Analysis of Transition of Patients with Parkinson’s Disease into Institutional Care: A Retrospective Pilot Study

Parkinson’s disease (PD) is a neurodegenerative disease which gives a person a high risk of becoming care-dependent. During disease progression, the amount of care concerning activities of daily living can increase, possibly resulting in transition of the people with Parkinson’s disease (PwP) to a c...

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Autores principales:	Ida Jensen, Emily Lescher, Stephanie Stiel, Florian Wegner, Günter Höglinger, Martin Klietz
Formato:	article
Lenguaje:	EN
Publicado:	MDPI AG 2021
Materias:	Parkinson’s disease caregiver burden transition Neurosciences. Biological psychiatry. Neuropsychiatry RC321-571
Acceso en línea:	https://doaj.org/article/1975bd57d511435eb9b40e60efc025c5
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spelling	oai:doaj.org-article:1975bd57d511435eb9b40e60efc025c52021-11-25T16:57:58ZAnalysis of Transition of Patients with Parkinson’s Disease into Institutional Care: A Retrospective Pilot Study10.3390/brainsci111114702076-3425https://doaj.org/article/1975bd57d511435eb9b40e60efc025c52021-11-01T00:00:00Zhttps://www.mdpi.com/2076-3425/11/11/1470https://doaj.org/toc/2076-3425Parkinson’s disease (PD) is a neurodegenerative disease which gives a person a high risk of becoming care-dependent. During disease progression, the amount of care concerning activities of daily living can increase, possibly resulting in transition of the people with Parkinson’s disease (PwP) to a care facility. However, there is a lack of knowledge concerning the factors leading to institutionalization of PwP and the consequences for them and their informal caregivers. The aim of this cross-sectional retrospective study was to investigate reasons leading to the transition into an institutional care facility, the process of decision-making and its effects on PwP symptoms and caregiver burden. Participating PwP had to be institutionalized for at most one year after transition at study inclusion. Participants completed a range of semiquantitative questionnaires as well as the caregiving tasks questionnaire. Fourteen patient–caregiver pairs were included. PwP suffered from late-stage PD symptoms with high dependence on help, experiencing several hospitalizations before transition. Analyses revealed a significant decrease in caregiver burden and depressive symptoms of the caregivers after PwP institutionalization. Factors influencing the transition were, e.g., fear of PwP health issues and concerns about caregivers’ health. This study presents new insights into the process of institutionalization and its influence on caregiver burden, including aspects for discussions of physicians with PwP and their caregivers for counselling the decision to move to institutional care.Ida JensenEmily LescherStephanie StielFlorian WegnerGünter HöglingerMartin KlietzMDPI AGarticleParkinson’s diseasecaregiver burdentransitionNeurosciences. Biological psychiatry. NeuropsychiatryRC321-571ENBrain Sciences, Vol 11, Iss 1470, p 1470 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Parkinson’s disease caregiver burden transition Neurosciences. Biological psychiatry. Neuropsychiatry RC321-571
spellingShingle	Parkinson’s disease caregiver burden transition Neurosciences. Biological psychiatry. Neuropsychiatry RC321-571 Ida Jensen Emily Lescher Stephanie Stiel Florian Wegner Günter Höglinger Martin Klietz Analysis of Transition of Patients with Parkinson’s Disease into Institutional Care: A Retrospective Pilot Study
description	Parkinson’s disease (PD) is a neurodegenerative disease which gives a person a high risk of becoming care-dependent. During disease progression, the amount of care concerning activities of daily living can increase, possibly resulting in transition of the people with Parkinson’s disease (PwP) to a care facility. However, there is a lack of knowledge concerning the factors leading to institutionalization of PwP and the consequences for them and their informal caregivers. The aim of this cross-sectional retrospective study was to investigate reasons leading to the transition into an institutional care facility, the process of decision-making and its effects on PwP symptoms and caregiver burden. Participating PwP had to be institutionalized for at most one year after transition at study inclusion. Participants completed a range of semiquantitative questionnaires as well as the caregiving tasks questionnaire. Fourteen patient–caregiver pairs were included. PwP suffered from late-stage PD symptoms with high dependence on help, experiencing several hospitalizations before transition. Analyses revealed a significant decrease in caregiver burden and depressive symptoms of the caregivers after PwP institutionalization. Factors influencing the transition were, e.g., fear of PwP health issues and concerns about caregivers’ health. This study presents new insights into the process of institutionalization and its influence on caregiver burden, including aspects for discussions of physicians with PwP and their caregivers for counselling the decision to move to institutional care.
format	article
author	Ida Jensen Emily Lescher Stephanie Stiel Florian Wegner Günter Höglinger Martin Klietz
author_facet	Ida Jensen Emily Lescher Stephanie Stiel Florian Wegner Günter Höglinger Martin Klietz
author_sort	Ida Jensen
title	Analysis of Transition of Patients with Parkinson’s Disease into Institutional Care: A Retrospective Pilot Study
title_short	Analysis of Transition of Patients with Parkinson’s Disease into Institutional Care: A Retrospective Pilot Study
title_full	Analysis of Transition of Patients with Parkinson’s Disease into Institutional Care: A Retrospective Pilot Study
title_fullStr	Analysis of Transition of Patients with Parkinson’s Disease into Institutional Care: A Retrospective Pilot Study
title_full_unstemmed	Analysis of Transition of Patients with Parkinson’s Disease into Institutional Care: A Retrospective Pilot Study
title_sort	analysis of transition of patients with parkinson’s disease into institutional care: a retrospective pilot study
publisher	MDPI AG
publishDate	2021
url	https://doaj.org/article/1975bd57d511435eb9b40e60efc025c5
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Analysis of Transition of Patients with Parkinson’s Disease into Institutional Care: A Retrospective Pilot Study

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