The Evaluation of Parental Acceptance Towards Children with Sex Chromosomal Disorders of Sex Development Using A Mixed-Method

Background: Sex chromosomal Disorder of sex development (DSD) is an atypical abnormality of external genitalia which is mismatched with its sex chromosome traits. The condition of children with DSD affects the dynamics in the family. Parents’ reactions after discovering this health problem vary grea...

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Autores principales:	Iit Fitrianingrum, Annastasia Ediati, Tri Indah Winarni, Sultana MH Faradz
Formato:	article
Lenguaje:	EN
Publicado:	Diponegoro University 2021
Materias:	mosaic sex chromosome disorders of sex development parental acceptance indonesia Medicine (General) R5-920
Acceso en línea:	https://doaj.org/article/205d48c05beb4f8cad1ab7ff1a006956
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spelling	oai:doaj.org-article:205d48c05beb4f8cad1ab7ff1a0069562021-11-05T16:47:43ZThe Evaluation of Parental Acceptance Towards Children with Sex Chromosomal Disorders of Sex Development Using A Mixed-Method2503-217810.14710/jbtr.v7i1.10710https://doaj.org/article/205d48c05beb4f8cad1ab7ff1a0069562021-04-01T00:00:00Zhttps://ejournal2.undip.ac.id/index.php/jbtr/article/view/10710https://doaj.org/toc/2503-2178Background: Sex chromosomal Disorder of sex development (DSD) is an atypical abnormality of external genitalia which is mismatched with its sex chromosome traits. The condition of children with DSD affects the dynamics in the family. Parents’ reactions after discovering this health problem vary greatly, such as being in a state of shock, confusion, or self-blame. However, parents’ acceptance is extremely important for better quality of caring, to the healthy social and emotional child development, and to make the best decisions regarding gender assignment. Objective: To describe the acceptance process of parents that have children with sex chromosomes mosaicism DSD. Methods: This study used a mixed-method with a sequential explanatory approach, which was preceded by quantitative data collection followed by qualitative. The total respondents consisted of 14 mothers and 12 fathers of 14 sex chromosome mosaicism DSD patients with XX/XY, X/XY, XYY or XXY variants. Quantitative data were collected using the Indonesian version of the Parental Acceptance-Rejection Questionnaire (PARQ), and interviews were conducted to determine the acceptance process. Results: Most acceptance cases were based on the surgical stage completion in which a higher number of mothers (71.43%) than fathers (50%). Conclusion: It is uneasy for parents to accept children with sex chromosome mosaicisms DSD, hence the fathers struggle more than mothers in accepting those affected. To the best of our knowledge this is the first study in Indonesia to help parent understand and accept their child condition.Iit FitrianingrumAnnastasia EdiatiTri Indah WinarniSultana MH FaradzDiponegoro Universityarticlemosaic sex chromosomedisorders of sex developmentparental acceptanceindonesiaMedicine (General)R5-920ENJournal of Biomedicine and Translational Research, Vol 7, Iss 1, Pp 14-21 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	mosaic sex chromosome disorders of sex development parental acceptance indonesia Medicine (General) R5-920
spellingShingle	mosaic sex chromosome disorders of sex development parental acceptance indonesia Medicine (General) R5-920 Iit Fitrianingrum Annastasia Ediati Tri Indah Winarni Sultana MH Faradz The Evaluation of Parental Acceptance Towards Children with Sex Chromosomal Disorders of Sex Development Using A Mixed-Method
description	Background: Sex chromosomal Disorder of sex development (DSD) is an atypical abnormality of external genitalia which is mismatched with its sex chromosome traits. The condition of children with DSD affects the dynamics in the family. Parents’ reactions after discovering this health problem vary greatly, such as being in a state of shock, confusion, or self-blame. However, parents’ acceptance is extremely important for better quality of caring, to the healthy social and emotional child development, and to make the best decisions regarding gender assignment. Objective: To describe the acceptance process of parents that have children with sex chromosomes mosaicism DSD. Methods: This study used a mixed-method with a sequential explanatory approach, which was preceded by quantitative data collection followed by qualitative. The total respondents consisted of 14 mothers and 12 fathers of 14 sex chromosome mosaicism DSD patients with XX/XY, X/XY, XYY or XXY variants. Quantitative data were collected using the Indonesian version of the Parental Acceptance-Rejection Questionnaire (PARQ), and interviews were conducted to determine the acceptance process. Results: Most acceptance cases were based on the surgical stage completion in which a higher number of mothers (71.43%) than fathers (50%). Conclusion: It is uneasy for parents to accept children with sex chromosome mosaicisms DSD, hence the fathers struggle more than mothers in accepting those affected. To the best of our knowledge this is the first study in Indonesia to help parent understand and accept their child condition.
format	article
author	Iit Fitrianingrum Annastasia Ediati Tri Indah Winarni Sultana MH Faradz
author_facet	Iit Fitrianingrum Annastasia Ediati Tri Indah Winarni Sultana MH Faradz
author_sort	Iit Fitrianingrum
title	The Evaluation of Parental Acceptance Towards Children with Sex Chromosomal Disorders of Sex Development Using A Mixed-Method
title_short	The Evaluation of Parental Acceptance Towards Children with Sex Chromosomal Disorders of Sex Development Using A Mixed-Method
title_full	The Evaluation of Parental Acceptance Towards Children with Sex Chromosomal Disorders of Sex Development Using A Mixed-Method
title_fullStr	The Evaluation of Parental Acceptance Towards Children with Sex Chromosomal Disorders of Sex Development Using A Mixed-Method
title_full_unstemmed	The Evaluation of Parental Acceptance Towards Children with Sex Chromosomal Disorders of Sex Development Using A Mixed-Method
title_sort	evaluation of parental acceptance towards children with sex chromosomal disorders of sex development using a mixed-method
publisher	Diponegoro University
publishDate	2021
url	https://doaj.org/article/205d48c05beb4f8cad1ab7ff1a006956
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The Evaluation of Parental Acceptance Towards Children with Sex Chromosomal Disorders of Sex Development Using A Mixed-Method

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