The experience of being a mother with end stage renal disease: A qualitative study of women receiving treatment at an ambulatory dialysis unit.

<h4>Background</h4>End-stage kidney disease (ESKD) has considerable effects on the quality of life, impairing daily activities and leading to lifestyle changes. The purpose of this study was therefore to explore the experience of motherhood and taking care of children in women with ESKD....

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Autores principales:	Miriam Álvarez-Villarreal, Juan Francisco Velarde-García, Cristina García-Bravo, Pilar Carrasco-Garrido, Carmen Jimenez-Antona, Paloma Moro-Lopez-Menchero, Domingo Palacios-Ceña
Formato:	article
Lenguaje:	EN
Publicado:	Public Library of Science (PLoS) 2021
Materias:	Medicine R Science Q
Acceso en línea:	https://doaj.org/article/1b37bba2631949229fba89fe6ffde4ce
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spelling	oai:doaj.org-article:1b37bba2631949229fba89fe6ffde4ce2021-12-02T20:14:08ZThe experience of being a mother with end stage renal disease: A qualitative study of women receiving treatment at an ambulatory dialysis unit.1932-620310.1371/journal.pone.0257691https://doaj.org/article/1b37bba2631949229fba89fe6ffde4ce2021-01-01T00:00:00Zhttps://doi.org/10.1371/journal.pone.0257691https://doaj.org/toc/1932-6203<h4>Background</h4>End-stage kidney disease (ESKD) has considerable effects on the quality of life, impairing daily activities and leading to lifestyle changes. The purpose of this study was therefore to explore the experience of motherhood and taking care of children in women with ESKD.<h4>Methods</h4>A qualitative exploratory study was conducted based on an interpretive framework. Participants were recruited using non-probabilistic purposeful sampling. In total, 14 women with ESKD were included, who were treated at the dialysis unit of a Spanish hospital. In-depth interviews (unstructured and semi-structured interviews) and researchers' field notes were used to collect the data. A systematic text condensation analysis was performed. The techniques performed and application procedures used to control trustworthiness were credibility, transferability, dependability, and confirmability.<h4>Results</h4>Three themes emerged from the data. "Coping with being a mother" described how women are faced with the decision to become mothers and assess the risks of pregnancy. The second theme, called "Children and the experience of illness", highlighted the women's struggle to prevent the disease from affecting their children emotionally or disrupting their lives. The third theme, "Fear of genetic transmission", was based on the women's fear of passing the disease on to their children.<h4>Conclusions</h4>Deciding to become a mother and taking care of children represents a challenge for women with ESKD, coupled with the losses in their lives caused by the disease. These findings are only relevant to women on dialysis.Miriam Álvarez-VillarrealJuan Francisco Velarde-GarcíaCristina García-BravoPilar Carrasco-GarridoCarmen Jimenez-AntonaPaloma Moro-Lopez-MencheroDomingo Palacios-CeñaPublic Library of Science (PLoS)articleMedicineRScienceQENPLoS ONE, Vol 16, Iss 9, p e0257691 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Medicine R Science Q
spellingShingle	Medicine R Science Q Miriam Álvarez-Villarreal Juan Francisco Velarde-García Cristina García-Bravo Pilar Carrasco-Garrido Carmen Jimenez-Antona Paloma Moro-Lopez-Menchero Domingo Palacios-Ceña The experience of being a mother with end stage renal disease: A qualitative study of women receiving treatment at an ambulatory dialysis unit.
description	<h4>Background</h4>End-stage kidney disease (ESKD) has considerable effects on the quality of life, impairing daily activities and leading to lifestyle changes. The purpose of this study was therefore to explore the experience of motherhood and taking care of children in women with ESKD.<h4>Methods</h4>A qualitative exploratory study was conducted based on an interpretive framework. Participants were recruited using non-probabilistic purposeful sampling. In total, 14 women with ESKD were included, who were treated at the dialysis unit of a Spanish hospital. In-depth interviews (unstructured and semi-structured interviews) and researchers' field notes were used to collect the data. A systematic text condensation analysis was performed. The techniques performed and application procedures used to control trustworthiness were credibility, transferability, dependability, and confirmability.<h4>Results</h4>Three themes emerged from the data. "Coping with being a mother" described how women are faced with the decision to become mothers and assess the risks of pregnancy. The second theme, called "Children and the experience of illness", highlighted the women's struggle to prevent the disease from affecting their children emotionally or disrupting their lives. The third theme, "Fear of genetic transmission", was based on the women's fear of passing the disease on to their children.<h4>Conclusions</h4>Deciding to become a mother and taking care of children represents a challenge for women with ESKD, coupled with the losses in their lives caused by the disease. These findings are only relevant to women on dialysis.
format	article
author	Miriam Álvarez-Villarreal Juan Francisco Velarde-García Cristina García-Bravo Pilar Carrasco-Garrido Carmen Jimenez-Antona Paloma Moro-Lopez-Menchero Domingo Palacios-Ceña
author_facet	Miriam Álvarez-Villarreal Juan Francisco Velarde-García Cristina García-Bravo Pilar Carrasco-Garrido Carmen Jimenez-Antona Paloma Moro-Lopez-Menchero Domingo Palacios-Ceña
author_sort	Miriam Álvarez-Villarreal
title	The experience of being a mother with end stage renal disease: A qualitative study of women receiving treatment at an ambulatory dialysis unit.
title_short	The experience of being a mother with end stage renal disease: A qualitative study of women receiving treatment at an ambulatory dialysis unit.
title_full	The experience of being a mother with end stage renal disease: A qualitative study of women receiving treatment at an ambulatory dialysis unit.
title_fullStr	The experience of being a mother with end stage renal disease: A qualitative study of women receiving treatment at an ambulatory dialysis unit.
title_full_unstemmed	The experience of being a mother with end stage renal disease: A qualitative study of women receiving treatment at an ambulatory dialysis unit.
title_sort	experience of being a mother with end stage renal disease: a qualitative study of women receiving treatment at an ambulatory dialysis unit.
publisher	Public Library of Science (PLoS)
publishDate	2021
url	https://doaj.org/article/1b37bba2631949229fba89fe6ffde4ce
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The experience of being a mother with end stage renal disease: A qualitative study of women receiving treatment at an ambulatory dialysis unit.

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