Connecting research discovery with care delivery in dementia: the development of the Indianapolis Discovery Network for Dementia

Malaz A Boustani,1–3 Amie Frame,1,2 Stephanie Munger,1,2 Patrick Healey,4 Jessie Westlund,5 Martin Farlow,6,7 Ann Hake,8 Mary Guerriero Austrom,6,9 Polly Shepard,10 Corby Bubp,10 Jose Azar,3 Arif Nazir,3 Nadia Adams,11 Noll L Campbell,1,2,12,13 Azita Chehresa,5 Paul Dexter2,31Indiana Unive...

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Autores principales: Boustani MA, Frame A, Munger S, Healey P, Westlund J, Farlow M, Hake A, Austrom MG, Shepard P, Bubp C, Azar J, Nazir A, Adams N, Campbell NL, Chehresa A, Dexter P
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Publicado: Dove Medical Press 2012
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spelling oai:doaj.org-article:1f332bdbdbb449c292c9ddaf19e593212021-12-02T07:19:49ZConnecting research discovery with care delivery in dementia: the development of the Indianapolis Discovery Network for Dementia1178-1998https://doaj.org/article/1f332bdbdbb449c292c9ddaf19e593212012-11-01T00:00:00Zhttps://www.dovepress.com/connecting-research-discovery-with-care-delivery-in-dementia-the-devel-peer-reviewed-article-CIAhttps://doaj.org/toc/1178-1998Malaz A Boustani,1–3 Amie Frame,1,2 Stephanie Munger,1,2 Patrick Healey,4 Jessie Westlund,5 Martin Farlow,6,7 Ann Hake,8 Mary Guerriero Austrom,6,9 Polly Shepard,10 Corby Bubp,10 Jose Azar,3 Arif Nazir,3 Nadia Adams,11 Noll L Campbell,1,2,12,13 Azita Chehresa,5 Paul Dexter2,31Indiana University Center for Aging Research, 2Regenstrief Institute, Inc, 3Department of Medicine, Indiana University School of Medicine (IUSM), 4St Vincent Health Network, 5Community Health Network, 6Indiana Alzheimer Disease Center, IUSM, 7Department of Neurology, IUSM, 8Eli Lilly and Company, 9Department of Psychiatry, IUSM, 10The Memory Clinic of Indianapolis, 11Indiana University Health, Indianapolis, IN, USA; 12Department of Pharmacy Practice, Purdue University College of Pharmacy, West Lafayette, IN, USA; 13Department of Pharmacy, Wishard Health Services, Indianapolis, IN, USABackground: The US Institute of Medicine has recommended an integrated, locally sensitive collaboration among the various members of the community, health care systems, and research organizations to improve dementia care and dementia research.Methods: Using complex adaptive system theory and reflective adaptive process, we developed a professional network called the “Indianapolis Discovery Network for Dementia” (IDND). The IDND facilitates effective and sustainable interactions among a local and diverse group of dementia researchers, clinical providers, and community advocates interested in improving care for dementia patients in Indianapolis, Indiana.Results: The IDND was established in February 2006 and now includes more than 250 members from more than 30 local (central Indiana) organizations representing 20 disciplines. The network uses two types of communication to connect its members. The first is a 2-hour face-to-face bimonthly meeting open to all members. The second is a web-based resource center (http://www.indydiscoverynetwork.org). To date, the network has: (1) accomplished the development of a network website with an annual average of 12,711 hits per day; (2) produced clinical tools such as the Healthy Aging Brain Care Monitor and the Anticholinergic Cognitive Burden Scale; (3) translated and implemented the collaborative dementia care model into two local health care systems; (4) created web-based tracking software, the Enhanced Medical Record for Aging Brain Care (eMR-ABC), to support care coordination for patients with dementia; (5) received more than USD$24 million in funding for members for dementia-related research studies; and (6) adopted a new group-based problem-solving process called the “IDND consultancy round.”Conclusion: A local interdisciplinary “think-tank” network focused on dementia that promotes collaboration in research projects, educational initiatives, and quality improvement efforts that meet the local research, clinical, and community needs relevant to dementia care has been built.Keywords: cognitive impairment, community research, translational research, complex adaptive systemBoustani MAFrame AMunger SHealey PWestlund JFarlow MHake AAustrom MGShepard PBubp CAzar JNazir AAdams NCampbell NLChehresa ADexter PDove Medical Pressarticledementiacognitive impairmentnetworkcommunity researchtranslational researchcomplex adaptive systemGeriatricsRC952-954.6ENClinical Interventions in Aging, Vol Volume 7, Pp 509-516 (2012)
institution DOAJ
collection DOAJ
language EN
topic dementia
cognitive impairment
network
community research
translational research
complex adaptive system
Geriatrics
RC952-954.6
spellingShingle dementia
cognitive impairment
network
community research
translational research
complex adaptive system
Geriatrics
RC952-954.6
Boustani MA
Frame A
Munger S
Healey P
Westlund J
Farlow M
Hake A
Austrom MG
Shepard P
Bubp C
Azar J
Nazir A
Adams N
Campbell NL
Chehresa A
Dexter P
Connecting research discovery with care delivery in dementia: the development of the Indianapolis Discovery Network for Dementia
description Malaz A Boustani,1–3 Amie Frame,1,2 Stephanie Munger,1,2 Patrick Healey,4 Jessie Westlund,5 Martin Farlow,6,7 Ann Hake,8 Mary Guerriero Austrom,6,9 Polly Shepard,10 Corby Bubp,10 Jose Azar,3 Arif Nazir,3 Nadia Adams,11 Noll L Campbell,1,2,12,13 Azita Chehresa,5 Paul Dexter2,31Indiana University Center for Aging Research, 2Regenstrief Institute, Inc, 3Department of Medicine, Indiana University School of Medicine (IUSM), 4St Vincent Health Network, 5Community Health Network, 6Indiana Alzheimer Disease Center, IUSM, 7Department of Neurology, IUSM, 8Eli Lilly and Company, 9Department of Psychiatry, IUSM, 10The Memory Clinic of Indianapolis, 11Indiana University Health, Indianapolis, IN, USA; 12Department of Pharmacy Practice, Purdue University College of Pharmacy, West Lafayette, IN, USA; 13Department of Pharmacy, Wishard Health Services, Indianapolis, IN, USABackground: The US Institute of Medicine has recommended an integrated, locally sensitive collaboration among the various members of the community, health care systems, and research organizations to improve dementia care and dementia research.Methods: Using complex adaptive system theory and reflective adaptive process, we developed a professional network called the “Indianapolis Discovery Network for Dementia” (IDND). The IDND facilitates effective and sustainable interactions among a local and diverse group of dementia researchers, clinical providers, and community advocates interested in improving care for dementia patients in Indianapolis, Indiana.Results: The IDND was established in February 2006 and now includes more than 250 members from more than 30 local (central Indiana) organizations representing 20 disciplines. The network uses two types of communication to connect its members. The first is a 2-hour face-to-face bimonthly meeting open to all members. The second is a web-based resource center (http://www.indydiscoverynetwork.org). To date, the network has: (1) accomplished the development of a network website with an annual average of 12,711 hits per day; (2) produced clinical tools such as the Healthy Aging Brain Care Monitor and the Anticholinergic Cognitive Burden Scale; (3) translated and implemented the collaborative dementia care model into two local health care systems; (4) created web-based tracking software, the Enhanced Medical Record for Aging Brain Care (eMR-ABC), to support care coordination for patients with dementia; (5) received more than USD$24 million in funding for members for dementia-related research studies; and (6) adopted a new group-based problem-solving process called the “IDND consultancy round.”Conclusion: A local interdisciplinary “think-tank” network focused on dementia that promotes collaboration in research projects, educational initiatives, and quality improvement efforts that meet the local research, clinical, and community needs relevant to dementia care has been built.Keywords: cognitive impairment, community research, translational research, complex adaptive system
format article
author Boustani MA
Frame A
Munger S
Healey P
Westlund J
Farlow M
Hake A
Austrom MG
Shepard P
Bubp C
Azar J
Nazir A
Adams N
Campbell NL
Chehresa A
Dexter P
author_facet Boustani MA
Frame A
Munger S
Healey P
Westlund J
Farlow M
Hake A
Austrom MG
Shepard P
Bubp C
Azar J
Nazir A
Adams N
Campbell NL
Chehresa A
Dexter P
author_sort Boustani MA
title Connecting research discovery with care delivery in dementia: the development of the Indianapolis Discovery Network for Dementia
title_short Connecting research discovery with care delivery in dementia: the development of the Indianapolis Discovery Network for Dementia
title_full Connecting research discovery with care delivery in dementia: the development of the Indianapolis Discovery Network for Dementia
title_fullStr Connecting research discovery with care delivery in dementia: the development of the Indianapolis Discovery Network for Dementia
title_full_unstemmed Connecting research discovery with care delivery in dementia: the development of the Indianapolis Discovery Network for Dementia
title_sort connecting research discovery with care delivery in dementia: the development of the indianapolis discovery network for dementia
publisher Dove Medical Press
publishDate 2012
url https://doaj.org/article/1f332bdbdbb449c292c9ddaf19e59321
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