Insights from individuals with chronic conditions in the context of COVID-19

The objective of this prospective survey series was to evaluate knowledge and concerns related to the COVID-19 pandemic among individuals with one or more chronic conditions, including cardiometabolic, autoimmune, respiratory and cancer diagnoses. Two surveys were distributed consisting of up to 55...

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Autores principales:	B. Stephen Burton, Jonathan Patterson, Mackenzie Robinson, Dhiren Patel, Matt Allison, Kelly Brassil
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2020
Materias:	covid-19 coronavirus patient insights chronic conditions healthcare access Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/358e153d94f14898aad8c203a1e6079c
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spelling	oai:doaj.org-article:358e153d94f14898aad8c203a1e6079c2021-11-15T04:31:20ZInsights from individuals with chronic conditions in the context of COVID-192372-0247https://doaj.org/article/358e153d94f14898aad8c203a1e6079c2020-08-01T00:00:00Zhttps://pxjournal.org/journal/vol7/iss2/12https://doaj.org/toc/2372-0247The objective of this prospective survey series was to evaluate knowledge and concerns related to the COVID-19 pandemic among individuals with one or more chronic conditions, including cardiometabolic, autoimmune, respiratory and cancer diagnoses. Two surveys were distributed consisting of up to 55 items (March; n=1069) and up to 71 items (April, n=1126), with 24 items repeated from the first survey. Questions focused on healthcare access, barriers and concerns related to the COVID-19 virus. Descriptive analysis evaluated central tendencies, spread, and frequencies of the demographic data, disease states, and survey results within and between the two survey timepoints. Results from 416 individuals (38.9%) on survey 1 and 425 (37.7%) on survey 2 were analyzed. Participants were predominantly female (85%) and white (67%) with 7% residing in rural areas and 69% employed. Respondents reported an average of 2 chronic conditions and 62% would be classified as “at risk” for COVID-19 complications by the CDC. Only 20% reported a conversation about COVID-19 with a healthcare provider, 9% reported anxiety, 35% indicated loneliness. Level of concern about COVID-19 contracting the disease, cost of treatment/complications, medical access, and process of being treated was associated with increased anxiety (p<0.001) and wearing a facemask (p=0.01). Analysis suggests that analyzing concern and its association with health behaviors and anxiety should be a priority for innovative solutions. Insights into how the COVID-19 pandemic is impacting individuals with chronic conditions are imperative to inform tailored interventions to support individuals at higher risk of serious complications and death. <strong>Experience Framework</strong> This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework. (<a href="http://bit.ly/ExperienceFramework">http://bit.ly/ExperienceFramework</a>) <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Patient%2C%20Family%20%26%20Community%20Engagement%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PatientFamilyCommunityEngagement">Access other resources</a> related to this lens.</li> </ul>B. Stephen BurtonJonathan PattersonMackenzie RobinsonDhiren PatelMatt AllisonKelly BrassilThe Beryl Institutearticlecovid-19coronaviruspatient insightschronic conditionshealthcare accessMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2020)
institution	DOAJ
collection	DOAJ
language	EN
topic	covid-19 coronavirus patient insights chronic conditions healthcare access Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	covid-19 coronavirus patient insights chronic conditions healthcare access Medicine (General) R5-920 Public aspects of medicine RA1-1270 B. Stephen Burton Jonathan Patterson Mackenzie Robinson Dhiren Patel Matt Allison Kelly Brassil Insights from individuals with chronic conditions in the context of COVID-19
description	The objective of this prospective survey series was to evaluate knowledge and concerns related to the COVID-19 pandemic among individuals with one or more chronic conditions, including cardiometabolic, autoimmune, respiratory and cancer diagnoses. Two surveys were distributed consisting of up to 55 items (March; n=1069) and up to 71 items (April, n=1126), with 24 items repeated from the first survey. Questions focused on healthcare access, barriers and concerns related to the COVID-19 virus. Descriptive analysis evaluated central tendencies, spread, and frequencies of the demographic data, disease states, and survey results within and between the two survey timepoints. Results from 416 individuals (38.9%) on survey 1 and 425 (37.7%) on survey 2 were analyzed. Participants were predominantly female (85%) and white (67%) with 7% residing in rural areas and 69% employed. Respondents reported an average of 2 chronic conditions and 62% would be classified as “at risk” for COVID-19 complications by the CDC. Only 20% reported a conversation about COVID-19 with a healthcare provider, 9% reported anxiety, 35% indicated loneliness. Level of concern about COVID-19 contracting the disease, cost of treatment/complications, medical access, and process of being treated was associated with increased anxiety (p<0.001) and wearing a facemask (p=0.01). Analysis suggests that analyzing concern and its association with health behaviors and anxiety should be a priority for innovative solutions. Insights into how the COVID-19 pandemic is impacting individuals with chronic conditions are imperative to inform tailored interventions to support individuals at higher risk of serious complications and death. <strong>Experience Framework</strong> This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework. (<a href="http://bit.ly/ExperienceFramework">http://bit.ly/ExperienceFramework</a>) <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Patient%2C%20Family%20%26%20Community%20Engagement%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PatientFamilyCommunityEngagement">Access other resources</a> related to this lens.</li> </ul>
format	article
author	B. Stephen Burton Jonathan Patterson Mackenzie Robinson Dhiren Patel Matt Allison Kelly Brassil
author_facet	B. Stephen Burton Jonathan Patterson Mackenzie Robinson Dhiren Patel Matt Allison Kelly Brassil
author_sort	B. Stephen Burton
title	Insights from individuals with chronic conditions in the context of COVID-19
title_short	Insights from individuals with chronic conditions in the context of COVID-19
title_full	Insights from individuals with chronic conditions in the context of COVID-19
title_fullStr	Insights from individuals with chronic conditions in the context of COVID-19
title_full_unstemmed	Insights from individuals with chronic conditions in the context of COVID-19
title_sort	insights from individuals with chronic conditions in the context of covid-19
publisher	The Beryl Institute
publishDate	2020
url	https://doaj.org/article/358e153d94f14898aad8c203a1e6079c
work_keys_str_mv	AT bstephenburton insightsfromindividualswithchronicconditionsinthecontextofcovid19 AT jonathanpatterson insightsfromindividualswithchronicconditionsinthecontextofcovid19 AT mackenzierobinson insightsfromindividualswithchronicconditionsinthecontextofcovid19 AT dhirenpatel insightsfromindividualswithchronicconditionsinthecontextofcovid19 AT mattallison insightsfromindividualswithchronicconditionsinthecontextofcovid19 AT kellybrassil insightsfromindividualswithchronicconditionsinthecontextofcovid19
_version_	1718428799206424576

Insights from individuals with chronic conditions in the context of COVID-19

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