Advance care planning in adult congenital heart disease: Unique approaches for a unique population

Recommendations for advance care planning in adults with congenital heart disease were recently published, reinforcing the role of advance care planning as an essential component of patient-centered care. In significant ways, the adult congenital heart disease population differs from the “typical” e...

Descripción completa

Guardado en:

Detalles Bibliográficos
Autores principales:	Adam J. Small, Daniel Karlin, Chandra Jain, Jill M. Steiner, Leigh C. Reardon
Formato:	article
Lenguaje:	EN
Publicado:	Elsevier 2021
Materias:	Advance care planning Palliative care Adult congenital heart disease Patient centered care Diseases of the circulatory (Cardiovascular) system RC666-701
Acceso en línea:	https://doaj.org/article/28c0678149ab47a8b94df7474dd2add7
Etiquetas:	Agregar Etiqueta Sin Etiquetas, Sea el primero en etiquetar este registro!

id	oai:doaj.org-article:28c0678149ab47a8b94df7474dd2add7
record_format	dspace
spelling	oai:doaj.org-article:28c0678149ab47a8b94df7474dd2add72021-11-06T04:37:39ZAdvance care planning in adult congenital heart disease: Unique approaches for a unique population2666-668510.1016/j.ijcchd.2021.100203https://doaj.org/article/28c0678149ab47a8b94df7474dd2add72021-10-01T00:00:00Zhttp://www.sciencedirect.com/science/article/pii/S2666668521001270https://doaj.org/toc/2666-6685Recommendations for advance care planning in adults with congenital heart disease were recently published, reinforcing the role of advance care planning as an essential component of patient-centered care. In significant ways, the adult congenital heart disease population differs from the “typical” elderly population about whom much of the palliative care literature is written. Herein we report the results of a multidisciplinary conference focusing on the unique nature of this population and their needs for advance care planning. First, we describe the characteristics of adults with congenital heart disease that set them apart, including childhood illness and early interactions with the healthcare system. Then we give tailored recommendations to providers for how to effectively elicit their patients’ goals and values, in order to counsel them about the future.Adam J. SmallDaniel KarlinChandra JainJill M. SteinerLeigh C. ReardonElsevierarticleAdvance care planningPalliative careAdult congenital heart diseasePatient centered careDiseases of the circulatory (Cardiovascular) systemRC666-701ENInternational Journal of Cardiology Congenital Heart Disease, Vol 5, Iss , Pp 100203- (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Advance care planning Palliative care Adult congenital heart disease Patient centered care Diseases of the circulatory (Cardiovascular) system RC666-701
spellingShingle	Advance care planning Palliative care Adult congenital heart disease Patient centered care Diseases of the circulatory (Cardiovascular) system RC666-701 Adam J. Small Daniel Karlin Chandra Jain Jill M. Steiner Leigh C. Reardon Advance care planning in adult congenital heart disease: Unique approaches for a unique population
description	Recommendations for advance care planning in adults with congenital heart disease were recently published, reinforcing the role of advance care planning as an essential component of patient-centered care. In significant ways, the adult congenital heart disease population differs from the “typical” elderly population about whom much of the palliative care literature is written. Herein we report the results of a multidisciplinary conference focusing on the unique nature of this population and their needs for advance care planning. First, we describe the characteristics of adults with congenital heart disease that set them apart, including childhood illness and early interactions with the healthcare system. Then we give tailored recommendations to providers for how to effectively elicit their patients’ goals and values, in order to counsel them about the future.
format	article
author	Adam J. Small Daniel Karlin Chandra Jain Jill M. Steiner Leigh C. Reardon
author_facet	Adam J. Small Daniel Karlin Chandra Jain Jill M. Steiner Leigh C. Reardon
author_sort	Adam J. Small
title	Advance care planning in adult congenital heart disease: Unique approaches for a unique population
title_short	Advance care planning in adult congenital heart disease: Unique approaches for a unique population
title_full	Advance care planning in adult congenital heart disease: Unique approaches for a unique population
title_fullStr	Advance care planning in adult congenital heart disease: Unique approaches for a unique population
title_full_unstemmed	Advance care planning in adult congenital heart disease: Unique approaches for a unique population
title_sort	advance care planning in adult congenital heart disease: unique approaches for a unique population
publisher	Elsevier
publishDate	2021
url	https://doaj.org/article/28c0678149ab47a8b94df7474dd2add7
work_keys_str_mv	AT adamjsmall advancecareplanninginadultcongenitalheartdiseaseuniqueapproachesforauniquepopulation AT danielkarlin advancecareplanninginadultcongenitalheartdiseaseuniqueapproachesforauniquepopulation AT chandrajain advancecareplanninginadultcongenitalheartdiseaseuniqueapproachesforauniquepopulation AT jillmsteiner advancecareplanninginadultcongenitalheartdiseaseuniqueapproachesforauniquepopulation AT leighcreardon advancecareplanninginadultcongenitalheartdiseaseuniqueapproachesforauniquepopulation
_version_	1718443842610397184

Advance care planning in adult congenital heart disease: Unique approaches for a unique population

Ejemplares similares