Social network participation towards enactment of self‐care in people with chronic obstructive pulmonary disease: A qualitative meta‐ethnography

Abstract Background How people with chronic obstructive pulmonary disease (COPD) engage with supportive social networks to enhance self‐care is not understood. The personal rationales for participation in socially directed support have not been addressed in the literature. To determine how people wi...

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Autores principales:	Lindsay Welch, Euan Sadler, Anthony Austin, Anne Rogers
Formato:	article
Lenguaje:	EN
Publicado:	Wiley 2021
Materias:	chronic obstructive pulmonary disease long‐term conditions management qualitative meta‐ethnography self‐care self‐management engagement Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/1cf4866bc4a6421a90b7f8688c26aae0
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spelling	oai:doaj.org-article:1cf4866bc4a6421a90b7f8688c26aae02021-11-29T13:50:52ZSocial network participation towards enactment of self‐care in people with chronic obstructive pulmonary disease: A qualitative meta‐ethnography1369-76251369-651310.1111/hex.13340https://doaj.org/article/1cf4866bc4a6421a90b7f8688c26aae02021-12-01T00:00:00Zhttps://doi.org/10.1111/hex.13340https://doaj.org/toc/1369-6513https://doaj.org/toc/1369-7625Abstract Background How people with chronic obstructive pulmonary disease (COPD) engage with supportive social networks to enhance self‐care is not understood. The personal rationales for participation in socially directed support have not been addressed in the literature. To determine how people with COPD identify, engage and participate in socially supportive self‐care practices, we conducted a systematic review and meta‐ethnography of qualitative studies. Methods A systematic literature search was conducted between June 2010 and June 2021. Of 3536 articles, 8 fulfilled the inclusion criteria. Using a meta‐ethnography approach to the qualitative synthesis, new concepts were derived from the data to identify aligning themes and develop a conceptual model. Findings Interpretations from the papers yielded concepts of (1) accountability and personal responsibility in self‐care, (2) valued positive relationships with clinicians, (3) understanding of illness through shared and personal experiences and (4) acknowledging social networks in fostering self‐care engagement in people with COPD. The independence‐experience (Index) model of synthesized (third order) interpretations highlighted the processes of social networks and self‐care practices: (a) fear or avoidance of dependency, (b) learning from experiences of adaptive self‐care behaviours and (c) including valued practices in self‐care. Self‐care strategies are formed through illness experiences and relatable social encounters. Conclusion The model derived from the third‐order interpretations is a framework to describe socially supported self‐care and can be used to direct future self‐care strategies and target interventions for people with COPD. Patient or Public Contribution The findings and model were presented to the long‐term conditions patient and public involvement group. The manuscript is coauthored by a public representative.Lindsay WelchEuan SadlerAnthony AustinAnne RogersWileyarticlechronic obstructive pulmonary diseaselong‐term conditionsmanagementqualitative meta‐ethnographyself‐careself‐management engagementMedicine (General)R5-920Public aspects of medicineRA1-1270ENHealth Expectations, Vol 24, Iss 6, Pp 1995-2012 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	chronic obstructive pulmonary disease long‐term conditions management qualitative meta‐ethnography self‐care self‐management engagement Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	chronic obstructive pulmonary disease long‐term conditions management qualitative meta‐ethnography self‐care self‐management engagement Medicine (General) R5-920 Public aspects of medicine RA1-1270 Lindsay Welch Euan Sadler Anthony Austin Anne Rogers Social network participation towards enactment of self‐care in people with chronic obstructive pulmonary disease: A qualitative meta‐ethnography
description	Abstract Background How people with chronic obstructive pulmonary disease (COPD) engage with supportive social networks to enhance self‐care is not understood. The personal rationales for participation in socially directed support have not been addressed in the literature. To determine how people with COPD identify, engage and participate in socially supportive self‐care practices, we conducted a systematic review and meta‐ethnography of qualitative studies. Methods A systematic literature search was conducted between June 2010 and June 2021. Of 3536 articles, 8 fulfilled the inclusion criteria. Using a meta‐ethnography approach to the qualitative synthesis, new concepts were derived from the data to identify aligning themes and develop a conceptual model. Findings Interpretations from the papers yielded concepts of (1) accountability and personal responsibility in self‐care, (2) valued positive relationships with clinicians, (3) understanding of illness through shared and personal experiences and (4) acknowledging social networks in fostering self‐care engagement in people with COPD. The independence‐experience (Index) model of synthesized (third order) interpretations highlighted the processes of social networks and self‐care practices: (a) fear or avoidance of dependency, (b) learning from experiences of adaptive self‐care behaviours and (c) including valued practices in self‐care. Self‐care strategies are formed through illness experiences and relatable social encounters. Conclusion The model derived from the third‐order interpretations is a framework to describe socially supported self‐care and can be used to direct future self‐care strategies and target interventions for people with COPD. Patient or Public Contribution The findings and model were presented to the long‐term conditions patient and public involvement group. The manuscript is coauthored by a public representative.
format	article
author	Lindsay Welch Euan Sadler Anthony Austin Anne Rogers
author_facet	Lindsay Welch Euan Sadler Anthony Austin Anne Rogers
author_sort	Lindsay Welch
title	Social network participation towards enactment of self‐care in people with chronic obstructive pulmonary disease: A qualitative meta‐ethnography
title_short	Social network participation towards enactment of self‐care in people with chronic obstructive pulmonary disease: A qualitative meta‐ethnography
title_full	Social network participation towards enactment of self‐care in people with chronic obstructive pulmonary disease: A qualitative meta‐ethnography
title_fullStr	Social network participation towards enactment of self‐care in people with chronic obstructive pulmonary disease: A qualitative meta‐ethnography
title_full_unstemmed	Social network participation towards enactment of self‐care in people with chronic obstructive pulmonary disease: A qualitative meta‐ethnography
title_sort	social network participation towards enactment of self‐care in people with chronic obstructive pulmonary disease: a qualitative meta‐ethnography
publisher	Wiley
publishDate	2021
url	https://doaj.org/article/1cf4866bc4a6421a90b7f8688c26aae0
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Social network participation towards enactment of self‐care in people with chronic obstructive pulmonary disease: A qualitative meta‐ethnography

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