Collection of Data on Sex, Sexual Orientation, and Gender Identity by U.S. Public Health Data and Monitoring Systems, 2015–2018

We aimed to assess Centers for Disease Control and Prevention (CDC) data systems on the extent of data collection on sex, sexual orientation, and gender identity as well as on age and race/ethnicity. Between March and September 2019, we searched 11 federal websites to identify CDC-supported or -led...

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Autores principales:	Alissa C. Kress, Asia Asberry, Julio Dicent Taillepierre, Michelle M. Johns, Pattie Tucker, Ana Penman-Aguilar
Formato:	article
Lenguaje:	EN
Publicado:	MDPI AG 2021
Materias:	women’s health sexual and gender minorities data collection Medicine R
Acceso en línea:	https://doaj.org/article/2e5e99f4a86e4d0299d029cf10ca383d
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spelling	oai:doaj.org-article:2e5e99f4a86e4d0299d029cf10ca383d2021-11-25T17:51:51ZCollection of Data on Sex, Sexual Orientation, and Gender Identity by U.S. Public Health Data and Monitoring Systems, 2015–201810.3390/ijerph1822121891660-46011661-7827https://doaj.org/article/2e5e99f4a86e4d0299d029cf10ca383d2021-11-01T00:00:00Zhttps://www.mdpi.com/1660-4601/18/22/12189https://doaj.org/toc/1661-7827https://doaj.org/toc/1660-4601We aimed to assess Centers for Disease Control and Prevention (CDC) data systems on the extent of data collection on sex, sexual orientation, and gender identity as well as on age and race/ethnicity. Between March and September 2019, we searched 11 federal websites to identify CDC-supported or -led U.S. data systems active between 2015 and 2018. We searched the systems’ website, documentation, and publications for evidence of data collection on sex, sexual orientation, gender identity, age, and race/ethnicity. We categorized each system by type (disease notification, periodic prevalence survey, registry/vital record, or multiple sources). We provide descriptive statistics of characteristics of the identified systems. Most (94.1%) systems we assessed collected data on sex. All systems collected data on age, and approximately 80% collected data on race/ethnicity. Only 17.7% collected data on sexual orientation and 5.9% on gender identity. Periodic prevalence surveys were the most common system type for collecting all the variables we assessed. While most U.S. public health data and monitoring systems collect data disaggregated by sex, age, and race/ethnicity, far fewer do so for sexual orientation or gender identity. Standards and examples exist to aid efforts to collect and report these vitally important data. Additionally important is increasing accessibility and appropriately tailored dissemination of reports of these data to public health professionals and other collaborators.Alissa C. KressAsia AsberryJulio Dicent TaillepierreMichelle M. JohnsPattie TuckerAna Penman-AguilarMDPI AGarticlewomen’s healthsexual and gender minoritiesdata collectionMedicineRENInternational Journal of Environmental Research and Public Health, Vol 18, Iss 12189, p 12189 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	women’s health sexual and gender minorities data collection Medicine R
spellingShingle	women’s health sexual and gender minorities data collection Medicine R Alissa C. Kress Asia Asberry Julio Dicent Taillepierre Michelle M. Johns Pattie Tucker Ana Penman-Aguilar Collection of Data on Sex, Sexual Orientation, and Gender Identity by U.S. Public Health Data and Monitoring Systems, 2015–2018
description	We aimed to assess Centers for Disease Control and Prevention (CDC) data systems on the extent of data collection on sex, sexual orientation, and gender identity as well as on age and race/ethnicity. Between March and September 2019, we searched 11 federal websites to identify CDC-supported or -led U.S. data systems active between 2015 and 2018. We searched the systems’ website, documentation, and publications for evidence of data collection on sex, sexual orientation, gender identity, age, and race/ethnicity. We categorized each system by type (disease notification, periodic prevalence survey, registry/vital record, or multiple sources). We provide descriptive statistics of characteristics of the identified systems. Most (94.1%) systems we assessed collected data on sex. All systems collected data on age, and approximately 80% collected data on race/ethnicity. Only 17.7% collected data on sexual orientation and 5.9% on gender identity. Periodic prevalence surveys were the most common system type for collecting all the variables we assessed. While most U.S. public health data and monitoring systems collect data disaggregated by sex, age, and race/ethnicity, far fewer do so for sexual orientation or gender identity. Standards and examples exist to aid efforts to collect and report these vitally important data. Additionally important is increasing accessibility and appropriately tailored dissemination of reports of these data to public health professionals and other collaborators.
format	article
author	Alissa C. Kress Asia Asberry Julio Dicent Taillepierre Michelle M. Johns Pattie Tucker Ana Penman-Aguilar
author_facet	Alissa C. Kress Asia Asberry Julio Dicent Taillepierre Michelle M. Johns Pattie Tucker Ana Penman-Aguilar
author_sort	Alissa C. Kress
title	Collection of Data on Sex, Sexual Orientation, and Gender Identity by U.S. Public Health Data and Monitoring Systems, 2015–2018
title_short	Collection of Data on Sex, Sexual Orientation, and Gender Identity by U.S. Public Health Data and Monitoring Systems, 2015–2018
title_full	Collection of Data on Sex, Sexual Orientation, and Gender Identity by U.S. Public Health Data and Monitoring Systems, 2015–2018
title_fullStr	Collection of Data on Sex, Sexual Orientation, and Gender Identity by U.S. Public Health Data and Monitoring Systems, 2015–2018
title_full_unstemmed	Collection of Data on Sex, Sexual Orientation, and Gender Identity by U.S. Public Health Data and Monitoring Systems, 2015–2018
title_sort	collection of data on sex, sexual orientation, and gender identity by u.s. public health data and monitoring systems, 2015–2018
publisher	MDPI AG
publishDate	2021
url	https://doaj.org/article/2e5e99f4a86e4d0299d029cf10ca383d
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Collection of Data on Sex, Sexual Orientation, and Gender Identity by U.S. Public Health Data and Monitoring Systems, 2015–2018

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