Assessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the MinD project in Europe [version 3; peer review: 2 approved]

Background: Generalisation of findings is an important aspect of research and essential for evidence-based practice. While generalisation is common in quantitative research, there is a lack of generalisability in qualitative research. This paper presents the experience and challenges faced by the De...

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Autores principales:	Jennifer N.W. Lim, Kristina Niedderer, Isabelle Tournier, Rosa Almeida, Dew Harrison, Vjera Holthoff-Detto, Geke Ludden, Thomas van Rompay, Mascha van der Voort, Aleksandra Galansinska, Tina Smith, Raquel L. Lasada, Yolanda A. Bueno, Diana Druschke, Berit Ziebuhr, Michele Zanasi
Formato:	article
Lenguaje:	EN
Publicado:	F1000 Research Limited 2021
Materias:	Science Q Social Sciences H
Acceso en línea:	https://doaj.org/article/14288e6b94014038999503689fb20818
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spelling	oai:doaj.org-article:14288e6b94014038999503689fb208182021-11-15T15:26:28ZAssessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the MinD project in Europe [version 3; peer review: 2 approved]2732-512110.12688/openreseurope.13700.3https://doaj.org/article/14288e6b94014038999503689fb208182021-11-01T00:00:00Zhttps://open-research-europe.ec.europa.eu/articles/1-64/v3https://doaj.org/toc/2732-5121Background: Generalisation of findings is an important aspect of research and essential for evidence-based practice. While generalisation is common in quantitative research, there is a lack of generalisability in qualitative research. This paper presents the experience and challenges faced by the Designing for People with Dementia (MinD) project in meeting the requirements to strengthen the generalisation of findings on the lived experience of people living with dementia and their engagement to co-create designs to empower their everyday living. Methods: Polit and Beck (2010)’s strategies to generalise qualitative findings were applied: (1) replication in sampling; (2) replication of studies; (3) meta-synthesis of findings; (4) reflexivity and conceptualization; (5) immersion with the data; and (6) thick description. Results: While it is possible to increase the generabilisabilty of qualitative evidence through the replication of the sampling to attain a large, heterogeneous sample in different and multiple contexts and environments; implementation of sound and robust research; conducting in-depth analysis and interpretation collaboratively for emergent themes; and meeting the thick description requirement, there are challenges that the project team faced in implementing some of the Polit and Beck’s strategies because of the condition, namely dementia, that our participants are having. Other challenges faced were: the language and cultural diversity in the team; diverse work and organisational procedures; and the inter-disciplinary differences relating to the methods of enquiry, approaches and techniques to conduct research. These challenges will need to be identified and addressed at the start of the project with a strong leadership to ensure a seamless journey to complete the project successfully. Trust between the researchers and participants, and time to build this trust are critical to recruitment and participation in the study; these factors are of utmost important in research involving participants with condition such as dementia.Jennifer N.W. LimKristina NieddererIsabelle TournierRosa AlmeidaDew HarrisonVjera Holthoff-DettoGeke LuddenThomas van RompayMascha van der VoortAleksandra GalansinskaTina SmithRaquel L. LasadaYolanda A. BuenoDiana DruschkeBerit ZiebuhrMichele ZanasiF1000 Research LimitedarticleScienceQSocial SciencesHENOpen Research Europe, Vol 1 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Science Q Social Sciences H
spellingShingle	Science Q Social Sciences H Jennifer N.W. Lim Kristina Niedderer Isabelle Tournier Rosa Almeida Dew Harrison Vjera Holthoff-Detto Geke Ludden Thomas van Rompay Mascha van der Voort Aleksandra Galansinska Tina Smith Raquel L. Lasada Yolanda A. Bueno Diana Druschke Berit Ziebuhr Michele Zanasi Assessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the MinD project in Europe [version 3; peer review: 2 approved]
description	Background: Generalisation of findings is an important aspect of research and essential for evidence-based practice. While generalisation is common in quantitative research, there is a lack of generalisability in qualitative research. This paper presents the experience and challenges faced by the Designing for People with Dementia (MinD) project in meeting the requirements to strengthen the generalisation of findings on the lived experience of people living with dementia and their engagement to co-create designs to empower their everyday living. Methods: Polit and Beck (2010)’s strategies to generalise qualitative findings were applied: (1) replication in sampling; (2) replication of studies; (3) meta-synthesis of findings; (4) reflexivity and conceptualization; (5) immersion with the data; and (6) thick description. Results: While it is possible to increase the generabilisabilty of qualitative evidence through the replication of the sampling to attain a large, heterogeneous sample in different and multiple contexts and environments; implementation of sound and robust research; conducting in-depth analysis and interpretation collaboratively for emergent themes; and meeting the thick description requirement, there are challenges that the project team faced in implementing some of the Polit and Beck’s strategies because of the condition, namely dementia, that our participants are having. Other challenges faced were: the language and cultural diversity in the team; diverse work and organisational procedures; and the inter-disciplinary differences relating to the methods of enquiry, approaches and techniques to conduct research. These challenges will need to be identified and addressed at the start of the project with a strong leadership to ensure a seamless journey to complete the project successfully. Trust between the researchers and participants, and time to build this trust are critical to recruitment and participation in the study; these factors are of utmost important in research involving participants with condition such as dementia.
format	article
author	Jennifer N.W. Lim Kristina Niedderer Isabelle Tournier Rosa Almeida Dew Harrison Vjera Holthoff-Detto Geke Ludden Thomas van Rompay Mascha van der Voort Aleksandra Galansinska Tina Smith Raquel L. Lasada Yolanda A. Bueno Diana Druschke Berit Ziebuhr Michele Zanasi
author_facet	Jennifer N.W. Lim Kristina Niedderer Isabelle Tournier Rosa Almeida Dew Harrison Vjera Holthoff-Detto Geke Ludden Thomas van Rompay Mascha van der Voort Aleksandra Galansinska Tina Smith Raquel L. Lasada Yolanda A. Bueno Diana Druschke Berit Ziebuhr Michele Zanasi
author_sort	Jennifer N.W. Lim
title	Assessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the MinD project in Europe [version 3; peer review: 2 approved]
title_short	Assessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the MinD project in Europe [version 3; peer review: 2 approved]
title_full	Assessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the MinD project in Europe [version 3; peer review: 2 approved]
title_fullStr	Assessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the MinD project in Europe [version 3; peer review: 2 approved]
title_full_unstemmed	Assessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the MinD project in Europe [version 3; peer review: 2 approved]
title_sort	assessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the mind project in europe [version 3; peer review: 2 approved]
publisher	F1000 Research Limited
publishDate	2021
url	https://doaj.org/article/14288e6b94014038999503689fb20818
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Assessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the MinD project in Europe [version 3; peer review: 2 approved]

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