Understanding the role of patient and public involvement in renal dietetic research

The objective was to consult patients on a proposed recruitment strategy to a patient and public involvement exercise. We wanted to explore the reasoning and willingness of patients to become co-researchers within a grant application.<strong> </strong>Eighteen people using the renal heal...

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Autores principales:	Andrew Morris, Deborah Biggerstaff, Nithya Krishnan, Deborah Lycett
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2017
Materias:	patient involvement public consultation patient co-researchers renal dietetics service users qualitative health action research Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/1a1736a290d34b4cb13a6f60610d300e
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spelling	oai:doaj.org-article:1a1736a290d34b4cb13a6f60610d300e2021-11-15T04:22:04ZUnderstanding the role of patient and public involvement in renal dietetic research2372-0247https://doaj.org/article/1a1736a290d34b4cb13a6f60610d300e2017-07-01T00:00:00Zhttps://pxjournal.org/journal/vol4/iss2/5https://doaj.org/toc/2372-0247The objective was to consult patients on a proposed recruitment strategy to a patient and public involvement exercise. We wanted to explore the reasoning and willingness of patients to become co-researchers within a grant application.<strong> </strong>Eighteen people using the renal health service informed the consultation by action research so that their experiences could be used to guide the overall methodology. Twelve people took part in semi-structured interviews. NVIVO 10 and Framework Analysis were used to interpret emerging themes from the data. The recruitment strategy, informed by research expertise, became an experience-based expert design. The design took into account the limitations of attendance, the informational and physical needs of these service users. Service users wanted to share their experiences with people who would listen and were in a position to help make the changes. This gave them a sense of purpose and autonomy in their treatment and helped them cope with living with renal disease in society. However, feelings of doubt as to whether they could personally ‘make a difference’ as a co-researcher, were common. Consulting service users enabled the research team to recruit more people to interviews to explore motivation considering the unique personal and social needs of this service user group. Service users may need additional and continued support if they are to successfully take part in a clinical study research advisory group.Andrew MorrisDeborah BiggerstaffNithya KrishnanDeborah LycettThe Beryl Institutearticlepatient involvementpublic consultationpatient co-researchersrenaldieteticsservice usersqualitative healthaction researchMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2017)
institution	DOAJ
collection	DOAJ
language	EN
topic	patient involvement public consultation patient co-researchers renal dietetics service users qualitative health action research Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	patient involvement public consultation patient co-researchers renal dietetics service users qualitative health action research Medicine (General) R5-920 Public aspects of medicine RA1-1270 Andrew Morris Deborah Biggerstaff Nithya Krishnan Deborah Lycett Understanding the role of patient and public involvement in renal dietetic research
description	The objective was to consult patients on a proposed recruitment strategy to a patient and public involvement exercise. We wanted to explore the reasoning and willingness of patients to become co-researchers within a grant application.<strong> </strong>Eighteen people using the renal health service informed the consultation by action research so that their experiences could be used to guide the overall methodology. Twelve people took part in semi-structured interviews. NVIVO 10 and Framework Analysis were used to interpret emerging themes from the data. The recruitment strategy, informed by research expertise, became an experience-based expert design. The design took into account the limitations of attendance, the informational and physical needs of these service users. Service users wanted to share their experiences with people who would listen and were in a position to help make the changes. This gave them a sense of purpose and autonomy in their treatment and helped them cope with living with renal disease in society. However, feelings of doubt as to whether they could personally ‘make a difference’ as a co-researcher, were common. Consulting service users enabled the research team to recruit more people to interviews to explore motivation considering the unique personal and social needs of this service user group. Service users may need additional and continued support if they are to successfully take part in a clinical study research advisory group.
format	article
author	Andrew Morris Deborah Biggerstaff Nithya Krishnan Deborah Lycett
author_facet	Andrew Morris Deborah Biggerstaff Nithya Krishnan Deborah Lycett
author_sort	Andrew Morris
title	Understanding the role of patient and public involvement in renal dietetic research
title_short	Understanding the role of patient and public involvement in renal dietetic research
title_full	Understanding the role of patient and public involvement in renal dietetic research
title_fullStr	Understanding the role of patient and public involvement in renal dietetic research
title_full_unstemmed	Understanding the role of patient and public involvement in renal dietetic research
title_sort	understanding the role of patient and public involvement in renal dietetic research
publisher	The Beryl Institute
publishDate	2017
url	https://doaj.org/article/1a1736a290d34b4cb13a6f60610d300e
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Understanding the role of patient and public involvement in renal dietetic research

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