Exploring Drivers of Infant Deaths in Rural Rwanda Through Verbal Social Autopsy

Background</h3><p id="sp0010">Rwanda has been a leader in the global effort to reduce infant mortality, particularly in regions of sub-Saharan Africa. Although rates have dropped, deaths still occur.</p><h3 id="st1015">Objective</h3><p id="sp...

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Autores principales: Shalini Navale, Lameck Habumugisha, Cheryl Amoroso, Felix Sayinzoga, Neil Gupta, Lisa R. Hirschhorn
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Publicado: Ubiquity Press 2017
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spelling oai:doaj.org-article:2c79d281acb54399983a7ce8380491aa2021-12-02T03:05:50ZExploring Drivers of Infant Deaths in Rural Rwanda Through Verbal Social Autopsy2214-999610.1016/j.aogh.2017.10.029https://doaj.org/article/2c79d281acb54399983a7ce8380491aa2017-11-01T00:00:00Zhttps://annalsofglobalhealth.org/articles/145https://doaj.org/toc/2214-9996Background</h3><p id="sp0010">Rwanda has been a leader in the global effort to reduce infant mortality, particularly in regions of sub-Saharan Africa. Although rates have dropped, deaths still occur.</p><h3 id="st1015">Objective</h3><p id="sp1010">To explore the <a title="Learn more about Clinical pathway" href="https://www.sciencedirect.com/topics/medicine-and-dentistry/clinical-pathway">care pathways</a> and barriers taken by infant caregivers before the death of their infant through a verbal social autopsy study in 2 districts in eastern Rwanda.</p><h3 id="st0025">Methods</h3><p id="sp0020">We adapted the World Health Organization verbal socialautopsy tools to reflect local context and priorities. Caregivers of infants in the 2 districts were interviewed using the adapted quantitative survey and semistructured interview guide. Interviews were recorded and thematic analysis employed on a subsample (n = 133) to extract the content relevant to understanding the drivers of infant death and inform results of the quantitative data until saturation was reached (66). Results were interpreted through a driver diagram framework to explore caregiver-reported challenges in knowledge and experiences with care access and delivery.</p><h3 id="st0030">Findings</h3><p id="sp0025">Most study participants (82%) reported accessing the formal health system at some point before the infant's death. The primary caregiver-reported drivers for infant death included challenges in accessing care in a timely manner, concerns about the technical quality of care received, and poor responsiveness of the system and providers. The 2 most commonly discussed drivers were gaps in communication between providers and patients and challenges obtaining and using the community-based health insurance. The framework of the driver diagram was modified to identify the factors where change was needed to further reduce mortality.</p><h3 id="st0035">Conclusion</h3><p id="sp0030">This study provides important information on the experiential quality of care received by infants and their caregivers within the current health care space in rural Rwanda. By listening to the individual stories of so many caregivers regarding the gaps and challenges they faced, appropriate action may be taken to bolster the existing health care system.Shalini NavaleLameck HabumugishaCheryl AmorosoFelix SayinzogaNeil GuptaLisa R. HirschhornUbiquity Pressarticlebarriers to careinfant mortalitymixed methodsRwandaverbal social autopsyInfectious and parasitic diseasesRC109-216Public aspects of medicineRA1-1270ENAnnals of Global Health, Vol 83, Iss 5-6, Pp 756-766 (2017)
institution DOAJ
collection DOAJ
language EN
topic barriers to care
infant mortality
mixed methods
Rwanda
verbal social autopsy
Infectious and parasitic diseases
RC109-216
Public aspects of medicine
RA1-1270
spellingShingle barriers to care
infant mortality
mixed methods
Rwanda
verbal social autopsy
Infectious and parasitic diseases
RC109-216
Public aspects of medicine
RA1-1270
Shalini Navale
Lameck Habumugisha
Cheryl Amoroso
Felix Sayinzoga
Neil Gupta
Lisa R. Hirschhorn
Exploring Drivers of Infant Deaths in Rural Rwanda Through Verbal Social Autopsy
description Background</h3><p id="sp0010">Rwanda has been a leader in the global effort to reduce infant mortality, particularly in regions of sub-Saharan Africa. Although rates have dropped, deaths still occur.</p><h3 id="st1015">Objective</h3><p id="sp1010">To explore the <a title="Learn more about Clinical pathway" href="https://www.sciencedirect.com/topics/medicine-and-dentistry/clinical-pathway">care pathways</a> and barriers taken by infant caregivers before the death of their infant through a verbal social autopsy study in 2 districts in eastern Rwanda.</p><h3 id="st0025">Methods</h3><p id="sp0020">We adapted the World Health Organization verbal socialautopsy tools to reflect local context and priorities. Caregivers of infants in the 2 districts were interviewed using the adapted quantitative survey and semistructured interview guide. Interviews were recorded and thematic analysis employed on a subsample (n = 133) to extract the content relevant to understanding the drivers of infant death and inform results of the quantitative data until saturation was reached (66). Results were interpreted through a driver diagram framework to explore caregiver-reported challenges in knowledge and experiences with care access and delivery.</p><h3 id="st0030">Findings</h3><p id="sp0025">Most study participants (82%) reported accessing the formal health system at some point before the infant's death. The primary caregiver-reported drivers for infant death included challenges in accessing care in a timely manner, concerns about the technical quality of care received, and poor responsiveness of the system and providers. The 2 most commonly discussed drivers were gaps in communication between providers and patients and challenges obtaining and using the community-based health insurance. The framework of the driver diagram was modified to identify the factors where change was needed to further reduce mortality.</p><h3 id="st0035">Conclusion</h3><p id="sp0030">This study provides important information on the experiential quality of care received by infants and their caregivers within the current health care space in rural Rwanda. By listening to the individual stories of so many caregivers regarding the gaps and challenges they faced, appropriate action may be taken to bolster the existing health care system.
format article
author Shalini Navale
Lameck Habumugisha
Cheryl Amoroso
Felix Sayinzoga
Neil Gupta
Lisa R. Hirschhorn
author_facet Shalini Navale
Lameck Habumugisha
Cheryl Amoroso
Felix Sayinzoga
Neil Gupta
Lisa R. Hirschhorn
author_sort Shalini Navale
title Exploring Drivers of Infant Deaths in Rural Rwanda Through Verbal Social Autopsy
title_short Exploring Drivers of Infant Deaths in Rural Rwanda Through Verbal Social Autopsy
title_full Exploring Drivers of Infant Deaths in Rural Rwanda Through Verbal Social Autopsy
title_fullStr Exploring Drivers of Infant Deaths in Rural Rwanda Through Verbal Social Autopsy
title_full_unstemmed Exploring Drivers of Infant Deaths in Rural Rwanda Through Verbal Social Autopsy
title_sort exploring drivers of infant deaths in rural rwanda through verbal social autopsy
publisher Ubiquity Press
publishDate 2017
url https://doaj.org/article/2c79d281acb54399983a7ce8380491aa
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