Patients’ priorities and expectations on an EU registry for rare bone and mineral conditions

Abstract Background Understanding the natural history of rare bone and mineral conditions is essential for improving clinical practice and the development of new diagnostics and therapeutics. Recruitment and long-term participation in registries are key challenges for researchers. Methods To underst...

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Détails bibliographiques
Auteurs principaux: Muhammad Kassim Javaid, Marina Mordenti, Manila Boarini, Luca Sangiorgi, ERN BOND Working Group, Ingunn Westerheim, Inês Alves, Rebecca Tvedt Skarberg, Natasha M. Appelman-Dijkstra, Corinna Grasemann
Format: article
Langue:EN
Publié: BMC 2021
Sujets:
R
Accès en ligne:https://doaj.org/article/164bf1ebabe745438f86281f9fc1a1cd
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