Conceptualising multiple conditions in Australia: First steps to systemic change to meet the needs of people with serious long-term illnesses

Since the 1970s greater numbers of people are now living with several serious long term illnesses. These include rarer genetic conditions and ‘lifestyle conditions’ as well as those of an idiopathic nature. This article examines the growing need for new terms and concepts that reflect the changes in...

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Autor principal:	Christine Walker
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2015
Materias:	multiple conditions multi-morbidities consumer perspective concepts definitions Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/1afc2dba02b647edb86d6dd0d7765758
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spelling	oai:doaj.org-article:1afc2dba02b647edb86d6dd0d77657582021-11-15T04:21:32ZConceptualising multiple conditions in Australia: First steps to systemic change to meet the needs of people with serious long-term illnesses2372-0247https://doaj.org/article/1afc2dba02b647edb86d6dd0d77657582015-11-01T00:00:00Zhttps://pxjournal.org/journal/vol2/iss2/10https://doaj.org/toc/2372-0247Since the 1970s greater numbers of people are now living with several serious long term illnesses. These include rarer genetic conditions and ‘lifestyle conditions’ as well as those of an idiopathic nature. This article examines the growing need for new terms and concepts that reflect the changes in the lives of people living with long-term serious illnesses. Members of the Chronic Illness Alliance attended a workshop where they presented their experiences and views of living with multi-morbidities. Consumers were concerned about treatment side-effects, polypharmacy, adverse events and the need for coordinated care. Following this workshop, the Chronic Illness Alliance undertook a literature review using the principles of meta-synthesis to explore the consumer perspective in literature on multi-morbidities. This method aims to systematise qualitative concepts and it provided the means to identify whether the concerns raised by consumers were recognised in the literature. The risks identified by consumers were used both as search terms and analytical terms. While the consumer perspective appeared absent in the literature, many authors showed similar concern about the tardiness of health systems to acknowledge the impact of multi-morbidities for consumers and the associated risks. More importantly the literature review demonstrated that problems associated with concepts, definitions and data collection impact on health care and service delivery. This in turn dictates how consumers receive their health care services and ultimately influences the safety and quality of their health care. The article discusses the concepts of co-morbidity and multi-morbidity in relation to data collection, definitions and treatment guidelines and their implications for consumers with regard to treatments, side-effects, polypharmacy, adverse events and coordinating care. There is a pressing need to develop and employ concepts that better reflect consumers’ needs and experiences in order to improve safety and quality of health care. The article argues that the adoption of better concepts is a first step to achieving systemic change on behalf of people with multiple conditions.Christine WalkerThe Beryl Institutearticlemultiple conditionsmulti-morbiditiesconsumer perspectiveconceptsdefinitionsMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2015)
institution	DOAJ
collection	DOAJ
language	EN
topic	multiple conditions multi-morbidities consumer perspective concepts definitions Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	multiple conditions multi-morbidities consumer perspective concepts definitions Medicine (General) R5-920 Public aspects of medicine RA1-1270 Christine Walker Conceptualising multiple conditions in Australia: First steps to systemic change to meet the needs of people with serious long-term illnesses
description	Since the 1970s greater numbers of people are now living with several serious long term illnesses. These include rarer genetic conditions and ‘lifestyle conditions’ as well as those of an idiopathic nature. This article examines the growing need for new terms and concepts that reflect the changes in the lives of people living with long-term serious illnesses. Members of the Chronic Illness Alliance attended a workshop where they presented their experiences and views of living with multi-morbidities. Consumers were concerned about treatment side-effects, polypharmacy, adverse events and the need for coordinated care. Following this workshop, the Chronic Illness Alliance undertook a literature review using the principles of meta-synthesis to explore the consumer perspective in literature on multi-morbidities. This method aims to systematise qualitative concepts and it provided the means to identify whether the concerns raised by consumers were recognised in the literature. The risks identified by consumers were used both as search terms and analytical terms. While the consumer perspective appeared absent in the literature, many authors showed similar concern about the tardiness of health systems to acknowledge the impact of multi-morbidities for consumers and the associated risks. More importantly the literature review demonstrated that problems associated with concepts, definitions and data collection impact on health care and service delivery. This in turn dictates how consumers receive their health care services and ultimately influences the safety and quality of their health care. The article discusses the concepts of co-morbidity and multi-morbidity in relation to data collection, definitions and treatment guidelines and their implications for consumers with regard to treatments, side-effects, polypharmacy, adverse events and coordinating care. There is a pressing need to develop and employ concepts that better reflect consumers’ needs and experiences in order to improve safety and quality of health care. The article argues that the adoption of better concepts is a first step to achieving systemic change on behalf of people with multiple conditions.
format	article
author	Christine Walker
author_facet	Christine Walker
author_sort	Christine Walker
title	Conceptualising multiple conditions in Australia: First steps to systemic change to meet the needs of people with serious long-term illnesses
title_short	Conceptualising multiple conditions in Australia: First steps to systemic change to meet the needs of people with serious long-term illnesses
title_full	Conceptualising multiple conditions in Australia: First steps to systemic change to meet the needs of people with serious long-term illnesses
title_fullStr	Conceptualising multiple conditions in Australia: First steps to systemic change to meet the needs of people with serious long-term illnesses
title_full_unstemmed	Conceptualising multiple conditions in Australia: First steps to systemic change to meet the needs of people with serious long-term illnesses
title_sort	conceptualising multiple conditions in australia: first steps to systemic change to meet the needs of people with serious long-term illnesses
publisher	The Beryl Institute
publishDate	2015
url	https://doaj.org/article/1afc2dba02b647edb86d6dd0d7765758
work_keys_str_mv	AT christinewalker conceptualisingmultipleconditionsinaustraliafirststepstosystemicchangetomeettheneedsofpeoplewithseriouslongtermillnesses
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Conceptualising multiple conditions in Australia: First steps to systemic change to meet the needs of people with serious long-term illnesses

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