Patient Experience of Living With Cancer‐Associated Thrombosis in Canada (PELICANADA)

Abstract Introduction Previous research from the United Kingdom and Spain has identified several areas of unmet clinical and support need for cancer patients diagnosed with venous thromboembolism. It is not known whether such experiences are restricted to those countries health care systems and cult...

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Autores principales:	Simon Noble, Annmarie Nelson, Jill Scott, Anne Berger, Karen Schmidt, Parinita Swarnkar, Agnes Lee
Formato:	article
Lenguaje:	EN
Publicado:	Wiley 2020
Materias:	cancer‐associated thrombosis cultural patient experience qualitative venous thromboembolism Diseases of the blood and blood-forming organs RC633-647.5
Acceso en línea:	https://doaj.org/article/30f7c337943448aa8fd9689cbccadaf4
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spelling	oai:doaj.org-article:30f7c337943448aa8fd9689cbccadaf42021-11-15T06:10:44ZPatient Experience of Living With Cancer‐Associated Thrombosis in Canada (PELICANADA)2475-037910.1002/rth2.12274https://doaj.org/article/30f7c337943448aa8fd9689cbccadaf42020-01-01T00:00:00Zhttps://doi.org/10.1002/rth2.12274https://doaj.org/toc/2475-0379Abstract Introduction Previous research from the United Kingdom and Spain has identified several areas of unmet clinical and support need for cancer patients diagnosed with venous thromboembolism. It is not known whether such experiences are restricted to those countries health care systems and culture. We therefore evaluated patients’ experience of cancer‐associated thrombosis (CAT) within a Canadian setting. Methods Purposive sampling of patients with CAT attending a regional thrombosis clinic in Vancouver was undertaken. Semistructured interviews were audio recorded, transcribed, and coded using NVivo software. A deductive approach was taken by applying the framework matrix from the original study to these data on a case‐by‐case basis. Results Twenty patients (10 male, 10 female) aged 39 to 74 (mean, 63) representing a breadth of different cancers participated. Commonalities between the UK and Canadian patients included the traumatic nature of experiencing CAT, the need for information, and adaptive behaviors through ritualization. Two new themes were identified: (1) Patients with incidental pulmonary emboli (iPE) were usually telephoned about their thrombus with little support and suboptimal communication; and (2) cost implications of accessing low‐molecular‐weight heparin varied according to insurance cover. Patients were sometimes converted to warfarin for financial reasons. Conclusion The distress associated with CAT is a common experience across different populations but may be ameliorated by early access to specialist services, information, and support. The current process for managing iPE could be improved with better communication and a dedicated clinical pathway. Funding issues may influence choice of anticoagulant.Simon NobleAnnmarie NelsonJill ScottAnne BergerKaren SchmidtParinita SwarnkarAgnes LeeWileyarticlecancer‐associated thrombosisculturalpatient experiencequalitativevenous thromboembolismDiseases of the blood and blood-forming organsRC633-647.5ENResearch and Practice in Thrombosis and Haemostasis, Vol 4, Iss 1, Pp 154-160 (2020)
institution	DOAJ
collection	DOAJ
language	EN
topic	cancer‐associated thrombosis cultural patient experience qualitative venous thromboembolism Diseases of the blood and blood-forming organs RC633-647.5
spellingShingle	cancer‐associated thrombosis cultural patient experience qualitative venous thromboembolism Diseases of the blood and blood-forming organs RC633-647.5 Simon Noble Annmarie Nelson Jill Scott Anne Berger Karen Schmidt Parinita Swarnkar Agnes Lee Patient Experience of Living With Cancer‐Associated Thrombosis in Canada (PELICANADA)
description	Abstract Introduction Previous research from the United Kingdom and Spain has identified several areas of unmet clinical and support need for cancer patients diagnosed with venous thromboembolism. It is not known whether such experiences are restricted to those countries health care systems and culture. We therefore evaluated patients’ experience of cancer‐associated thrombosis (CAT) within a Canadian setting. Methods Purposive sampling of patients with CAT attending a regional thrombosis clinic in Vancouver was undertaken. Semistructured interviews were audio recorded, transcribed, and coded using NVivo software. A deductive approach was taken by applying the framework matrix from the original study to these data on a case‐by‐case basis. Results Twenty patients (10 male, 10 female) aged 39 to 74 (mean, 63) representing a breadth of different cancers participated. Commonalities between the UK and Canadian patients included the traumatic nature of experiencing CAT, the need for information, and adaptive behaviors through ritualization. Two new themes were identified: (1) Patients with incidental pulmonary emboli (iPE) were usually telephoned about their thrombus with little support and suboptimal communication; and (2) cost implications of accessing low‐molecular‐weight heparin varied according to insurance cover. Patients were sometimes converted to warfarin for financial reasons. Conclusion The distress associated with CAT is a common experience across different populations but may be ameliorated by early access to specialist services, information, and support. The current process for managing iPE could be improved with better communication and a dedicated clinical pathway. Funding issues may influence choice of anticoagulant.
format	article
author	Simon Noble Annmarie Nelson Jill Scott Anne Berger Karen Schmidt Parinita Swarnkar Agnes Lee
author_facet	Simon Noble Annmarie Nelson Jill Scott Anne Berger Karen Schmidt Parinita Swarnkar Agnes Lee
author_sort	Simon Noble
title	Patient Experience of Living With Cancer‐Associated Thrombosis in Canada (PELICANADA)
title_short	Patient Experience of Living With Cancer‐Associated Thrombosis in Canada (PELICANADA)
title_full	Patient Experience of Living With Cancer‐Associated Thrombosis in Canada (PELICANADA)
title_fullStr	Patient Experience of Living With Cancer‐Associated Thrombosis in Canada (PELICANADA)
title_full_unstemmed	Patient Experience of Living With Cancer‐Associated Thrombosis in Canada (PELICANADA)
title_sort	patient experience of living with cancer‐associated thrombosis in canada (pelicanada)
publisher	Wiley
publishDate	2020
url	https://doaj.org/article/30f7c337943448aa8fd9689cbccadaf4
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Patient Experience of Living With Cancer‐Associated Thrombosis in Canada (PELICANADA)

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