The Online Life Story Book: A randomized controlled trial on the effects of a digital reminiscence intervention for people with (very) mild dementia and their informal caregivers.
This paper describes a randomized controlled trial on the Online Life Story Book (OLSB), a digital reminiscence intervention for people with (very) mild dementia living at home. The aim of the study was to investigate the effectiveness of the OLSB on (i) neuropsychiatric symptoms (NPS) in persons wi...
Guardado en:
Autores principales: | , , , , |
---|---|
Formato: | article |
Lenguaje: | EN |
Publicado: |
Public Library of Science (PLoS)
2021
|
Materias: | |
Acceso en línea: | https://doaj.org/article/1672f6405e9b4b8789f708ce6b71efc7 |
Etiquetas: |
Agregar Etiqueta
Sin Etiquetas, Sea el primero en etiquetar este registro!
|
id |
oai:doaj.org-article:1672f6405e9b4b8789f708ce6b71efc7 |
---|---|
record_format |
dspace |
spelling |
oai:doaj.org-article:1672f6405e9b4b8789f708ce6b71efc72021-12-02T20:08:14ZThe Online Life Story Book: A randomized controlled trial on the effects of a digital reminiscence intervention for people with (very) mild dementia and their informal caregivers.1932-620310.1371/journal.pone.0256251https://doaj.org/article/1672f6405e9b4b8789f708ce6b71efc72021-01-01T00:00:00Zhttps://doi.org/10.1371/journal.pone.0256251https://doaj.org/toc/1932-6203This paper describes a randomized controlled trial on the Online Life Story Book (OLSB), a digital reminiscence intervention for people with (very) mild dementia living at home. The aim of the study was to investigate the effectiveness of the OLSB on (i) neuropsychiatric symptoms (NPS) in persons with dementia and (ii) the distress and quality of life (QOL) of primary informal caregivers. A randomized controlled trial with individual randomization to one of two conditions was conducted: 1) intervention "Online Life Story Book"; 2) wait list control condition. In the intervention OLSB, a trained volunteer guided the participants through the process of creating an OLSB in approximately 5 meetings within a period of 8-10 weeks. Participants in the control condition received care as usual while they waited for 6 months before starting. Outcomes on NPS and distress and QOL of the informal caregiver were assessed at baseline (baseline, T0), 3 months (T1) and 6 months (T2) post baseline. Of the 42 persons with dementia, 23 were female and 19 were male. They had a mean age of 80 years, ranging from 49 to 95. The total drop-out rate was 14.3 percent. Small but insignificant effects on NPS, caregiver distress and QOL of caregivers were found with the exception of self-rated caregiver distress that reduced significantly during the intervention. One reason to explain the results might be that the included participants were in relatively good health. Practical challenges during the intervention could have affected the results as well. It might also be that the intervention caused effects on other outcomes than NPS and caregiver distress. In future research, it is important to study the effects in persons with more complaints and higher distress and to be careful in the selection of outcome variables in relation to the reminiscence functions served by the intervention.Teuntje R ElfrinkChristina UllrichMiriam KunzSytse U ZuidemaGerben J WesterhofPublic Library of Science (PLoS)articleMedicineRScienceQENPLoS ONE, Vol 16, Iss 9, p e0256251 (2021) |
institution |
DOAJ |
collection |
DOAJ |
language |
EN |
topic |
Medicine R Science Q |
spellingShingle |
Medicine R Science Q Teuntje R Elfrink Christina Ullrich Miriam Kunz Sytse U Zuidema Gerben J Westerhof The Online Life Story Book: A randomized controlled trial on the effects of a digital reminiscence intervention for people with (very) mild dementia and their informal caregivers. |
description |
This paper describes a randomized controlled trial on the Online Life Story Book (OLSB), a digital reminiscence intervention for people with (very) mild dementia living at home. The aim of the study was to investigate the effectiveness of the OLSB on (i) neuropsychiatric symptoms (NPS) in persons with dementia and (ii) the distress and quality of life (QOL) of primary informal caregivers. A randomized controlled trial with individual randomization to one of two conditions was conducted: 1) intervention "Online Life Story Book"; 2) wait list control condition. In the intervention OLSB, a trained volunteer guided the participants through the process of creating an OLSB in approximately 5 meetings within a period of 8-10 weeks. Participants in the control condition received care as usual while they waited for 6 months before starting. Outcomes on NPS and distress and QOL of the informal caregiver were assessed at baseline (baseline, T0), 3 months (T1) and 6 months (T2) post baseline. Of the 42 persons with dementia, 23 were female and 19 were male. They had a mean age of 80 years, ranging from 49 to 95. The total drop-out rate was 14.3 percent. Small but insignificant effects on NPS, caregiver distress and QOL of caregivers were found with the exception of self-rated caregiver distress that reduced significantly during the intervention. One reason to explain the results might be that the included participants were in relatively good health. Practical challenges during the intervention could have affected the results as well. It might also be that the intervention caused effects on other outcomes than NPS and caregiver distress. In future research, it is important to study the effects in persons with more complaints and higher distress and to be careful in the selection of outcome variables in relation to the reminiscence functions served by the intervention. |
format |
article |
author |
Teuntje R Elfrink Christina Ullrich Miriam Kunz Sytse U Zuidema Gerben J Westerhof |
author_facet |
Teuntje R Elfrink Christina Ullrich Miriam Kunz Sytse U Zuidema Gerben J Westerhof |
author_sort |
Teuntje R Elfrink |
title |
The Online Life Story Book: A randomized controlled trial on the effects of a digital reminiscence intervention for people with (very) mild dementia and their informal caregivers. |
title_short |
The Online Life Story Book: A randomized controlled trial on the effects of a digital reminiscence intervention for people with (very) mild dementia and their informal caregivers. |
title_full |
The Online Life Story Book: A randomized controlled trial on the effects of a digital reminiscence intervention for people with (very) mild dementia and their informal caregivers. |
title_fullStr |
The Online Life Story Book: A randomized controlled trial on the effects of a digital reminiscence intervention for people with (very) mild dementia and their informal caregivers. |
title_full_unstemmed |
The Online Life Story Book: A randomized controlled trial on the effects of a digital reminiscence intervention for people with (very) mild dementia and their informal caregivers. |
title_sort |
online life story book: a randomized controlled trial on the effects of a digital reminiscence intervention for people with (very) mild dementia and their informal caregivers. |
publisher |
Public Library of Science (PLoS) |
publishDate |
2021 |
url |
https://doaj.org/article/1672f6405e9b4b8789f708ce6b71efc7 |
work_keys_str_mv |
AT teuntjerelfrink theonlinelifestorybookarandomizedcontrolledtrialontheeffectsofadigitalreminiscenceinterventionforpeoplewithverymilddementiaandtheirinformalcaregivers AT christinaullrich theonlinelifestorybookarandomizedcontrolledtrialontheeffectsofadigitalreminiscenceinterventionforpeoplewithverymilddementiaandtheirinformalcaregivers AT miriamkunz theonlinelifestorybookarandomizedcontrolledtrialontheeffectsofadigitalreminiscenceinterventionforpeoplewithverymilddementiaandtheirinformalcaregivers AT sytseuzuidema theonlinelifestorybookarandomizedcontrolledtrialontheeffectsofadigitalreminiscenceinterventionforpeoplewithverymilddementiaandtheirinformalcaregivers AT gerbenjwesterhof theonlinelifestorybookarandomizedcontrolledtrialontheeffectsofadigitalreminiscenceinterventionforpeoplewithverymilddementiaandtheirinformalcaregivers AT teuntjerelfrink onlinelifestorybookarandomizedcontrolledtrialontheeffectsofadigitalreminiscenceinterventionforpeoplewithverymilddementiaandtheirinformalcaregivers AT christinaullrich onlinelifestorybookarandomizedcontrolledtrialontheeffectsofadigitalreminiscenceinterventionforpeoplewithverymilddementiaandtheirinformalcaregivers AT miriamkunz onlinelifestorybookarandomizedcontrolledtrialontheeffectsofadigitalreminiscenceinterventionforpeoplewithverymilddementiaandtheirinformalcaregivers AT sytseuzuidema onlinelifestorybookarandomizedcontrolledtrialontheeffectsofadigitalreminiscenceinterventionforpeoplewithverymilddementiaandtheirinformalcaregivers AT gerbenjwesterhof onlinelifestorybookarandomizedcontrolledtrialontheeffectsofadigitalreminiscenceinterventionforpeoplewithverymilddementiaandtheirinformalcaregivers |
_version_ |
1718375165902979072 |