Care pathways for dementia: current perspectives

Kritika Samsi, Jill ManthorpeSocial Care Workforce Research Unit, King’s College London, London, UKAbstract: Uncertainty appears to typify the experience of living with dementia. With an uncertain illness trajectory and unpredictable levels of deterioration and stability in symptoms, peopl...

Descripción completa

Guardado en:

Detalles Bibliográficos
Autores principales:	Samsi K, Manthorpe J
Formato:	article
Lenguaje:	EN
Publicado:	Dove Medical Press 2014
Materias:	dementia care pathways diagnosis assessment Geriatrics RC952-954.6
Acceso en línea:	https://doaj.org/article/15f8a705803b4feeb6eda1cdd524237f
Etiquetas:	Agregar Etiqueta Sin Etiquetas, Sea el primero en etiquetar este registro!

id	oai:doaj.org-article:15f8a705803b4feeb6eda1cdd524237f
record_format	dspace
spelling	oai:doaj.org-article:15f8a705803b4feeb6eda1cdd524237f2021-12-02T04:18:51ZCare pathways for dementia: current perspectives1178-1998https://doaj.org/article/15f8a705803b4feeb6eda1cdd524237f2014-11-01T00:00:00Zhttps://www.dovepress.com/care-pathways-for-dementia-current-perspectives-peer-reviewed-article-CIAhttps://doaj.org/toc/1178-1998Kritika Samsi, Jill ManthorpeSocial Care Workforce Research Unit, King’s College London, London, UKAbstract: Uncertainty appears to typify the experience of living with dementia. With an uncertain illness trajectory and unpredictable levels of deterioration and stability in symptoms, people with a diagnosis of dementia may live with uncertainty and anxiety and find it hard to make plans or decisions for their future. People with memory problems and caregivers seeking a diagnosis of dementia may also potentially find themselves navigating a labyrinth-like maze of services, practitioners, assessments, and memory tests, with limited understanding of test scores and little information about what support is available. In this context of uncertainty, the apparent clarity and certainty of a “dementia care pathway” may be attractive. However, the term “dementia care pathway” has multiple and overlapping meanings, which can potentially give rise to further confusion if these are ill-defined or a false consensus is presumed. This review distinguishes four meanings: 1) a mechanism for the management and containment of uncertainty and confusion, useful for the professional as well as the person with dementia; 2) a manual for sequencing care activities; 3) a guide to consumers, indicating eligibility for care activities, or a guide to self-management for dementia dyads, indicating the appropriateness of care activities; and 4) a manual for “walking with” the person. Examples of these approaches are presented from UK dementia services with illustrations of existing care pathways and associated time points, specifically focusing on: 1) early symptom identification and first service encounters, 2) assessment process, 3) diagnostic disclosure, 4) postdiagnostic support, and 5) appropriate interventions. We review the evidence around these themes, as well as discuss service pathways and referral routes used by some services in England and internationally. We conclude that the attraction of the term “care pathway” is seductive, but caution is needed in taking shared understandings for granted.Keywords: dementia, care pathways, diagnosis, assessmentSamsi KManthorpe JDove Medical Pressarticledementiacare pathwaysdiagnosisassessmentGeriatricsRC952-954.6ENClinical Interventions in Aging, Vol Volume 9, Pp 2055-2063 (2014)
institution	DOAJ
collection	DOAJ
language	EN
topic	dementia care pathways diagnosis assessment Geriatrics RC952-954.6
spellingShingle	dementia care pathways diagnosis assessment Geriatrics RC952-954.6 Samsi K Manthorpe J Care pathways for dementia: current perspectives
description	Kritika Samsi, Jill ManthorpeSocial Care Workforce Research Unit, King’s College London, London, UKAbstract: Uncertainty appears to typify the experience of living with dementia. With an uncertain illness trajectory and unpredictable levels of deterioration and stability in symptoms, people with a diagnosis of dementia may live with uncertainty and anxiety and find it hard to make plans or decisions for their future. People with memory problems and caregivers seeking a diagnosis of dementia may also potentially find themselves navigating a labyrinth-like maze of services, practitioners, assessments, and memory tests, with limited understanding of test scores and little information about what support is available. In this context of uncertainty, the apparent clarity and certainty of a “dementia care pathway” may be attractive. However, the term “dementia care pathway” has multiple and overlapping meanings, which can potentially give rise to further confusion if these are ill-defined or a false consensus is presumed. This review distinguishes four meanings: 1) a mechanism for the management and containment of uncertainty and confusion, useful for the professional as well as the person with dementia; 2) a manual for sequencing care activities; 3) a guide to consumers, indicating eligibility for care activities, or a guide to self-management for dementia dyads, indicating the appropriateness of care activities; and 4) a manual for “walking with” the person. Examples of these approaches are presented from UK dementia services with illustrations of existing care pathways and associated time points, specifically focusing on: 1) early symptom identification and first service encounters, 2) assessment process, 3) diagnostic disclosure, 4) postdiagnostic support, and 5) appropriate interventions. We review the evidence around these themes, as well as discuss service pathways and referral routes used by some services in England and internationally. We conclude that the attraction of the term “care pathway” is seductive, but caution is needed in taking shared understandings for granted.Keywords: dementia, care pathways, diagnosis, assessment
format	article
author	Samsi K Manthorpe J
author_facet	Samsi K Manthorpe J
author_sort	Samsi K
title	Care pathways for dementia: current perspectives
title_short	Care pathways for dementia: current perspectives
title_full	Care pathways for dementia: current perspectives
title_fullStr	Care pathways for dementia: current perspectives
title_full_unstemmed	Care pathways for dementia: current perspectives
title_sort	care pathways for dementia: current perspectives
publisher	Dove Medical Press
publishDate	2014
url	https://doaj.org/article/15f8a705803b4feeb6eda1cdd524237f
work_keys_str_mv	AT samsik carepathwaysfordementiacurrentperspectives AT manthorpej carepathwaysfordementiacurrentperspectives
_version_	1718401294958329856

Care pathways for dementia: current perspectives

Ejemplares similares