Experiences Of Immigrant Parents In Sweden Participating In A Community Assessment And Intervention Program For Preschool Children With Autism

Åsa Nilses,1 Marianne Jingrot,2 Petra Linnsand,3,4 Christopher Gillberg,3 Gudrun Nygren3,4 1Center for Progress in Children’s Mental Health, Region Vastra Gotaland, Gothenburg, Sweden; 2Research and Development Primary Health Care, Region Vastra Gotaland, Gothenburg, Sweden; 3Gil...

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Autores principales:	Nilses Å, Jingrot M, Linnsand P, Gillberg C, Nygren G
Formato:	article
Lenguaje:	EN
Publicado:	Dove Medical Press 2019
Materias:	autism spectrum disorder (asd) early intervention migrate parental experience qualitative Neurosciences. Biological psychiatry. Neuropsychiatry RC321-571 Neurology. Diseases of the nervous system RC346-429
Acceso en línea:	https://doaj.org/article/2e31688a4ac9498a899671ac2d4b0893
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spelling	oai:doaj.org-article:2e31688a4ac9498a899671ac2d4b08932021-12-02T05:16:33ZExperiences Of Immigrant Parents In Sweden Participating In A Community Assessment And Intervention Program For Preschool Children With Autism1178-2021https://doaj.org/article/2e31688a4ac9498a899671ac2d4b08932019-12-01T00:00:00Zhttps://www.dovepress.com/experiences-of-immigrant-parents-in-sweden-participating-in-a-communit-peer-reviewed-article-NDThttps://doaj.org/toc/1178-2021Åsa Nilses,1 Marianne Jingrot,2 Petra Linnsand,3,4 Christopher Gillberg,3 Gudrun Nygren3,4 1Center for Progress in Children’s Mental Health, Region Vastra Gotaland, Gothenburg, Sweden; 2Research and Development Primary Health Care, Region Vastra Gotaland, Gothenburg, Sweden; 3Gillberg Neuropsychiatry Centre, Institute of Neuroscience and Physiology, Sahlgrenska Academy, Gothenburg University, Gothenburg, Sweden; 4Child and Adolescent Specialist Centre, Angered Hospital, Region Vastra Gotaland, Angered, SwedenCorrespondence: Åsa NilsesCenter for Progress in Children’s Mental Health, Kungsgatan 12, Gothenburg 411 19, SwedenTel +46 722 245311Email asa.nilses@vgregion.seBackground: Barriers inherent in service systems for autism can hinder parents from getting help for their children, and this is probably especially true for immigrant parents. In order to provide accessible assessment and interventions for preschool children with autism, a multidisciplinary team was established in one district of a Swedish city, with a majority population of immigrants.Aim: The aim of the present study was to gain knowledge of the parents’ experiences of participating in the community assessment and intervention program.Methods and procedures: A qualitative study with semi-structured interviews was conducted with parents of 11 children aged 3–5, who had been diagnosed with autism and participated in the community intervention program for at least 1 year. The interviews were recorded and transcribed verbatim, and data were analyzed following a phenomenological hermeneutical method.Results: The overall meaning of the parents’ narratives was interpreted as “A new way of understanding my child made life more hopeful and more challenging than before”. Their experience was interpreted as a process, captured in the three main themes: ”An overwhelming diagnosis”, “Cooperating with the team”, and “Growing as a parent”.Conclusion: As lacking knowledge of available resources and support seems to be an important barrier to access services, the results underscore the importance of providing individually tailored services including comprehensive societal support to immigrant families with young children suffering from autism. The study also highlights the importance of addressing the parents’ previous awareness and knowledge of autism early in the assessment process, as well as continually involving parents in the intervention program, and this may enhance parental growth.Keywords: ASD, autism spectrum disorder, early intervention, migrate, parental experience, qualitative  Nilses ÅJingrot MLinnsand PGillberg CNygren GDove Medical Pressarticleautism spectrum disorder (asd)early interventionmigrateparental experiencequalitativeNeurosciences. Biological psychiatry. NeuropsychiatryRC321-571Neurology. Diseases of the nervous systemRC346-429ENNeuropsychiatric Disease and Treatment, Vol Volume 15, Pp 3397-3410 (2019)
institution	DOAJ
collection	DOAJ
language	EN
topic	autism spectrum disorder (asd) early intervention migrate parental experience qualitative Neurosciences. Biological psychiatry. Neuropsychiatry RC321-571 Neurology. Diseases of the nervous system RC346-429
spellingShingle	autism spectrum disorder (asd) early intervention migrate parental experience qualitative Neurosciences. Biological psychiatry. Neuropsychiatry RC321-571 Neurology. Diseases of the nervous system RC346-429 Nilses Å Jingrot M Linnsand P Gillberg C Nygren G Experiences Of Immigrant Parents In Sweden Participating In A Community Assessment And Intervention Program For Preschool Children With Autism
description	Åsa Nilses,1 Marianne Jingrot,2 Petra Linnsand,3,4 Christopher Gillberg,3 Gudrun Nygren3,4 1Center for Progress in Children’s Mental Health, Region Vastra Gotaland, Gothenburg, Sweden; 2Research and Development Primary Health Care, Region Vastra Gotaland, Gothenburg, Sweden; 3Gillberg Neuropsychiatry Centre, Institute of Neuroscience and Physiology, Sahlgrenska Academy, Gothenburg University, Gothenburg, Sweden; 4Child and Adolescent Specialist Centre, Angered Hospital, Region Vastra Gotaland, Angered, SwedenCorrespondence: Åsa NilsesCenter for Progress in Children’s Mental Health, Kungsgatan 12, Gothenburg 411 19, SwedenTel +46 722 245311Email asa.nilses@vgregion.seBackground: Barriers inherent in service systems for autism can hinder parents from getting help for their children, and this is probably especially true for immigrant parents. In order to provide accessible assessment and interventions for preschool children with autism, a multidisciplinary team was established in one district of a Swedish city, with a majority population of immigrants.Aim: The aim of the present study was to gain knowledge of the parents’ experiences of participating in the community assessment and intervention program.Methods and procedures: A qualitative study with semi-structured interviews was conducted with parents of 11 children aged 3–5, who had been diagnosed with autism and participated in the community intervention program for at least 1 year. The interviews were recorded and transcribed verbatim, and data were analyzed following a phenomenological hermeneutical method.Results: The overall meaning of the parents’ narratives was interpreted as “A new way of understanding my child made life more hopeful and more challenging than before”. Their experience was interpreted as a process, captured in the three main themes: ”An overwhelming diagnosis”, “Cooperating with the team”, and “Growing as a parent”.Conclusion: As lacking knowledge of available resources and support seems to be an important barrier to access services, the results underscore the importance of providing individually tailored services including comprehensive societal support to immigrant families with young children suffering from autism. The study also highlights the importance of addressing the parents’ previous awareness and knowledge of autism early in the assessment process, as well as continually involving parents in the intervention program, and this may enhance parental growth.Keywords: ASD, autism spectrum disorder, early intervention, migrate, parental experience, qualitative
format	article
author	Nilses Å Jingrot M Linnsand P Gillberg C Nygren G
author_facet	Nilses Å Jingrot M Linnsand P Gillberg C Nygren G
author_sort	Nilses Å
title	Experiences Of Immigrant Parents In Sweden Participating In A Community Assessment And Intervention Program For Preschool Children With Autism
title_short	Experiences Of Immigrant Parents In Sweden Participating In A Community Assessment And Intervention Program For Preschool Children With Autism
title_full	Experiences Of Immigrant Parents In Sweden Participating In A Community Assessment And Intervention Program For Preschool Children With Autism
title_fullStr	Experiences Of Immigrant Parents In Sweden Participating In A Community Assessment And Intervention Program For Preschool Children With Autism
title_full_unstemmed	Experiences Of Immigrant Parents In Sweden Participating In A Community Assessment And Intervention Program For Preschool Children With Autism
title_sort	experiences of immigrant parents in sweden participating in a community assessment and intervention program for preschool children with autism
publisher	Dove Medical Press
publishDate	2019
url	https://doaj.org/article/2e31688a4ac9498a899671ac2d4b0893
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Experiences Of Immigrant Parents In Sweden Participating In A Community Assessment And Intervention Program For Preschool Children With Autism

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