The multifaceted care-seeking practices among caregivers of children with cerebral palsy: Perspectives from mothers and providers in Ghana

<h4>Background</h4> Research on cerebral palsy (CP) has lacked emphasis on knowledge and treatment practices among caregivers, particularly in low- and middle-income countries where socio-cultural contexts encourage a variety of treatment alternatives. In this study, we explored the beli...

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Autores principales:	Victoria Fonzi, Blessed Sheriff, Sarah Dalglish, Adote Anum, Emmanuella Dwomo Agyei, Devin Diggs, Loretta Eboigbe, Prince Gyebi Owusu, Kwame S. Sakyi
Formato:	article
Lenguaje:	EN
Publicado:	Public Library of Science (PLoS) 2021
Materias:	Medicine R Science Q
Acceso en línea:	https://doaj.org/article/17492d9e75494b97937960573fa00caa
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spelling	oai:doaj.org-article:17492d9e75494b97937960573fa00caa2021-11-04T06:49:42ZThe multifaceted care-seeking practices among caregivers of children with cerebral palsy: Perspectives from mothers and providers in Ghana1932-6203https://doaj.org/article/17492d9e75494b97937960573fa00caa2021-01-01T00:00:00Zhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8550440/?tool=EBIhttps://doaj.org/toc/1932-6203<h4>Background</h4> Research on cerebral palsy (CP) has lacked emphasis on knowledge and treatment practices among caregivers, particularly in low- and middle-income countries where socio-cultural contexts encourage a variety of treatment alternatives. In this study, we explored the beliefs and experiences that motivate care-seeking practices among caregivers of children with CP in Ghana. <h4>Methods</h4> Semi-structured interviews were conducted with 25 caregivers, 10 medical providers, and 5 alternative providers in the Greater Accra Region. Participant interviews were analyzed using principles adapted from grounded theory. A conceptual model was constructed to illustrate salient patterns and motivational factors influencing care-seeking practices. <h4>Results</h4> Participants’ experiences showed that caregivers initially sought physiotherapy and prescription medications from medical providers. Many of them then transitioned to alternative methods to search for a cure or address specific CP symptoms. Over time, most caregivers discontinued both medical and alternative care in favor of at-home treatment. A few withdrew completely from all forms of care. Cost of treatment, caregiver burden, and stigma strongly inhibited care-seeking outside the home. <h4>Conclusion</h4> Although caregivers were open to exploring a variety of treatment options, at-home treatment was preferred by long-time caregivers for its convenience, low cost, and adaptability to patient and caregiver needs.Victoria FonziBlessed SheriffSarah DalglishAdote AnumEmmanuella Dwomo AgyeiDevin DiggsLoretta EboigbePrince Gyebi OwusuKwame S. SakyiPublic Library of Science (PLoS)articleMedicineRScienceQENPLoS ONE, Vol 16, Iss 10 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Medicine R Science Q
spellingShingle	Medicine R Science Q Victoria Fonzi Blessed Sheriff Sarah Dalglish Adote Anum Emmanuella Dwomo Agyei Devin Diggs Loretta Eboigbe Prince Gyebi Owusu Kwame S. Sakyi The multifaceted care-seeking practices among caregivers of children with cerebral palsy: Perspectives from mothers and providers in Ghana
description	<h4>Background</h4> Research on cerebral palsy (CP) has lacked emphasis on knowledge and treatment practices among caregivers, particularly in low- and middle-income countries where socio-cultural contexts encourage a variety of treatment alternatives. In this study, we explored the beliefs and experiences that motivate care-seeking practices among caregivers of children with CP in Ghana. <h4>Methods</h4> Semi-structured interviews were conducted with 25 caregivers, 10 medical providers, and 5 alternative providers in the Greater Accra Region. Participant interviews were analyzed using principles adapted from grounded theory. A conceptual model was constructed to illustrate salient patterns and motivational factors influencing care-seeking practices. <h4>Results</h4> Participants’ experiences showed that caregivers initially sought physiotherapy and prescription medications from medical providers. Many of them then transitioned to alternative methods to search for a cure or address specific CP symptoms. Over time, most caregivers discontinued both medical and alternative care in favor of at-home treatment. A few withdrew completely from all forms of care. Cost of treatment, caregiver burden, and stigma strongly inhibited care-seeking outside the home. <h4>Conclusion</h4> Although caregivers were open to exploring a variety of treatment options, at-home treatment was preferred by long-time caregivers for its convenience, low cost, and adaptability to patient and caregiver needs.
format	article
author	Victoria Fonzi Blessed Sheriff Sarah Dalglish Adote Anum Emmanuella Dwomo Agyei Devin Diggs Loretta Eboigbe Prince Gyebi Owusu Kwame S. Sakyi
author_facet	Victoria Fonzi Blessed Sheriff Sarah Dalglish Adote Anum Emmanuella Dwomo Agyei Devin Diggs Loretta Eboigbe Prince Gyebi Owusu Kwame S. Sakyi
author_sort	Victoria Fonzi
title	The multifaceted care-seeking practices among caregivers of children with cerebral palsy: Perspectives from mothers and providers in Ghana
title_short	The multifaceted care-seeking practices among caregivers of children with cerebral palsy: Perspectives from mothers and providers in Ghana
title_full	The multifaceted care-seeking practices among caregivers of children with cerebral palsy: Perspectives from mothers and providers in Ghana
title_fullStr	The multifaceted care-seeking practices among caregivers of children with cerebral palsy: Perspectives from mothers and providers in Ghana
title_full_unstemmed	The multifaceted care-seeking practices among caregivers of children with cerebral palsy: Perspectives from mothers and providers in Ghana
title_sort	multifaceted care-seeking practices among caregivers of children with cerebral palsy: perspectives from mothers and providers in ghana
publisher	Public Library of Science (PLoS)
publishDate	2021
url	https://doaj.org/article/17492d9e75494b97937960573fa00caa
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The multifaceted care-seeking practices among caregivers of children with cerebral palsy: Perspectives from mothers and providers in Ghana

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