Co-production of the quality of patient-centered outcomes research partnerships instrument for people with mental health conditions
Mounting scientific evidence over the past decades in the field of psychiatry has shown community engagement in research produces more relevant research, increased uptake of research findings, and better clinical outcomes. Despite the need for the integration of community engagement methodologies in...
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The Beryl Institute
2021
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oai:doaj.org-article:27f4af5fb3ed41fc98f434aa5667cde92021-11-15T04:33:47ZCo-production of the quality of patient-centered outcomes research partnerships instrument for people with mental health conditions2372-0247https://doaj.org/article/27f4af5fb3ed41fc98f434aa5667cde92021-04-01T00:00:00Zhttps://pxjournal.org/journal/vol8/iss1/17https://doaj.org/toc/2372-0247Mounting scientific evidence over the past decades in the field of psychiatry has shown community engagement in research produces more relevant research, increased uptake of research findings, and better clinical outcomes. Despite the need for the integration of community engagement methodologies into the scientific method, doctoral and master's level competencies in the field of psychiatry commonly do not include dedicated training or coursework on community engagement methodologies. Without appropriate training or research experience, attempts to facilitate community engagement are often ineffective and burdensome and leave stakeholders feeling disenfranchised. The goal of this study was to co-produce an instrument designed to improve the quality of community engagement research practices by measuring the degree to which researchers have partnered with psychiatric patient stakeholders. The development of the <em>Quality of Patient-Centered Outcomes Research Partnerships Instrument </em>included an iterative co-production process with psychiatric patient stakeholders and scientists, including item formulation, followed by two phases of cognitive interviews with psychiatric patient stakeholders to assess and refine instrument items. A pilot study was conducted to assess acceptability and feasibility. The pilot study of the <em>Patient-Centered Outcomes Research Partnerships Instrument </em>suggested feasibility and acceptability among psychiatric patient stakeholders. The <em>Quality of Patient-Centered Outcomes Research Partnerships Instrument </em>may be a valuable tool to enhance the quality of community engagement research practices within the field of psychiatry. <strong>Experience Framework</strong> This article is associated with the Innovation & Technology lens of The Beryl Institute Experience Framework (<a href="https://www.theberylinstitute.org/ExperienceFramework">https://www.theberylinstitute.org/ExperienceFramework</a>). <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Innovation%20%26%20Technology%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-InnovationTechnology">Access other resources</a> related to this lens</li> </ul>Karen FortunaAmanda MyersJessica BrooksCaroline Collins-PisanoSkyla MarceauSarah PrattKathy LyonsRobert WalkerShavon ThompsonKaycie GreeneWillie PringleKatina CarterThe Beryl Institutearticleco-productionpatient-centeredmental health conditionsmental healthMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2021) |
| institution |
DOAJ |
| collection |
DOAJ |
| language |
EN |
| topic |
co-production patient-centered mental health conditions mental health Medicine (General) R5-920 Public aspects of medicine RA1-1270 |
| spellingShingle |
co-production patient-centered mental health conditions mental health Medicine (General) R5-920 Public aspects of medicine RA1-1270 Karen Fortuna Amanda Myers Jessica Brooks Caroline Collins-Pisano Skyla Marceau Sarah Pratt Kathy Lyons Robert Walker Shavon Thompson Kaycie Greene Willie Pringle Katina Carter Co-production of the quality of patient-centered outcomes research partnerships instrument for people with mental health conditions |
| description |
Mounting scientific evidence over the past decades in the field of psychiatry has shown community engagement in research produces more relevant research, increased uptake of research findings, and better clinical outcomes. Despite the need for the integration of community engagement methodologies into the scientific method, doctoral and master's level competencies in the field of psychiatry commonly do not include dedicated training or coursework on community engagement methodologies. Without appropriate training or research experience, attempts to facilitate community engagement are often ineffective and burdensome and leave stakeholders feeling disenfranchised. The goal of this study was to co-produce an instrument designed to improve the quality of community engagement research practices by measuring the degree to which researchers have partnered with psychiatric patient stakeholders. The development of the <em>Quality of Patient-Centered Outcomes Research Partnerships Instrument </em>included an iterative co-production process with psychiatric patient stakeholders and scientists, including item formulation, followed by two phases of cognitive interviews with psychiatric patient stakeholders to assess and refine instrument items. A pilot study was conducted to assess acceptability and feasibility. The pilot study of the <em>Patient-Centered Outcomes Research Partnerships Instrument </em>suggested feasibility and acceptability among psychiatric patient stakeholders. The <em>Quality of Patient-Centered Outcomes Research Partnerships Instrument </em>may be a valuable tool to enhance the quality of community engagement research practices within the field of psychiatry.
<strong>Experience Framework</strong>
This article is associated with the Innovation & Technology lens of The Beryl Institute Experience Framework (<a href="https://www.theberylinstitute.org/ExperienceFramework">https://www.theberylinstitute.org/ExperienceFramework</a>). <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Innovation%20%26%20Technology%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-InnovationTechnology">Access other resources</a> related to this lens</li> </ul> |
| format |
article |
| author |
Karen Fortuna Amanda Myers Jessica Brooks Caroline Collins-Pisano Skyla Marceau Sarah Pratt Kathy Lyons Robert Walker Shavon Thompson Kaycie Greene Willie Pringle Katina Carter |
| author_facet |
Karen Fortuna Amanda Myers Jessica Brooks Caroline Collins-Pisano Skyla Marceau Sarah Pratt Kathy Lyons Robert Walker Shavon Thompson Kaycie Greene Willie Pringle Katina Carter |
| author_sort |
Karen Fortuna |
| title |
Co-production of the quality of patient-centered outcomes research partnerships instrument for people with mental health conditions |
| title_short |
Co-production of the quality of patient-centered outcomes research partnerships instrument for people with mental health conditions |
| title_full |
Co-production of the quality of patient-centered outcomes research partnerships instrument for people with mental health conditions |
| title_fullStr |
Co-production of the quality of patient-centered outcomes research partnerships instrument for people with mental health conditions |
| title_full_unstemmed |
Co-production of the quality of patient-centered outcomes research partnerships instrument for people with mental health conditions |
| title_sort |
co-production of the quality of patient-centered outcomes research partnerships instrument for people with mental health conditions |
| publisher |
The Beryl Institute |
| publishDate |
2021 |
| url |
https://doaj.org/article/27f4af5fb3ed41fc98f434aa5667cde9 |
| work_keys_str_mv |
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