Development and evaluation of a virtual patient-centered outcomes research training program for the cystic fibrosis community
Plain English Summary Cystic fibrosis (CF) is a rare, genetic disease; meaning people are born with the disease and have it throughout their lives. CF is a multi-system disease, primarily affecting the respiratory system. Daily care for people with CF (PwCF) includes taking many medications and brea...
Guardado en:
Autores principales: | Emily M. Godfrey, Erin K. Thayer, Laura Mentch, Traci M. Kazmerski, Georgia Brown, Molly Pam, Morhaf Al Achkar |
---|---|
Formato: | article |
Lenguaje: | EN |
Publicado: |
BMC
2021
|
Materias: | |
Acceso en línea: | https://doaj.org/article/262f5803f8154e52bf9ae99b4c9d3b53 |
Etiquetas: |
Agregar Etiqueta
Sin Etiquetas, Sea el primero en etiquetar este registro!
|
Ejemplares similares
- Journal of cystic fibrosis
-
Patient and Provider Experience With Cystic Fibrosis Telemedicine Clinic
por: Kalen Hendra, et al.
Publicado: (2021) -
Liver disease in cystic fibrosis
por: Tombazzi,Claudio R, et al.
Publicado: (2001) -
Hearing the patient voice: Using video intervention/prevention assessment to understand teens with cystic fibrosis
por: Susan Horky, et al.
Publicado: (2014) -
Cystic fibrosis-related diabetes: The patient perspective
por: Kelly A. Mason, et al.
Publicado: (2021)