Components of quality of life in hemodialysis patients from family caregivers’ perspective: a qualitative study

Abstract Background Patients with end-stage kidney disease experience serious complications which affect their lives. Few studies have investigated the patients’ quality of life qualitatively from the perspective of family caregivers as the closest individuals to the patients. The family caregivers...

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Autores principales:	Sima Sadat Hejazi, Meimanat Hosseini, Abbas Ebadi, Hamid Alavi Majd
Formato:	article
Lenguaje:	EN
Publicado:	BMC 2021
Materias:	Caregivers End-stage kidney disease Hemodialysis Quality of life Diseases of the genitourinary system. Urology RC870-923
Acceso en línea:	https://doaj.org/article/2082b199578c487da01b9b47b8635d02
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spelling	oai:doaj.org-article:2082b199578c487da01b9b47b8635d022021-11-14T12:43:48ZComponents of quality of life in hemodialysis patients from family caregivers’ perspective: a qualitative study10.1186/s12882-021-02584-81471-2369https://doaj.org/article/2082b199578c487da01b9b47b8635d022021-11-01T00:00:00Zhttps://doi.org/10.1186/s12882-021-02584-8https://doaj.org/toc/1471-2369Abstract Background Patients with end-stage kidney disease experience serious complications which affect their lives. Few studies have investigated the patients’ quality of life qualitatively from the perspective of family caregivers as the closest individuals to the patients. The family caregivers are directly involved in the patients’ disease progression and observe the changes, problems, and complications of disease and hemodialysis. This study aimed to explain the components of quality of life in hemodialysis patients from the family caregivers’ perspective. Methods In this qualitative inductive content analysis, 16 family caregivers of hemodialysis patients, presenting to the teaching hospitals of Tehran, Iran, were enrolled via maximum-variation purposive sampling; sampling continued until reaching data saturation. The data collection method included in-depth semi-structured interviews. Also, an inductive content analysis was carried out based on Elo and Kyngas’ method. Results A total of 311 codes, 19 subcategories, eight generic categories, and three main categories were extracted in this study. The main (and the generic categories) included mental and psychological problems (depressive mood, incompatibility and reduced tolerance, mental exhaustion, and deprivation of basic needs), social disruption (social isolation and social threats), and physical problems (general complications and disabilities and defects in the normal functioning of organs). Conclusion Family caregivers can be valuable information sources for formal caregivers to plan treatment for chronically ill patients who are mainly cared for at home. The present results can help us increase the existing knowledge on the impact of end-stage kidney disease and hemodialysis on the patients’ quality of life. It seems that addressing the issues related to quality of life, mentioned by the caregivers, can positively affect the patients’ quality of life and even reduce the caregivers’ burden.Sima Sadat HejaziMeimanat HosseiniAbbas EbadiHamid Alavi MajdBMCarticleCaregiversEnd-stage kidney diseaseHemodialysisQuality of lifeDiseases of the genitourinary system. UrologyRC870-923ENBMC Nephrology, Vol 22, Iss 1, Pp 1-10 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Caregivers End-stage kidney disease Hemodialysis Quality of life Diseases of the genitourinary system. Urology RC870-923
spellingShingle	Caregivers End-stage kidney disease Hemodialysis Quality of life Diseases of the genitourinary system. Urology RC870-923 Sima Sadat Hejazi Meimanat Hosseini Abbas Ebadi Hamid Alavi Majd Components of quality of life in hemodialysis patients from family caregivers’ perspective: a qualitative study
description	Abstract Background Patients with end-stage kidney disease experience serious complications which affect their lives. Few studies have investigated the patients’ quality of life qualitatively from the perspective of family caregivers as the closest individuals to the patients. The family caregivers are directly involved in the patients’ disease progression and observe the changes, problems, and complications of disease and hemodialysis. This study aimed to explain the components of quality of life in hemodialysis patients from the family caregivers’ perspective. Methods In this qualitative inductive content analysis, 16 family caregivers of hemodialysis patients, presenting to the teaching hospitals of Tehran, Iran, were enrolled via maximum-variation purposive sampling; sampling continued until reaching data saturation. The data collection method included in-depth semi-structured interviews. Also, an inductive content analysis was carried out based on Elo and Kyngas’ method. Results A total of 311 codes, 19 subcategories, eight generic categories, and three main categories were extracted in this study. The main (and the generic categories) included mental and psychological problems (depressive mood, incompatibility and reduced tolerance, mental exhaustion, and deprivation of basic needs), social disruption (social isolation and social threats), and physical problems (general complications and disabilities and defects in the normal functioning of organs). Conclusion Family caregivers can be valuable information sources for formal caregivers to plan treatment for chronically ill patients who are mainly cared for at home. The present results can help us increase the existing knowledge on the impact of end-stage kidney disease and hemodialysis on the patients’ quality of life. It seems that addressing the issues related to quality of life, mentioned by the caregivers, can positively affect the patients’ quality of life and even reduce the caregivers’ burden.
format	article
author	Sima Sadat Hejazi Meimanat Hosseini Abbas Ebadi Hamid Alavi Majd
author_facet	Sima Sadat Hejazi Meimanat Hosseini Abbas Ebadi Hamid Alavi Majd
author_sort	Sima Sadat Hejazi
title	Components of quality of life in hemodialysis patients from family caregivers’ perspective: a qualitative study
title_short	Components of quality of life in hemodialysis patients from family caregivers’ perspective: a qualitative study
title_full	Components of quality of life in hemodialysis patients from family caregivers’ perspective: a qualitative study
title_fullStr	Components of quality of life in hemodialysis patients from family caregivers’ perspective: a qualitative study
title_full_unstemmed	Components of quality of life in hemodialysis patients from family caregivers’ perspective: a qualitative study
title_sort	components of quality of life in hemodialysis patients from family caregivers’ perspective: a qualitative study
publisher	BMC
publishDate	2021
url	https://doaj.org/article/2082b199578c487da01b9b47b8635d02
work_keys_str_mv	AT simasadathejazi componentsofqualityoflifeinhemodialysispatientsfromfamilycaregiversperspectiveaqualitativestudy AT meimanathosseini componentsofqualityoflifeinhemodialysispatientsfromfamilycaregiversperspectiveaqualitativestudy AT abbasebadi componentsofqualityoflifeinhemodialysispatientsfromfamilycaregiversperspectiveaqualitativestudy AT hamidalavimajd componentsofqualityoflifeinhemodialysispatientsfromfamilycaregiversperspectiveaqualitativestudy
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Components of quality of life in hemodialysis patients from family caregivers’ perspective: a qualitative study

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