The little things: Exploring perceptions and experiences of client and family-centred care through photovoice

Healthcare in Canada is undergoing a paradigm shift, moving away from a prescriptive approach to care delivery to one that prioritizes clients and their families at the center of their care. In the homecare sector, this approach is commonly referred to as client- and family-centred care<em> &l...

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Autores principales:	Sonia Nizzer, Stacey Ryan, Sandra McKay
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2020
Materias:	client-and family-centred care home care children with complex medical needs photovoice client experience client engagement Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/31aa36986d304644b150ac16254d951e
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spelling	oai:doaj.org-article:31aa36986d304644b150ac16254d951e2021-11-15T04:31:12ZThe little things: Exploring perceptions and experiences of client and family-centred care through photovoice2372-0247https://doaj.org/article/31aa36986d304644b150ac16254d951e2020-04-01T00:00:00Zhttps://pxjournal.org/journal/vol7/iss1/6https://doaj.org/toc/2372-0247Healthcare in Canada is undergoing a paradigm shift, moving away from a prescriptive approach to care delivery to one that prioritizes clients and their families at the center of their care. In the homecare sector, this approach is commonly referred to as client- and family-centred care<em> </em>(CFCC), a philosophy emphasizing the need for point-of-care providers to partner with those receiving care and their families in a way that is respectful and attuned to their individual needs and goals. This philosophy helps homecare agencies like VHA Home HealthCare deliver care to families that embraces what is most important to them. At VHA Home HealthCare, CFCC is well established through education sessions delivered to staff. Despite these efforts, there is limited evidence to confirm whether this education aligns with what is important to clients and families. To address this gap, this study engaged a unique homecare population - parents of children with complex medical needs - to understand how they experience and perceive CFCC using an arts-based approach called photovoice. Through participants’ photographs and in-depth interviews, seven core themes were identified which we refer to as<em> ‘the little things’</em> of CFCC. Results of our exploration show that in some cases there is alignment between parents’ perceptions of CFCC and the organization’s, but there are also many gaps that could be filled by incorporating the unique voices of participants into the organization’s educational curriculum. <strong>Experience Framework</strong> This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework. (<a href="http://bit.ly/ExperienceFramework">http://bit.ly/ExperienceFramework</a>) <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Patient%2C%20Family%20%26%20Community%20Engagement%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PatientFamilyCommunityEngagement">Access other resources</a> related to this lens.</li> </ul>Sonia NizzerStacey RyanSandra McKayThe Beryl Institutearticleclient-and family-centred carehome carechildren with complex medical needsphotovoiceclient experienceclient engagementMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2020)
institution	DOAJ
collection	DOAJ
language	EN
topic	client-and family-centred care home care children with complex medical needs photovoice client experience client engagement Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	client-and family-centred care home care children with complex medical needs photovoice client experience client engagement Medicine (General) R5-920 Public aspects of medicine RA1-1270 Sonia Nizzer Stacey Ryan Sandra McKay The little things: Exploring perceptions and experiences of client and family-centred care through photovoice
description	Healthcare in Canada is undergoing a paradigm shift, moving away from a prescriptive approach to care delivery to one that prioritizes clients and their families at the center of their care. In the homecare sector, this approach is commonly referred to as client- and family-centred care<em> </em>(CFCC), a philosophy emphasizing the need for point-of-care providers to partner with those receiving care and their families in a way that is respectful and attuned to their individual needs and goals. This philosophy helps homecare agencies like VHA Home HealthCare deliver care to families that embraces what is most important to them. At VHA Home HealthCare, CFCC is well established through education sessions delivered to staff. Despite these efforts, there is limited evidence to confirm whether this education aligns with what is important to clients and families. To address this gap, this study engaged a unique homecare population - parents of children with complex medical needs - to understand how they experience and perceive CFCC using an arts-based approach called photovoice. Through participants’ photographs and in-depth interviews, seven core themes were identified which we refer to as<em> ‘the little things’</em> of CFCC. Results of our exploration show that in some cases there is alignment between parents’ perceptions of CFCC and the organization’s, but there are also many gaps that could be filled by incorporating the unique voices of participants into the organization’s educational curriculum. <strong>Experience Framework</strong> This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework. (<a href="http://bit.ly/ExperienceFramework">http://bit.ly/ExperienceFramework</a>) <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Patient%2C%20Family%20%26%20Community%20Engagement%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PatientFamilyCommunityEngagement">Access other resources</a> related to this lens.</li> </ul>
format	article
author	Sonia Nizzer Stacey Ryan Sandra McKay
author_facet	Sonia Nizzer Stacey Ryan Sandra McKay
author_sort	Sonia Nizzer
title	The little things: Exploring perceptions and experiences of client and family-centred care through photovoice
title_short	The little things: Exploring perceptions and experiences of client and family-centred care through photovoice
title_full	The little things: Exploring perceptions and experiences of client and family-centred care through photovoice
title_fullStr	The little things: Exploring perceptions and experiences of client and family-centred care through photovoice
title_full_unstemmed	The little things: Exploring perceptions and experiences of client and family-centred care through photovoice
title_sort	little things: exploring perceptions and experiences of client and family-centred care through photovoice
publisher	The Beryl Institute
publishDate	2020
url	https://doaj.org/article/31aa36986d304644b150ac16254d951e
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The little things: Exploring perceptions and experiences of client and family-centred care through photovoice

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