Using experience-based design to understand the patient and caregiver experience with delirium

Hospital-acquired delirium negatively affects clinical outcomes and the care experience for patients and family caregivers. Following the qualitative methods of experience-based design, we completed observations of hospital units and interviews of patients, caregivers (including family members and...

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Autores principales:	Lauren Russ, Jennifer Phillips, Val Ferris, Amy London, Logan Kendall, Craig Blackmore
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2019
Materias:	patient experience delirium experience-based design experience-based co-design caregiver roles Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/0e0b967b8b99492b8eaca2bd65a56cc6
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spelling	oai:doaj.org-article:0e0b967b8b99492b8eaca2bd65a56cc62021-11-15T04:28:38ZUsing experience-based design to understand the patient and caregiver experience with delirium2372-0247https://doaj.org/article/0e0b967b8b99492b8eaca2bd65a56cc62019-04-01T00:00:00Zhttps://pxjournal.org/journal/vol6/iss1/7https://doaj.org/toc/2372-0247Hospital-acquired delirium negatively affects clinical outcomes and the care experience for patients and family caregivers. Following the qualitative methods of experience-based design, we completed observations of hospital units and interviews of patients, caregivers (including family members and other companions), and hospital nurses and other staff regarding their experiences with delirium. In addition, we administered an experience-based design questionnaire to another 130 subjects from the same groups. Key findings included: there is a need for preparation of the patients and family caregivers for the possibility of delirium (particularly before surgery), and patients and caregivers lack understanding of delirium and its potential prolonged aftereffects. We identified that caregivers may both contribute and detract from delirium care as they: (1) often identify delirium early; (2) are invaluable for supporting patients during re-orientation after delirium episodes; (3) frequently lack the preparation and skills for adequate delirium detection and response; (4) may not be present at critical times; (5) can be challenging for the delirium management team, and (6) are frequently discussed as the person who best understands the patients’ baseline cognitive state and behavior. Experience-based design is an innovative framework to increase our qualitative understanding of the patient and caregiver experience during and following episodes of hospital acquired delirium.Lauren RussJennifer PhillipsVal FerrisAmy LondonLogan KendallCraig BlackmoreThe Beryl Institutearticlepatient experiencedeliriumexperience-based designexperience-based co-designcaregiver rolesMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2019)
institution	DOAJ
collection	DOAJ
language	EN
topic	patient experience delirium experience-based design experience-based co-design caregiver roles Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	patient experience delirium experience-based design experience-based co-design caregiver roles Medicine (General) R5-920 Public aspects of medicine RA1-1270 Lauren Russ Jennifer Phillips Val Ferris Amy London Logan Kendall Craig Blackmore Using experience-based design to understand the patient and caregiver experience with delirium
description	Hospital-acquired delirium negatively affects clinical outcomes and the care experience for patients and family caregivers. Following the qualitative methods of experience-based design, we completed observations of hospital units and interviews of patients, caregivers (including family members and other companions), and hospital nurses and other staff regarding their experiences with delirium. In addition, we administered an experience-based design questionnaire to another 130 subjects from the same groups. Key findings included: there is a need for preparation of the patients and family caregivers for the possibility of delirium (particularly before surgery), and patients and caregivers lack understanding of delirium and its potential prolonged aftereffects. We identified that caregivers may both contribute and detract from delirium care as they: (1) often identify delirium early; (2) are invaluable for supporting patients during re-orientation after delirium episodes; (3) frequently lack the preparation and skills for adequate delirium detection and response; (4) may not be present at critical times; (5) can be challenging for the delirium management team, and (6) are frequently discussed as the person who best understands the patients’ baseline cognitive state and behavior. Experience-based design is an innovative framework to increase our qualitative understanding of the patient and caregiver experience during and following episodes of hospital acquired delirium.
format	article
author	Lauren Russ Jennifer Phillips Val Ferris Amy London Logan Kendall Craig Blackmore
author_facet	Lauren Russ Jennifer Phillips Val Ferris Amy London Logan Kendall Craig Blackmore
author_sort	Lauren Russ
title	Using experience-based design to understand the patient and caregiver experience with delirium
title_short	Using experience-based design to understand the patient and caregiver experience with delirium
title_full	Using experience-based design to understand the patient and caregiver experience with delirium
title_fullStr	Using experience-based design to understand the patient and caregiver experience with delirium
title_full_unstemmed	Using experience-based design to understand the patient and caregiver experience with delirium
title_sort	using experience-based design to understand the patient and caregiver experience with delirium
publisher	The Beryl Institute
publishDate	2019
url	https://doaj.org/article/0e0b967b8b99492b8eaca2bd65a56cc6
work_keys_str_mv	AT laurenruss usingexperiencebaseddesigntounderstandthepatientandcaregiverexperiencewithdelirium AT jenniferphillips usingexperiencebaseddesigntounderstandthepatientandcaregiverexperiencewithdelirium AT valferris usingexperiencebaseddesigntounderstandthepatientandcaregiverexperiencewithdelirium AT amylondon usingexperiencebaseddesigntounderstandthepatientandcaregiverexperiencewithdelirium AT logankendall usingexperiencebaseddesigntounderstandthepatientandcaregiverexperiencewithdelirium AT craigblackmore usingexperiencebaseddesigntounderstandthepatientandcaregiverexperiencewithdelirium
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Using experience-based design to understand the patient and caregiver experience with delirium

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