Chronic pain, vulnerability and human spirit while living under the umbrella of COVID-19

The purpose of writing this article is to describe what added challenges people like us who are living with chronic pain are experiencing during the COVID-19 pandemic. We explore what this challenging time means to us and how it affects our lives, along with providing insight into our experiences. T...

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Autores principales:	Richard Hovey, Delane Linkiewich, Mary Brachaniec
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2020
Materias:	covid-19 chronic pain lived experience resilience and vulnerability Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/2ef227755f4c46ec93c5ddd337a0e5e2
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spelling	oai:doaj.org-article:2ef227755f4c46ec93c5ddd337a0e5e22021-11-15T04:31:20ZChronic pain, vulnerability and human spirit while living under the umbrella of COVID-192372-0247https://doaj.org/article/2ef227755f4c46ec93c5ddd337a0e5e22020-08-01T00:00:00Zhttps://pxjournal.org/journal/vol7/iss2/8https://doaj.org/toc/2372-0247The purpose of writing this article is to describe what added challenges people like us who are living with chronic pain are experiencing during the COVID-19 pandemic. We explore what this challenging time means to us and how it affects our lives, along with providing insight into our experiences. This is not a research study, but instead an article that shares perspectives from people with lived experience of chronic pain. Our narratives are presented to create an awareness of the plight for people already living with challenging health conditions and how the COVID-19 pandemic has added additional layers of vulnerability. While these stories offer brief accounts of some of the challenges we face, they also provide glimmers of hope that others with similar challenges can look to for inspiration. We also hope that our stories and reflections provide discussion points and perhaps even case studies for clinicians and policymakers who are working to strengthen clinical care and health systems for people with chronic conditions during pandemics such as COVID-19. Sharing our lived experiences with chronic pain during this global crisis may also spark critical conversations among all chronic pain stakeholders to ensure that we could continue to provide excellent care, strong self-management support and optimal health policy-making as this pandemic continues to unfold and for consideration for future health emergencies. <strong>Experience Framework</strong> This article is associated with the Quality & Clinical Excellence lens of The Beryl Institute Experience Framework. (<a href="http://bit.ly/ExperienceFramework">http://bit.ly/ExperienceFramework</a>) <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Quality%20%26%20Clinical%20Excellence%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-QualityClinicalExcellence">Access other resources</a> related to this lens.</li> </ul>Richard HoveyDelane LinkiewichMary BrachaniecThe Beryl Institutearticlecovid-19chronic painlived experienceresilienceand vulnerabilityMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2020)
institution	DOAJ
collection	DOAJ
language	EN
topic	covid-19 chronic pain lived experience resilience and vulnerability Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	covid-19 chronic pain lived experience resilience and vulnerability Medicine (General) R5-920 Public aspects of medicine RA1-1270 Richard Hovey Delane Linkiewich Mary Brachaniec Chronic pain, vulnerability and human spirit while living under the umbrella of COVID-19
description	The purpose of writing this article is to describe what added challenges people like us who are living with chronic pain are experiencing during the COVID-19 pandemic. We explore what this challenging time means to us and how it affects our lives, along with providing insight into our experiences. This is not a research study, but instead an article that shares perspectives from people with lived experience of chronic pain. Our narratives are presented to create an awareness of the plight for people already living with challenging health conditions and how the COVID-19 pandemic has added additional layers of vulnerability. While these stories offer brief accounts of some of the challenges we face, they also provide glimmers of hope that others with similar challenges can look to for inspiration. We also hope that our stories and reflections provide discussion points and perhaps even case studies for clinicians and policymakers who are working to strengthen clinical care and health systems for people with chronic conditions during pandemics such as COVID-19. Sharing our lived experiences with chronic pain during this global crisis may also spark critical conversations among all chronic pain stakeholders to ensure that we could continue to provide excellent care, strong self-management support and optimal health policy-making as this pandemic continues to unfold and for consideration for future health emergencies. <strong>Experience Framework</strong> This article is associated with the Quality & Clinical Excellence lens of The Beryl Institute Experience Framework. (<a href="http://bit.ly/ExperienceFramework">http://bit.ly/ExperienceFramework</a>) <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Quality%20%26%20Clinical%20Excellence%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-QualityClinicalExcellence">Access other resources</a> related to this lens.</li> </ul>
format	article
author	Richard Hovey Delane Linkiewich Mary Brachaniec
author_facet	Richard Hovey Delane Linkiewich Mary Brachaniec
author_sort	Richard Hovey
title	Chronic pain, vulnerability and human spirit while living under the umbrella of COVID-19
title_short	Chronic pain, vulnerability and human spirit while living under the umbrella of COVID-19
title_full	Chronic pain, vulnerability and human spirit while living under the umbrella of COVID-19
title_fullStr	Chronic pain, vulnerability and human spirit while living under the umbrella of COVID-19
title_full_unstemmed	Chronic pain, vulnerability and human spirit while living under the umbrella of COVID-19
title_sort	chronic pain, vulnerability and human spirit while living under the umbrella of covid-19
publisher	The Beryl Institute
publishDate	2020
url	https://doaj.org/article/2ef227755f4c46ec93c5ddd337a0e5e2
work_keys_str_mv	AT richardhovey chronicpainvulnerabilityandhumanspiritwhilelivingundertheumbrellaofcovid19 AT delanelinkiewich chronicpainvulnerabilityandhumanspiritwhilelivingundertheumbrellaofcovid19 AT marybrachaniec chronicpainvulnerabilityandhumanspiritwhilelivingundertheumbrellaofcovid19
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Chronic pain, vulnerability and human spirit while living under the umbrella of COVID-19

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