Advance directives and end-of-life care preferences among adults in Wuhan, China: a cross-sectional study

Abstract Background Little is known about advance directives (ADs) and end-of-life (EOL) care preferences among the general population in Mainland China. This study aimed to describe knowledge and attitudes of ADs and EOL care preferences, and to explore factors related to preferences for ADs among...

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Autores principales:	Ping Ni, Bei Wu, Huijing Lin, Jing Mao
Formato:	article
Lenguaje:	EN
Publicado:	BMC 2021
Materias:	End-of-life Advance directives Chinese Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/10b7ea39df6a46d89e369aaef06388bb
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spelling	oai:doaj.org-article:10b7ea39df6a46d89e369aaef06388bb2021-11-14T12:14:42ZAdvance directives and end-of-life care preferences among adults in Wuhan, China: a cross-sectional study10.1186/s12889-021-12046-31471-2458https://doaj.org/article/10b7ea39df6a46d89e369aaef06388bb2021-11-01T00:00:00Zhttps://doi.org/10.1186/s12889-021-12046-3https://doaj.org/toc/1471-2458Abstract Background Little is known about advance directives (ADs) and end-of-life (EOL) care preferences among the general population in Mainland China. This study aimed to describe knowledge and attitudes of ADs and EOL care preferences, and to explore factors related to preferences for ADs among Chinese adults. Methods The sample included 1114 adult participants in Wuhan, Mainland China. A brief message including the link to the online survey was sent to local residents who were registered at household registration management centers in Wuhan. The questionnaire included information regarding demographics, self-rated health, views on ADs and EOL care. Bivariate analyses and binary forward logistic regression were conducted to examine factors related to ADs preferences of Chinese adults. Results The average age of the sample was 48.0 years and more than half of the sample was female. 81.8% had never heard of ADs, but 86.6% indicated that they might create one after learning what ADs were. 58% would choose hospice care if they were terminally ill whereas 48.7% of the participants wanted to die at home. 92.3% would want to know their diagnosis and prognosis if ill; however, if their family members were diagnosed with an incurable disease, 50.5% would not tell their ill family member the actual diagnosis and prognosis. Those who had heard of ADs (OR = 1.567, p < 0.001), earned an associate’s degree (OR = 2.448, p < 0.001) or a bachelor’s degree or higher (OR = 2.382, p < 0.001), and self-rated their health as very poor/poor (OR = 1.002, p = 0.001) were more likely to be willing to make an AD than their counterparts. However, those who were single (OR = 0.149, p < 0.001) or widowed /divorced/separated (OR = 0.405, p = 0.001) were less likely to be willing to make an AD than the married ones. Conclusions Chinese adults showed positive attitudes towards ADs. There is an urgent need to promote more educational initiatives and raise awareness on the importance of ADs. It is important to develop more policies and legislation about ADs to improve the quality of EOL care in Mainland China.Ping NiBei WuHuijing LinJing MaoBMCarticleEnd-of-lifeAdvance directivesChinesePublic aspects of medicineRA1-1270ENBMC Public Health, Vol 21, Iss 1, Pp 1-9 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	End-of-life Advance directives Chinese Public aspects of medicine RA1-1270
spellingShingle	End-of-life Advance directives Chinese Public aspects of medicine RA1-1270 Ping Ni Bei Wu Huijing Lin Jing Mao Advance directives and end-of-life care preferences among adults in Wuhan, China: a cross-sectional study
description	Abstract Background Little is known about advance directives (ADs) and end-of-life (EOL) care preferences among the general population in Mainland China. This study aimed to describe knowledge and attitudes of ADs and EOL care preferences, and to explore factors related to preferences for ADs among Chinese adults. Methods The sample included 1114 adult participants in Wuhan, Mainland China. A brief message including the link to the online survey was sent to local residents who were registered at household registration management centers in Wuhan. The questionnaire included information regarding demographics, self-rated health, views on ADs and EOL care. Bivariate analyses and binary forward logistic regression were conducted to examine factors related to ADs preferences of Chinese adults. Results The average age of the sample was 48.0 years and more than half of the sample was female. 81.8% had never heard of ADs, but 86.6% indicated that they might create one after learning what ADs were. 58% would choose hospice care if they were terminally ill whereas 48.7% of the participants wanted to die at home. 92.3% would want to know their diagnosis and prognosis if ill; however, if their family members were diagnosed with an incurable disease, 50.5% would not tell their ill family member the actual diagnosis and prognosis. Those who had heard of ADs (OR = 1.567, p < 0.001), earned an associate’s degree (OR = 2.448, p < 0.001) or a bachelor’s degree or higher (OR = 2.382, p < 0.001), and self-rated their health as very poor/poor (OR = 1.002, p = 0.001) were more likely to be willing to make an AD than their counterparts. However, those who were single (OR = 0.149, p < 0.001) or widowed /divorced/separated (OR = 0.405, p = 0.001) were less likely to be willing to make an AD than the married ones. Conclusions Chinese adults showed positive attitudes towards ADs. There is an urgent need to promote more educational initiatives and raise awareness on the importance of ADs. It is important to develop more policies and legislation about ADs to improve the quality of EOL care in Mainland China.
format	article
author	Ping Ni Bei Wu Huijing Lin Jing Mao
author_facet	Ping Ni Bei Wu Huijing Lin Jing Mao
author_sort	Ping Ni
title	Advance directives and end-of-life care preferences among adults in Wuhan, China: a cross-sectional study
title_short	Advance directives and end-of-life care preferences among adults in Wuhan, China: a cross-sectional study
title_full	Advance directives and end-of-life care preferences among adults in Wuhan, China: a cross-sectional study
title_fullStr	Advance directives and end-of-life care preferences among adults in Wuhan, China: a cross-sectional study
title_full_unstemmed	Advance directives and end-of-life care preferences among adults in Wuhan, China: a cross-sectional study
title_sort	advance directives and end-of-life care preferences among adults in wuhan, china: a cross-sectional study
publisher	BMC
publishDate	2021
url	https://doaj.org/article/10b7ea39df6a46d89e369aaef06388bb
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Advance directives and end-of-life care preferences among adults in Wuhan, China: a cross-sectional study

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