The experience, satisfaction, and Emergency Department utilization of pediatric patients with sickle cell disease during the Covid-19 pandemic

The COVID-19 pandemic has influenced how patients utilize healthcare. This study examines the utilization, experience, and satisfaction of patients with Sickle Cell Disease (SCD) in the pediatric Emergency Department (ED) during the COVID-19 pandemic compared to the care they had received before the...

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Autores principales:	Alexandra Kirsch, Nataly Apollonsky
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2021
Materias:	patient experience patient satisfaction patient utilization covid-19 pediatric emergency department sickle cell disease Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/1a0d1caff2f04c5c8e5c9d27286e4014
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spelling	oai:doaj.org-article:1a0d1caff2f04c5c8e5c9d27286e40142021-11-15T04:33:55ZThe experience, satisfaction, and Emergency Department utilization of pediatric patients with sickle cell disease during the Covid-19 pandemic2372-0247https://doaj.org/article/1a0d1caff2f04c5c8e5c9d27286e40142021-08-01T00:00:00Zhttps://pxjournal.org/journal/vol8/iss2/11https://doaj.org/toc/2372-0247The COVID-19 pandemic has influenced how patients utilize healthcare. This study examines the utilization, experience, and satisfaction of patients with Sickle Cell Disease (SCD) in the pediatric Emergency Department (ED) during the COVID-19 pandemic compared to the care they had received before the pandemic. The authors surveyed fifty-eight participants ages 14 months to 20 years who presented to the ED for a complaint related to their SCD during the COVID-19 pandemic. The study analyzed five variables: race, SCD severity, hemoglobin (Hgb) genotype, who completed the questionnaire (patient versus parent/guardian), and whether the ED visit resulted in an admission to the hospital. Our results suggest that the COVID-19 pandemic significantly affected the decision of some patients as to whether and when to go to the ED. African Americans and those with severe disease did not wait longer than usual to go to the ED, possibly because these groups are more likely to have more serious and more frequent pain crises. Thus, their decision to present to the ED was driven more by their relatively worse symptoms, rather than such external factors as the pandemic. However, the pandemic did not significantly affect patients’ satisfaction with their ED visit or their baseline SCD symptoms. To our knowledge, this is the first study of how the COVID-19 pandemic has affected patients’ utilization of, experience in, and satisfaction with a pediatric hospital ED. <strong>Experience Framework</strong> This article is associated with the Quality & Clinical Excellence lens of The Beryl Institute Experience Framework (<a href="https://www.theberylinstitute.org/ExperienceFramework">https://www.theberylinstitute.org/ExperienceFramework</a>). <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Quality%20%26%20Clinical%20Excellence%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-QualityClinicalExcellence">Access other resources</a> related to this lens.</li> </ul>Alexandra KirschNataly ApollonskyThe Beryl Institutearticlepatient experiencepatient satisfactionpatient utilizationcovid-19pediatricemergency departmentsickle cell diseaseMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	patient experience patient satisfaction patient utilization covid-19 pediatric emergency department sickle cell disease Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	patient experience patient satisfaction patient utilization covid-19 pediatric emergency department sickle cell disease Medicine (General) R5-920 Public aspects of medicine RA1-1270 Alexandra Kirsch Nataly Apollonsky The experience, satisfaction, and Emergency Department utilization of pediatric patients with sickle cell disease during the Covid-19 pandemic
description	The COVID-19 pandemic has influenced how patients utilize healthcare. This study examines the utilization, experience, and satisfaction of patients with Sickle Cell Disease (SCD) in the pediatric Emergency Department (ED) during the COVID-19 pandemic compared to the care they had received before the pandemic. The authors surveyed fifty-eight participants ages 14 months to 20 years who presented to the ED for a complaint related to their SCD during the COVID-19 pandemic. The study analyzed five variables: race, SCD severity, hemoglobin (Hgb) genotype, who completed the questionnaire (patient versus parent/guardian), and whether the ED visit resulted in an admission to the hospital. Our results suggest that the COVID-19 pandemic significantly affected the decision of some patients as to whether and when to go to the ED. African Americans and those with severe disease did not wait longer than usual to go to the ED, possibly because these groups are more likely to have more serious and more frequent pain crises. Thus, their decision to present to the ED was driven more by their relatively worse symptoms, rather than such external factors as the pandemic. However, the pandemic did not significantly affect patients’ satisfaction with their ED visit or their baseline SCD symptoms. To our knowledge, this is the first study of how the COVID-19 pandemic has affected patients’ utilization of, experience in, and satisfaction with a pediatric hospital ED. <strong>Experience Framework</strong> This article is associated with the Quality & Clinical Excellence lens of The Beryl Institute Experience Framework (<a href="https://www.theberylinstitute.org/ExperienceFramework">https://www.theberylinstitute.org/ExperienceFramework</a>). <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Quality%20%26%20Clinical%20Excellence%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-QualityClinicalExcellence">Access other resources</a> related to this lens.</li> </ul>
format	article
author	Alexandra Kirsch Nataly Apollonsky
author_facet	Alexandra Kirsch Nataly Apollonsky
author_sort	Alexandra Kirsch
title	The experience, satisfaction, and Emergency Department utilization of pediatric patients with sickle cell disease during the Covid-19 pandemic
title_short	The experience, satisfaction, and Emergency Department utilization of pediatric patients with sickle cell disease during the Covid-19 pandemic
title_full	The experience, satisfaction, and Emergency Department utilization of pediatric patients with sickle cell disease during the Covid-19 pandemic
title_fullStr	The experience, satisfaction, and Emergency Department utilization of pediatric patients with sickle cell disease during the Covid-19 pandemic
title_full_unstemmed	The experience, satisfaction, and Emergency Department utilization of pediatric patients with sickle cell disease during the Covid-19 pandemic
title_sort	experience, satisfaction, and emergency department utilization of pediatric patients with sickle cell disease during the covid-19 pandemic
publisher	The Beryl Institute
publishDate	2021
url	https://doaj.org/article/1a0d1caff2f04c5c8e5c9d27286e4014
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The experience, satisfaction, and Emergency Department utilization of pediatric patients with sickle cell disease during the Covid-19 pandemic

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