Social Support for Self-Care: Patient Strategies for Managing Diabetes and Hypertension in Rural Uganda

Background: Low-income countries suffer a growing burden of non-communicable diseases (NCDs). Self-care practices are crucial for successfully managing NCDs to prevent complications. However, little is known about how patients practice self-care in resource-limited settings. Objective: We sought to...

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Autores principales: Andrew K. Tusubira, Christine K. Nalwadda, Ann R. Akiteng, Evelyn Hsieh, Christine Ngaruiya, Tracy L. Rabin, Anne Katahoire, Nicola L. Hawley, Robert Kalyesubula, Isaac Ssinabulya, Jeremy I. Schwartz, Mari Armstrong-Hough
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Publicado: Ubiquity Press 2021
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Acceso en línea:https://doaj.org/article/33f973cef6b34ae1869e2753c7db4f04
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spelling oai:doaj.org-article:33f973cef6b34ae1869e2753c7db4f042021-12-02T17:21:11ZSocial Support for Self-Care: Patient Strategies for Managing Diabetes and Hypertension in Rural Uganda2214-999610.5334/aogh.3308https://doaj.org/article/33f973cef6b34ae1869e2753c7db4f042021-08-01T00:00:00Zhttps://annalsofglobalhealth.org/articles/3308https://doaj.org/toc/2214-9996Background: Low-income countries suffer a growing burden of non-communicable diseases (NCDs). Self-care practices are crucial for successfully managing NCDs to prevent complications. However, little is known about how patients practice self-care in resource-limited settings. Objective: We sought to understand self-care efforts and their facilitators among patients with diabetes and hypertension in rural Uganda. Methods: Between April and June 2019, we conducted a cross-sectional qualitative study among adult patients from outpatient NCD clinics at three health facilities in Uganda. We conducted in-depth interviews exploring self-care practices for hypertension and/or diabetes and used content analysis to identify emergent themes. Results: Nineteen patients participated. Patients said they preferred conventional medicines as their first resort, but often used traditional medicines to mitigate the impact of inconsistent access to prescribed medicines or as a supplement to those medicines. Patients adopted a wide range of vernacular practices to supplement treatment or replace unavailable diagnostic tests, such as tasting urine to gauge blood-sugar level. Finally, patients sought and received both instrumental and emotional support for self-care activities from networks of family and peers. Patients saw their children as their most reliable source of support facilitating self-care, especially as a source of money for medicines, transport and home necessities. Conclusion: Patients valued conventional medicines but engaged in varied self-care practices. They depended upon networks of social support from family and peers to facilitate self-care. Interventions to improve self-care may be more effective if they improve access to prescribed medicines and engage or enhance patients’ social support networks.Andrew K. TusubiraChristine K. NalwaddaAnn R. AkitengEvelyn HsiehChristine NgaruiyaTracy L. RabinAnne KatahoireNicola L. HawleyRobert KalyesubulaIsaac SsinabulyaJeremy I. SchwartzMari Armstrong-HoughUbiquity PressarticleInfectious and parasitic diseasesRC109-216Public aspects of medicineRA1-1270ENAnnals of Global Health, Vol 87, Iss 1 (2021)
institution DOAJ
collection DOAJ
language EN
topic Infectious and parasitic diseases
RC109-216
Public aspects of medicine
RA1-1270
spellingShingle Infectious and parasitic diseases
RC109-216
Public aspects of medicine
RA1-1270
Andrew K. Tusubira
Christine K. Nalwadda
Ann R. Akiteng
Evelyn Hsieh
Christine Ngaruiya
Tracy L. Rabin
Anne Katahoire
Nicola L. Hawley
Robert Kalyesubula
Isaac Ssinabulya
Jeremy I. Schwartz
Mari Armstrong-Hough
Social Support for Self-Care: Patient Strategies for Managing Diabetes and Hypertension in Rural Uganda
description Background: Low-income countries suffer a growing burden of non-communicable diseases (NCDs). Self-care practices are crucial for successfully managing NCDs to prevent complications. However, little is known about how patients practice self-care in resource-limited settings. Objective: We sought to understand self-care efforts and their facilitators among patients with diabetes and hypertension in rural Uganda. Methods: Between April and June 2019, we conducted a cross-sectional qualitative study among adult patients from outpatient NCD clinics at three health facilities in Uganda. We conducted in-depth interviews exploring self-care practices for hypertension and/or diabetes and used content analysis to identify emergent themes. Results: Nineteen patients participated. Patients said they preferred conventional medicines as their first resort, but often used traditional medicines to mitigate the impact of inconsistent access to prescribed medicines or as a supplement to those medicines. Patients adopted a wide range of vernacular practices to supplement treatment or replace unavailable diagnostic tests, such as tasting urine to gauge blood-sugar level. Finally, patients sought and received both instrumental and emotional support for self-care activities from networks of family and peers. Patients saw their children as their most reliable source of support facilitating self-care, especially as a source of money for medicines, transport and home necessities. Conclusion: Patients valued conventional medicines but engaged in varied self-care practices. They depended upon networks of social support from family and peers to facilitate self-care. Interventions to improve self-care may be more effective if they improve access to prescribed medicines and engage or enhance patients’ social support networks.
format article
author Andrew K. Tusubira
Christine K. Nalwadda
Ann R. Akiteng
Evelyn Hsieh
Christine Ngaruiya
Tracy L. Rabin
Anne Katahoire
Nicola L. Hawley
Robert Kalyesubula
Isaac Ssinabulya
Jeremy I. Schwartz
Mari Armstrong-Hough
author_facet Andrew K. Tusubira
Christine K. Nalwadda
Ann R. Akiteng
Evelyn Hsieh
Christine Ngaruiya
Tracy L. Rabin
Anne Katahoire
Nicola L. Hawley
Robert Kalyesubula
Isaac Ssinabulya
Jeremy I. Schwartz
Mari Armstrong-Hough
author_sort Andrew K. Tusubira
title Social Support for Self-Care: Patient Strategies for Managing Diabetes and Hypertension in Rural Uganda
title_short Social Support for Self-Care: Patient Strategies for Managing Diabetes and Hypertension in Rural Uganda
title_full Social Support for Self-Care: Patient Strategies for Managing Diabetes and Hypertension in Rural Uganda
title_fullStr Social Support for Self-Care: Patient Strategies for Managing Diabetes and Hypertension in Rural Uganda
title_full_unstemmed Social Support for Self-Care: Patient Strategies for Managing Diabetes and Hypertension in Rural Uganda
title_sort social support for self-care: patient strategies for managing diabetes and hypertension in rural uganda
publisher Ubiquity Press
publishDate 2021
url https://doaj.org/article/33f973cef6b34ae1869e2753c7db4f04
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