for affected children. Method The main objective of this study was to describe a form of music therapy treatment applied to three children diagnosed with MPS III. The psychological variables were evaluated by an ad hoc observation recording template, and the physiological variables were measured with a digital meter before and after each session. The perception of the parents was also considered through a semi-structured interview. Results An improvement in the psychological variables was shown in all cases. Changes in the physiological variables were also noted, although they varied according to each child. The parents report some benefit of music therapy and they share difficulty in assessing the extent of benefits of the music therapy. Discussion Findings indicate that music therapy can be a useful form of treatment with multiple benefits for children with conditions such as MPS III or similar conditions. However, further research is needed in this area and in the development of specific ways of evaluating music therapy.
format	article
author	P. Pérez-Núñez E. Lázaro I. Amayra J. F. López-Paz P. Caballero O. Martínez M. Pérez S. Berrocoso M. Al-Rashaida M. García A. A. Rodríguez P. M. Luna
author_facet	P. Pérez-Núñez E. Lázaro I. Amayra J. F. López-Paz P. Caballero O. Martínez M. Pérez S. Berrocoso M. Al-Rashaida M. García A. A. Rodríguez P. M. Luna
author_sort	P. Pérez-Núñez
title	Music therapy and Sanfilippo syndrome: an analysis of psychological and physiological variables of three case studies
title_short	Music therapy and Sanfilippo syndrome: an analysis of psychological and physiological variables of three case studies
title_full	Music therapy and Sanfilippo syndrome: an analysis of psychological and physiological variables of three case studies
title_fullStr	Music therapy and Sanfilippo syndrome: an analysis of psychological and physiological variables of three case studies
title_full_unstemmed	Music therapy and Sanfilippo syndrome: an analysis of psychological and physiological variables of three case studies
title_sort	music therapy and sanfilippo syndrome: an analysis of psychological and physiological variables of three case studies
publisher	BMC
publishDate	2021
url	https://doaj.org/article/0d7ac5a060b34b628be331fd8b46ad13
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Music therapy and Sanfilippo syndrome: an analysis of psychological and physiological variables of three case studies

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