Representing the patient experience of heart failure through empathy, journey and stakeholder mapping

Heart failure is a long-term condition requiring those affected to manage numerous self-care related activities. People with heart failure report multiple challenges accommodating self-care activities in their every-day life. The aim of this study is to (1) understand the experience of people with h...

Descripción completa

Guardado en:

Detalles Bibliográficos
Autores principales:	Leanna Woods, Jed Duff, Erin Roehrer, Kim Walker, Elizabeth Cummings
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2019
Materias:	patient experience patient- and family-centred care qualitative methods heart failure self-care Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/19798acbb4514aa4af1a32fd37cf6bf5
Etiquetas:	Agregar Etiqueta Sin Etiquetas, Sea el primero en etiquetar este registro!

id	oai:doaj.org-article:19798acbb4514aa4af1a32fd37cf6bf5
record_format	dspace
spelling	oai:doaj.org-article:19798acbb4514aa4af1a32fd37cf6bf52021-11-15T04:28:38ZRepresenting the patient experience of heart failure through empathy, journey and stakeholder mapping2372-0247https://doaj.org/article/19798acbb4514aa4af1a32fd37cf6bf52019-04-01T00:00:00Zhttps://pxjournal.org/journal/vol6/iss1/8https://doaj.org/toc/2372-0247Heart failure is a long-term condition requiring those affected to manage numerous self-care related activities. People with heart failure report multiple challenges accommodating self-care activities in their every-day life. The aim of this study is to (1) understand the experience of people with heart failure and their caregivers in the local patient population, and (2) visually represent these experiences to inform the design of a mobile health intervention supporting self-care. Seven patients and four family caregivers were interviewed using an empathic approach. Data was collected using rapid design methods including an empathy map to uncover patient and caregiver perspectives and a journey map to document daily self-care activities. Content analysis resulted in a needs and insights summary, a journey map and stakeholder map. The needs and insights are summarised in five themes; controlling, trusting, concerned, symptom-laden and accepting. Negative experiences - restlessness, breathlessness and urination – occurred overnight as visualised in the journey map. Overwhelmingly the spouse and general practitioner were the personal and professional stakeholders involved in self-care activities. Understanding the experience of people with heart failure was the first step in the creation of a patient-centred mobile health intervention. Rapid design methods such as the three presented in this paper can give voice to the patient experience, their frustrations, challenges and existing support structures in a clear, visual format to aid empathic design.Leanna WoodsJed DuffErin RoehrerKim WalkerElizabeth CummingsThe Beryl Institutearticlepatient experiencepatient- and family-centred carequalitative methodsheart failureself-careMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2019)
institution	DOAJ
collection	DOAJ
language	EN
topic	patient experience patient- and family-centred care qualitative methods heart failure self-care Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	patient experience patient- and family-centred care qualitative methods heart failure self-care Medicine (General) R5-920 Public aspects of medicine RA1-1270 Leanna Woods Jed Duff Erin Roehrer Kim Walker Elizabeth Cummings Representing the patient experience of heart failure through empathy, journey and stakeholder mapping
description	Heart failure is a long-term condition requiring those affected to manage numerous self-care related activities. People with heart failure report multiple challenges accommodating self-care activities in their every-day life. The aim of this study is to (1) understand the experience of people with heart failure and their caregivers in the local patient population, and (2) visually represent these experiences to inform the design of a mobile health intervention supporting self-care. Seven patients and four family caregivers were interviewed using an empathic approach. Data was collected using rapid design methods including an empathy map to uncover patient and caregiver perspectives and a journey map to document daily self-care activities. Content analysis resulted in a needs and insights summary, a journey map and stakeholder map. The needs and insights are summarised in five themes; controlling, trusting, concerned, symptom-laden and accepting. Negative experiences - restlessness, breathlessness and urination – occurred overnight as visualised in the journey map. Overwhelmingly the spouse and general practitioner were the personal and professional stakeholders involved in self-care activities. Understanding the experience of people with heart failure was the first step in the creation of a patient-centred mobile health intervention. Rapid design methods such as the three presented in this paper can give voice to the patient experience, their frustrations, challenges and existing support structures in a clear, visual format to aid empathic design.
format	article
author	Leanna Woods Jed Duff Erin Roehrer Kim Walker Elizabeth Cummings
author_facet	Leanna Woods Jed Duff Erin Roehrer Kim Walker Elizabeth Cummings
author_sort	Leanna Woods
title	Representing the patient experience of heart failure through empathy, journey and stakeholder mapping
title_short	Representing the patient experience of heart failure through empathy, journey and stakeholder mapping
title_full	Representing the patient experience of heart failure through empathy, journey and stakeholder mapping
title_fullStr	Representing the patient experience of heart failure through empathy, journey and stakeholder mapping
title_full_unstemmed	Representing the patient experience of heart failure through empathy, journey and stakeholder mapping
title_sort	representing the patient experience of heart failure through empathy, journey and stakeholder mapping
publisher	The Beryl Institute
publishDate	2019
url	https://doaj.org/article/19798acbb4514aa4af1a32fd37cf6bf5
work_keys_str_mv	AT leannawoods representingthepatientexperienceofheartfailurethroughempathyjourneyandstakeholdermapping AT jedduff representingthepatientexperienceofheartfailurethroughempathyjourneyandstakeholdermapping AT erinroehrer representingthepatientexperienceofheartfailurethroughempathyjourneyandstakeholdermapping AT kimwalker representingthepatientexperienceofheartfailurethroughempathyjourneyandstakeholdermapping AT elizabethcummings representingthepatientexperienceofheartfailurethroughempathyjourneyandstakeholdermapping
_version_	1718428851762102272

Representing the patient experience of heart failure through empathy, journey and stakeholder mapping

Ejemplares similares