Integrating the patient and caregiver voice in the context of pediatric, adolescent, and young adult care: A family-centered approach

Family-centered care (FCC) is defined as an approach to care coordination founded in collaborative partnerships between healthcare providers, patients and their family caregivers. Amid the enthusiasm for FCC in the pediatric setting, opportunities have been identified to operationalize the engagemen...

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Autores principales:	Sarah Featherston, Beatriz Rozo, Danielle Buzanga, Alexandra Garcia, Joanne Greene, Laura Salvador, Joan O'Hanlon-Curry
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2018
Materias:	pediatrics adolescents young adults cancer family-centered care patient engagement family engagement Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/33b3f2f27e7a4c8caac821dc23fbe071
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id	oai:doaj.org-article:33b3f2f27e7a4c8caac821dc23fbe071
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spelling	oai:doaj.org-article:33b3f2f27e7a4c8caac821dc23fbe0712021-11-15T04:25:52ZIntegrating the patient and caregiver voice in the context of pediatric, adolescent, and young adult care: A family-centered approach2372-0247https://doaj.org/article/33b3f2f27e7a4c8caac821dc23fbe0712018-07-01T00:00:00Zhttps://pxjournal.org/journal/vol5/iss2/12https://doaj.org/toc/2372-0247Family-centered care (FCC) is defined as an approach to care coordination founded in collaborative partnerships between healthcare providers, patients and their family caregivers. Amid the enthusiasm for FCC in the pediatric setting, opportunities have been identified to operationalize the engagement of pediatric, adolescent and young adult patients and their caregivers into decision making that translates not only to their healthcare, but also to the context in which care is provided, as well as the research informing their care. At a National Cancer Institute-designated comprehensive cancer center, the Children’s Cancer Hospital was instrumental in designing and implementing patient and family engagement councils to inform institutional policies, guidelines, environment of care and research. The councils include: he Family Advisory Council, the Supportive Care Council, the Young Adult Advisory Council, and the Patient Advisory Council for Teens (imPACT). The development and outcomes of these councils is presented as an exemplar for patient and family engagement that translates to tangible healthcare delivery initiatives.Sarah FeatherstonBeatriz RozoDanielle BuzangaAlexandra GarciaJoanne GreeneLaura SalvadorJoan O'Hanlon-CurryThe Beryl Institutearticlepediatricsadolescentsyoung adultscancerfamily-centered carepatient engagementfamily engagementMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2018)
institution	DOAJ
collection	DOAJ
language	EN
topic	pediatrics adolescents young adults cancer family-centered care patient engagement family engagement Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	pediatrics adolescents young adults cancer family-centered care patient engagement family engagement Medicine (General) R5-920 Public aspects of medicine RA1-1270 Sarah Featherston Beatriz Rozo Danielle Buzanga Alexandra Garcia Joanne Greene Laura Salvador Joan O'Hanlon-Curry Integrating the patient and caregiver voice in the context of pediatric, adolescent, and young adult care: A family-centered approach
description	Family-centered care (FCC) is defined as an approach to care coordination founded in collaborative partnerships between healthcare providers, patients and their family caregivers. Amid the enthusiasm for FCC in the pediatric setting, opportunities have been identified to operationalize the engagement of pediatric, adolescent and young adult patients and their caregivers into decision making that translates not only to their healthcare, but also to the context in which care is provided, as well as the research informing their care. At a National Cancer Institute-designated comprehensive cancer center, the Children’s Cancer Hospital was instrumental in designing and implementing patient and family engagement councils to inform institutional policies, guidelines, environment of care and research. The councils include: he Family Advisory Council, the Supportive Care Council, the Young Adult Advisory Council, and the Patient Advisory Council for Teens (imPACT). The development and outcomes of these councils is presented as an exemplar for patient and family engagement that translates to tangible healthcare delivery initiatives.
format	article
author	Sarah Featherston Beatriz Rozo Danielle Buzanga Alexandra Garcia Joanne Greene Laura Salvador Joan O'Hanlon-Curry
author_facet	Sarah Featherston Beatriz Rozo Danielle Buzanga Alexandra Garcia Joanne Greene Laura Salvador Joan O'Hanlon-Curry
author_sort	Sarah Featherston
title	Integrating the patient and caregiver voice in the context of pediatric, adolescent, and young adult care: A family-centered approach
title_short	Integrating the patient and caregiver voice in the context of pediatric, adolescent, and young adult care: A family-centered approach
title_full	Integrating the patient and caregiver voice in the context of pediatric, adolescent, and young adult care: A family-centered approach
title_fullStr	Integrating the patient and caregiver voice in the context of pediatric, adolescent, and young adult care: A family-centered approach
title_full_unstemmed	Integrating the patient and caregiver voice in the context of pediatric, adolescent, and young adult care: A family-centered approach
title_sort	integrating the patient and caregiver voice in the context of pediatric, adolescent, and young adult care: a family-centered approach
publisher	The Beryl Institute
publishDate	2018
url	https://doaj.org/article/33b3f2f27e7a4c8caac821dc23fbe071
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Integrating the patient and caregiver voice in the context of pediatric, adolescent, and young adult care: A family-centered approach

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