Living with fibromyalgia: results from the functioning with fibro survey highlight patients' experiences and relationships with health care providers
Angela Golden,1 Yvonne D'Arcy,2 Elizabeth T Masters,3 Andrew Clair3 1NP from Home, LLC, Munds Park, AZ, 2Pain Management and Palliative Care, Suburban Hospital-Johns Hopkins Medicine, Bethesda, MD, 3Pfizer, New York, NY, USA Abstract: Fibromyalgia (FM) is a chronic disorder characterized by...
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Dove Medical Press
2015
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oai:doaj.org-article:2e1724f9c83848c9b48921f23bfb01272021-12-02T05:04:05ZLiving with fibromyalgia: results from the functioning with fibro survey highlight patients' experiences and relationships with health care providers2230-522Xhttps://doaj.org/article/2e1724f9c83848c9b48921f23bfb01272015-11-01T00:00:00Zhttps://www.dovepress.com/living-with-fibromyalgia-results-from-the-functioning-with-fibro-surve-peer-reviewed-article-NRRhttps://doaj.org/toc/2230-522XAngela Golden,1 Yvonne D'Arcy,2 Elizabeth T Masters,3 Andrew Clair3 1NP from Home, LLC, Munds Park, AZ, 2Pain Management and Palliative Care, Suburban Hospital-Johns Hopkins Medicine, Bethesda, MD, 3Pfizer, New York, NY, USA Abstract: Fibromyalgia (FM) is a chronic disorder characterized by widespread pain, which can limit patients' physical function and daily activities. FM can be challenging to treat, and the treatment approach could benefit from a greater understanding of patients' perspectives on their condition and their care. Patients with FM participated in an online survey conducted in the USA that sought to identify the symptoms that had the greatest impact on patients' daily lives. The purpose of the survey was to facilitate efforts toward improving care of patients by nurse practitioners, primary care providers, and specialists, in addition to contributing to the development of new outcome measures in both clinical trials and general practice. A total of 1,228 patients with FM completed the survey, responding to specific questions pertaining to symptoms, impact of symptoms, management of FM, and the relationship with health care providers. Chronic pain was identified as the key FM symptom, affecting personal and professional relationships, and restricting physical activity, work, and social commitments. Patients felt that the severity of their condition was underestimated by family, friends, and health care providers. The results of this survey highlight the need for nurse practitioners, primary care providers, and specialists to provide understanding and support to patients as they work together to enable effective diagnosis and management of FM. Keywords: fibromyalgia, pain, survey, impact, supportGolden AD’Arcy YMasters ETClair ADove Medical PressarticleNursingRT1-120ENNursing: Research and Reviews, Vol 2015, Iss default, Pp 109-117 (2015) |
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Nursing RT1-120 |
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Nursing RT1-120 Golden A D’Arcy Y Masters ET Clair A Living with fibromyalgia: results from the functioning with fibro survey highlight patients' experiences and relationships with health care providers |
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Angela Golden,1 Yvonne D'Arcy,2 Elizabeth T Masters,3 Andrew Clair3 1NP from Home, LLC, Munds Park, AZ, 2Pain Management and Palliative Care, Suburban Hospital-Johns Hopkins Medicine, Bethesda, MD, 3Pfizer, New York, NY, USA Abstract: Fibromyalgia (FM) is a chronic disorder characterized by widespread pain, which can limit patients' physical function and daily activities. FM can be challenging to treat, and the treatment approach could benefit from a greater understanding of patients' perspectives on their condition and their care. Patients with FM participated in an online survey conducted in the USA that sought to identify the symptoms that had the greatest impact on patients' daily lives. The purpose of the survey was to facilitate efforts toward improving care of patients by nurse practitioners, primary care providers, and specialists, in addition to contributing to the development of new outcome measures in both clinical trials and general practice. A total of 1,228 patients with FM completed the survey, responding to specific questions pertaining to symptoms, impact of symptoms, management of FM, and the relationship with health care providers. Chronic pain was identified as the key FM symptom, affecting personal and professional relationships, and restricting physical activity, work, and social commitments. Patients felt that the severity of their condition was underestimated by family, friends, and health care providers. The results of this survey highlight the need for nurse practitioners, primary care providers, and specialists to provide understanding and support to patients as they work together to enable effective diagnosis and management of FM. Keywords: fibromyalgia, pain, survey, impact, support |
| format |
article |
| author |
Golden A D’Arcy Y Masters ET Clair A |
| author_facet |
Golden A D’Arcy Y Masters ET Clair A |
| author_sort |
Golden A |
| title |
Living with fibromyalgia: results from the functioning with fibro survey highlight patients' experiences and relationships with health care providers |
| title_short |
Living with fibromyalgia: results from the functioning with fibro survey highlight patients' experiences and relationships with health care providers |
| title_full |
Living with fibromyalgia: results from the functioning with fibro survey highlight patients' experiences and relationships with health care providers |
| title_fullStr |
Living with fibromyalgia: results from the functioning with fibro survey highlight patients' experiences and relationships with health care providers |
| title_full_unstemmed |
Living with fibromyalgia: results from the functioning with fibro survey highlight patients' experiences and relationships with health care providers |
| title_sort |
living with fibromyalgia: results from the functioning with fibro survey highlight patients' experiences and relationships with health care providers |
| publisher |
Dove Medical Press |
| publishDate |
2015 |
| url |
https://doaj.org/article/2e1724f9c83848c9b48921f23bfb0127 |
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