Are we walking the talk of participatory Indigenous health research? A scoping review of the literature in Atlantic Canada.

<h4>Introduction</h4>Participatory research involving community engagement is considered the gold standard in Indigenous health research. However, it is sometimes unclear whether and how Indigenous communities are engaged in research that impacts them, and whether and how engagement is r...

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Autores principales:	Kathleen Murphy, Karina Branje, Tara White, Ashlee Cunsolo, Margot Latimer, Jane McMillan, John R Sylliboy, Shelley McKibbon, Debbie Martin
Formato:	article
Lenguaje:	EN
Publicado:	Public Library of Science (PLoS) 2021
Materias:	Medicine R Science Q
Acceso en línea:	https://doaj.org/article/1fe5dea22e1b40a3bfdf6326fdc1fb0a
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spelling	oai:doaj.org-article:1fe5dea22e1b40a3bfdf6326fdc1fb0a2021-12-02T20:06:23ZAre we walking the talk of participatory Indigenous health research? A scoping review of the literature in Atlantic Canada.1932-620310.1371/journal.pone.0255265https://doaj.org/article/1fe5dea22e1b40a3bfdf6326fdc1fb0a2021-01-01T00:00:00Zhttps://doi.org/10.1371/journal.pone.0255265https://doaj.org/toc/1932-6203<h4>Introduction</h4>Participatory research involving community engagement is considered the gold standard in Indigenous health research. However, it is sometimes unclear whether and how Indigenous communities are engaged in research that impacts them, and whether and how engagement is reported. Indigenous health research varies in its degree of community engagement from minimal involvement to being community-directed and led. Research led and directed by Indigenous communities can support reconciliation and reclamation in Canada and globally, however clearer reporting and understandings of community-led research is needed. This scoping review assesses (a) how and to what extent researchers are reporting community engagement in Indigenous health research in Atlantic Canada, and (b) what recommendations exist in the literature regarding participatory and community-led research.<h4>Methods</h4>Eleven databases were searched using keywords for Indigeneity, geographic regions, health, and Indigenous communities in Atlantic Canada between 2001-June 2020. Records were independently screened by two reviewers and were included if they were: peer-reviewed; written in English; health-related; and focused on Atlantic Canada. Data were extracted using a piloted data charting form, and a descriptive and thematic analysis was performed. 211 articles were retained for inclusion.<h4>Results</h4>Few empirical articles reported community engagement in all aspects of the research process. Most described incorporating community engagement at the project's onset and/or during data collection; only a few articles explicitly identified as entirely community-directed or led. Results revealed a gap in reported capacity-building for both Indigenous communities and researchers, necessary for holistic community engagement. Also revealed was the need for funding bodies, ethics boards, and peer review processes to better facilitate participatory and community-led Indigenous health research.<h4>Conclusion</h4>As Indigenous communities continue reclaiming sovereignty over identities and territories, participatory research must involve substantive, agreed-upon involvement of Indigenous communities, with community-directed and led research as the ultimate goal.Kathleen MurphyKarina BranjeTara WhiteAshlee CunsoloMargot LatimerJane McMillanJohn R SylliboyShelley McKibbonDebbie MartinPublic Library of Science (PLoS)articleMedicineRScienceQENPLoS ONE, Vol 16, Iss 7, p e0255265 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Medicine R Science Q
spellingShingle	Medicine R Science Q Kathleen Murphy Karina Branje Tara White Ashlee Cunsolo Margot Latimer Jane McMillan John R Sylliboy Shelley McKibbon Debbie Martin Are we walking the talk of participatory Indigenous health research? A scoping review of the literature in Atlantic Canada.
description	<h4>Introduction</h4>Participatory research involving community engagement is considered the gold standard in Indigenous health research. However, it is sometimes unclear whether and how Indigenous communities are engaged in research that impacts them, and whether and how engagement is reported. Indigenous health research varies in its degree of community engagement from minimal involvement to being community-directed and led. Research led and directed by Indigenous communities can support reconciliation and reclamation in Canada and globally, however clearer reporting and understandings of community-led research is needed. This scoping review assesses (a) how and to what extent researchers are reporting community engagement in Indigenous health research in Atlantic Canada, and (b) what recommendations exist in the literature regarding participatory and community-led research.<h4>Methods</h4>Eleven databases were searched using keywords for Indigeneity, geographic regions, health, and Indigenous communities in Atlantic Canada between 2001-June 2020. Records were independently screened by two reviewers and were included if they were: peer-reviewed; written in English; health-related; and focused on Atlantic Canada. Data were extracted using a piloted data charting form, and a descriptive and thematic analysis was performed. 211 articles were retained for inclusion.<h4>Results</h4>Few empirical articles reported community engagement in all aspects of the research process. Most described incorporating community engagement at the project's onset and/or during data collection; only a few articles explicitly identified as entirely community-directed or led. Results revealed a gap in reported capacity-building for both Indigenous communities and researchers, necessary for holistic community engagement. Also revealed was the need for funding bodies, ethics boards, and peer review processes to better facilitate participatory and community-led Indigenous health research.<h4>Conclusion</h4>As Indigenous communities continue reclaiming sovereignty over identities and territories, participatory research must involve substantive, agreed-upon involvement of Indigenous communities, with community-directed and led research as the ultimate goal.
format	article
author	Kathleen Murphy Karina Branje Tara White Ashlee Cunsolo Margot Latimer Jane McMillan John R Sylliboy Shelley McKibbon Debbie Martin
author_facet	Kathleen Murphy Karina Branje Tara White Ashlee Cunsolo Margot Latimer Jane McMillan John R Sylliboy Shelley McKibbon Debbie Martin
author_sort	Kathleen Murphy
title	Are we walking the talk of participatory Indigenous health research? A scoping review of the literature in Atlantic Canada.
title_short	Are we walking the talk of participatory Indigenous health research? A scoping review of the literature in Atlantic Canada.
title_full	Are we walking the talk of participatory Indigenous health research? A scoping review of the literature in Atlantic Canada.
title_fullStr	Are we walking the talk of participatory Indigenous health research? A scoping review of the literature in Atlantic Canada.
title_full_unstemmed	Are we walking the talk of participatory Indigenous health research? A scoping review of the literature in Atlantic Canada.
title_sort	are we walking the talk of participatory indigenous health research? a scoping review of the literature in atlantic canada.
publisher	Public Library of Science (PLoS)
publishDate	2021
url	https://doaj.org/article/1fe5dea22e1b40a3bfdf6326fdc1fb0a
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Are we walking the talk of participatory Indigenous health research? A scoping review of the literature in Atlantic Canada.

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