Factors influencing the quality of life perceptions of cognitively impaired older adults in a nursing home and their informal and professional caregivers: a mixed methods study

Henk Verloo,1 Alexandre Salina,2 Assunta Fiorentino,3 Christine Cohen3 1School of Health, Department of Nursing Valais – Wallis, University of Applied Sciences and Arts Western Switzerland, Switzerland; 2Home Salem Nursing Home, Eben-Hézer Foundation, CH-1806 Saint-Lé...

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Autores principales:	Verloo H, Salina A, Fiorentino A, Cohen C
Formato:	article
Lenguaje:	EN
Publicado:	Dove Medical Press 2018
Materias:	mixed methods quality of life quality of care older adults dementia nursing care informal caregivers professional caregivers behavioral and psychological symptoms of dementia objective QoL subjective QoL functional QoL Geriatrics RC952-954.6
Acceso en línea:	https://doaj.org/article/34efe49902f6409f907d4418bfe901d0
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spelling	oai:doaj.org-article:34efe49902f6409f907d4418bfe901d02021-12-02T11:06:57ZFactors influencing the quality of life perceptions of cognitively impaired older adults in a nursing home and their informal and professional caregivers: a mixed methods study1178-1998https://doaj.org/article/34efe49902f6409f907d4418bfe901d02018-10-01T00:00:00Zhttps://www.dovepress.com/factors-influencing-the-quality-of-life-perceptions-of-cognitively-imp-peer-reviewed-article-CIAhttps://doaj.org/toc/1178-1998Henk Verloo,1 Alexandre Salina,2 Assunta Fiorentino,3 Christine Cohen3 1School of Health, Department of Nursing Valais – Wallis, University of Applied Sciences and Arts Western Switzerland, Switzerland; 2Home Salem Nursing Home, Eben-Hézer Foundation, CH-1806 Saint-Légier, Switzerland; 3La Source, School of nursing, HES-SO University of Applied Sciences and Arts Western Switzerland, Switzerland Background: Identifying the objective and subjective aspects of the quality of life (QoL) of institutionalized cognitively impaired older adults (CIOAs) is a challenge. However, it can reveal which aspects of their care require improvement.Aim: The aim of this study was to identify the core aspects of the QoL of CIOAs living in a nursing home (NH) by involving informal and professional caregivers (PCs).Methods: Our sequential, mixed methods study exploring the QoL of CIOAs was based on Lodgson et al’s (2002) quantitative quality of life–Alzheimer’s disease (QoL-AD) questionnaire.75 Subsequently, a qualitative phase study analyzed perceptions and impressions of QoL using interviews of CIOAs and their most significant informal caregivers (SICs) and PCs.Results: Fifteen CIOAs, 12 SICs, and 2 PCs were recruited. Two-thirds of the older adults were females, overall average age was 86 years (SD=6.1), and all had a severe clinical dementia rating (CDR=3). A high level of comorbidity (measured using the Cumulative Illness Rating Scale for Geriatrics) was significantly associated with a lower QoL-AD score (P=0.046). Higher numbers of visits by SICs or family members had a positive effect on QoL-AD scores (P=0.036). No significant differences were found in overall QoL-AD scores as rated by CIOAs, SICs, and PCs (P=0.080). Combining quantitative and qualitative data analyses revealed four significant themes influencing the QoL of CIOAs: 1) human dignity and acceptance; 2) development and existence; 3) functionality and health; and 4) recognizability and safety.Conclusion: Sequentially using mixed methods proved an appropriate way to examine the QoL of severe CIOAs living in an NH, and these results were compared with the perceptions of informal and PCs. The factors optimizing overall health were visits by SICs and family members, and the major aspect that increases the QoL was freedom of movement inside and outside the NH. Keywords: content analysis, nursing homes, old age psychiatry, older adults, dementia, behavioral and psychological symptoms of dementia, objective QoL, subjective QoL, functional QoLVerloo HSalina AFiorentino ACohen CDove Medical Pressarticlemixed methodsquality of lifequality of careolder adultsdementianursing careinformal caregiversprofessional caregiversbehavioral and psychological symptoms of dementiaobjective QoLsubjective QoLfunctional QoLGeriatricsRC952-954.6ENClinical Interventions in Aging, Vol Volume 13, Pp 2135-2147 (2018)
institution	DOAJ
collection	DOAJ
language	EN
topic	mixed methods quality of life quality of care older adults dementia nursing care informal caregivers professional caregivers behavioral and psychological symptoms of dementia objective QoL subjective QoL functional QoL Geriatrics RC952-954.6
spellingShingle	mixed methods quality of life quality of care older adults dementia nursing care informal caregivers professional caregivers behavioral and psychological symptoms of dementia objective QoL subjective QoL functional QoL Geriatrics RC952-954.6 Verloo H Salina A Fiorentino A Cohen C Factors influencing the quality of life perceptions of cognitively impaired older adults in a nursing home and their informal and professional caregivers: a mixed methods study
description	Henk Verloo,1 Alexandre Salina,2 Assunta Fiorentino,3 Christine Cohen3 1School of Health, Department of Nursing Valais – Wallis, University of Applied Sciences and Arts Western Switzerland, Switzerland; 2Home Salem Nursing Home, Eben-Hézer Foundation, CH-1806 Saint-Légier, Switzerland; 3La Source, School of nursing, HES-SO University of Applied Sciences and Arts Western Switzerland, Switzerland Background: Identifying the objective and subjective aspects of the quality of life (QoL) of institutionalized cognitively impaired older adults (CIOAs) is a challenge. However, it can reveal which aspects of their care require improvement.Aim: The aim of this study was to identify the core aspects of the QoL of CIOAs living in a nursing home (NH) by involving informal and professional caregivers (PCs).Methods: Our sequential, mixed methods study exploring the QoL of CIOAs was based on Lodgson et al’s (2002) quantitative quality of life–Alzheimer’s disease (QoL-AD) questionnaire.75 Subsequently, a qualitative phase study analyzed perceptions and impressions of QoL using interviews of CIOAs and their most significant informal caregivers (SICs) and PCs.Results: Fifteen CIOAs, 12 SICs, and 2 PCs were recruited. Two-thirds of the older adults were females, overall average age was 86 years (SD=6.1), and all had a severe clinical dementia rating (CDR=3). A high level of comorbidity (measured using the Cumulative Illness Rating Scale for Geriatrics) was significantly associated with a lower QoL-AD score (P=0.046). Higher numbers of visits by SICs or family members had a positive effect on QoL-AD scores (P=0.036). No significant differences were found in overall QoL-AD scores as rated by CIOAs, SICs, and PCs (P=0.080). Combining quantitative and qualitative data analyses revealed four significant themes influencing the QoL of CIOAs: 1) human dignity and acceptance; 2) development and existence; 3) functionality and health; and 4) recognizability and safety.Conclusion: Sequentially using mixed methods proved an appropriate way to examine the QoL of severe CIOAs living in an NH, and these results were compared with the perceptions of informal and PCs. The factors optimizing overall health were visits by SICs and family members, and the major aspect that increases the QoL was freedom of movement inside and outside the NH. Keywords: content analysis, nursing homes, old age psychiatry, older adults, dementia, behavioral and psychological symptoms of dementia, objective QoL, subjective QoL, functional QoL
format	article
author	Verloo H Salina A Fiorentino A Cohen C
author_facet	Verloo H Salina A Fiorentino A Cohen C
author_sort	Verloo H
title	Factors influencing the quality of life perceptions of cognitively impaired older adults in a nursing home and their informal and professional caregivers: a mixed methods study
title_short	Factors influencing the quality of life perceptions of cognitively impaired older adults in a nursing home and their informal and professional caregivers: a mixed methods study
title_full	Factors influencing the quality of life perceptions of cognitively impaired older adults in a nursing home and their informal and professional caregivers: a mixed methods study
title_fullStr	Factors influencing the quality of life perceptions of cognitively impaired older adults in a nursing home and their informal and professional caregivers: a mixed methods study
title_full_unstemmed	Factors influencing the quality of life perceptions of cognitively impaired older adults in a nursing home and their informal and professional caregivers: a mixed methods study
title_sort	factors influencing the quality of life perceptions of cognitively impaired older adults in a nursing home and their informal and professional caregivers: a mixed methods study
publisher	Dove Medical Press
publishDate	2018
url	https://doaj.org/article/34efe49902f6409f907d4418bfe901d0
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Factors influencing the quality of life perceptions of cognitively impaired older adults in a nursing home and their informal and professional caregivers: a mixed methods study

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