Exploring well-being services from the perspective of people with SCI: A scoping review of qualitative research

Objective Well-being after spinal cord injury is affected by a range of factors, many of which are within the influence of rehabilitation services. Although improving well-being is a key aim of rehabilitation, the literature does not provide a clear path to service providers who seek to improve well...

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Autores principales:	Bronwyn Simpson, Michelle Villeneuve, Shane Clifton
Formato:	article
Lenguaje:	EN
Publicado:	Taylor & Francis Group 2021
Materias:	well-being quality of life spinal cord injury rehabilitation intervention qualitative scoping review Medicine (General) R5-920
Acceso en línea:	https://doaj.org/article/1ccff3f175c9465e9238aa4bc351b92d
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spelling	oai:doaj.org-article:1ccff3f175c9465e9238aa4bc351b92d2021-11-11T14:23:41ZExploring well-being services from the perspective of people with SCI: A scoping review of qualitative research1748-26231748-263110.1080/17482631.2021.1986922https://doaj.org/article/1ccff3f175c9465e9238aa4bc351b92d2021-01-01T00:00:00Zhttp://dx.doi.org/10.1080/17482631.2021.1986922https://doaj.org/toc/1748-2623https://doaj.org/toc/1748-2631Objective Well-being after spinal cord injury is affected by a range of factors, many of which are within the influence of rehabilitation services. Although improving well-being is a key aim of rehabilitation, the literature does not provide a clear path to service providers who seek to improve well-being. This study aimed to inform service design by identifying the experience and perspective of people with SCI about interventions targeting their well-being. Method The scoping review of qualitative literature used thematic analysis to identify and categorize themes related to service activities, valued aspects, limitations and perceived outcomes. Results Thirty-eight studies were selected, related to a range of service types. Most studies did not adopt a well-being conceptual framework to design and evaluate the services. People with SCI particularly valued being treated with dignity, positive expectations, increased autonomy and peer support. Improvements to well-being were reported, including many years post-SCI. However, people with SCI reported limited opportunities to engage in such services. Conclusions Rehabilitation services can improve well-being across the lifetime of people with SCI, but gaps in service provision are reported. The review identified valued aspects of services that may inform service design, including staff approach and positive expectations, having own skills and worth valued, peer support and interaction, autonomy in valued occupations, and long-term opportunities for gains.Bronwyn SimpsonMichelle VilleneuveShane CliftonTaylor & Francis Grouparticlewell-beingquality of lifespinal cord injuryrehabilitationinterventionqualitative scoping reviewMedicine (General)R5-920ENInternational Journal of Qualitative Studies on Health & Well-Being, Vol 16, Iss 1 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	well-being quality of life spinal cord injury rehabilitation intervention qualitative scoping review Medicine (General) R5-920
spellingShingle	well-being quality of life spinal cord injury rehabilitation intervention qualitative scoping review Medicine (General) R5-920 Bronwyn Simpson Michelle Villeneuve Shane Clifton Exploring well-being services from the perspective of people with SCI: A scoping review of qualitative research
description	Objective Well-being after spinal cord injury is affected by a range of factors, many of which are within the influence of rehabilitation services. Although improving well-being is a key aim of rehabilitation, the literature does not provide a clear path to service providers who seek to improve well-being. This study aimed to inform service design by identifying the experience and perspective of people with SCI about interventions targeting their well-being. Method The scoping review of qualitative literature used thematic analysis to identify and categorize themes related to service activities, valued aspects, limitations and perceived outcomes. Results Thirty-eight studies were selected, related to a range of service types. Most studies did not adopt a well-being conceptual framework to design and evaluate the services. People with SCI particularly valued being treated with dignity, positive expectations, increased autonomy and peer support. Improvements to well-being were reported, including many years post-SCI. However, people with SCI reported limited opportunities to engage in such services. Conclusions Rehabilitation services can improve well-being across the lifetime of people with SCI, but gaps in service provision are reported. The review identified valued aspects of services that may inform service design, including staff approach and positive expectations, having own skills and worth valued, peer support and interaction, autonomy in valued occupations, and long-term opportunities for gains.
format	article
author	Bronwyn Simpson Michelle Villeneuve Shane Clifton
author_facet	Bronwyn Simpson Michelle Villeneuve Shane Clifton
author_sort	Bronwyn Simpson
title	Exploring well-being services from the perspective of people with SCI: A scoping review of qualitative research
title_short	Exploring well-being services from the perspective of people with SCI: A scoping review of qualitative research
title_full	Exploring well-being services from the perspective of people with SCI: A scoping review of qualitative research
title_fullStr	Exploring well-being services from the perspective of people with SCI: A scoping review of qualitative research
title_full_unstemmed	Exploring well-being services from the perspective of people with SCI: A scoping review of qualitative research
title_sort	exploring well-being services from the perspective of people with sci: a scoping review of qualitative research
publisher	Taylor & Francis Group
publishDate	2021
url	https://doaj.org/article/1ccff3f175c9465e9238aa4bc351b92d
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Exploring well-being services from the perspective of people with SCI: A scoping review of qualitative research

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