Paroles d’enfants, paroles sur l’enfant atteint de cancer en hospitalisation pédiatrique à domicile

Among the multitude of care places in which children with cancer spend time, the home has remained little studied. A prolonged observational ethnographic survey in a pediatric home care unit allowed us to reconstruct this part of children’s care trajectories. The study allows us to grasp children’s...

Descripción completa

Guardado en:

Detalles Bibliográficos
Autor principal:	Sarra Mougel
Formato:	article
Lenguaje:	FR
Publicado:	Association Anthropologie Médicale Appliquée au Développement et à la Santé 2021
Materias:	parenthood agency observation home care unit France Anthropology GN1-890
Acceso en línea:	https://doaj.org/article/36e8929e9efa4e1285ac613199fbe44e
Etiquetas:	Agregar Etiqueta Sin Etiquetas, Sea el primero en etiquetar este registro!

id	oai:doaj.org-article:36e8929e9efa4e1285ac613199fbe44e
record_format	dspace
spelling	oai:doaj.org-article:36e8929e9efa4e1285ac613199fbe44e2021-12-02T10:49:20ZParoles d’enfants, paroles sur l’enfant atteint de cancer en hospitalisation pédiatrique à domicile2111-502810.4000/anthropologiesante.9987https://doaj.org/article/36e8929e9efa4e1285ac613199fbe44e2021-10-01T00:00:00Zhttp://journals.openedition.org/anthropologiesante/9987https://doaj.org/toc/2111-5028Among the multitude of care places in which children with cancer spend time, the home has remained little studied. A prolonged observational ethnographic survey in a pediatric home care unit allowed us to reconstruct this part of children’s care trajectories. The study allows us to grasp children’s words, which are more substantial than in the hospital setting, and yet sometimes overwhelmed by the urgency of exchanges between adults. It also provides a view of the children’s agency, initiated by adults or won over by the children themselves. This agency, insofar as it is perceived by adults, can become a source of valorization for children, on the condition that it does not call into question a principle of acceptance of care. Nevertheless, the children may remain mute on the more intimate experience of their illness, as they are expected to behave like a child and not like a sick child.Sarra MougelAssociation Anthropologie Médicale Appliquée au Développement et à la Santéarticleparenthoodagencyobservationhome care unitFranceAnthropologyGN1-890FRAnthropologie & Santé, Vol 23 (2021)
institution	DOAJ
collection	DOAJ
language	FR
topic	parenthood agency observation home care unit France Anthropology GN1-890
spellingShingle	parenthood agency observation home care unit France Anthropology GN1-890 Sarra Mougel Paroles d’enfants, paroles sur l’enfant atteint de cancer en hospitalisation pédiatrique à domicile
description	Among the multitude of care places in which children with cancer spend time, the home has remained little studied. A prolonged observational ethnographic survey in a pediatric home care unit allowed us to reconstruct this part of children’s care trajectories. The study allows us to grasp children’s words, which are more substantial than in the hospital setting, and yet sometimes overwhelmed by the urgency of exchanges between adults. It also provides a view of the children’s agency, initiated by adults or won over by the children themselves. This agency, insofar as it is perceived by adults, can become a source of valorization for children, on the condition that it does not call into question a principle of acceptance of care. Nevertheless, the children may remain mute on the more intimate experience of their illness, as they are expected to behave like a child and not like a sick child.
format	article
author	Sarra Mougel
author_facet	Sarra Mougel
author_sort	Sarra Mougel
title	Paroles d’enfants, paroles sur l’enfant atteint de cancer en hospitalisation pédiatrique à domicile
title_short	Paroles d’enfants, paroles sur l’enfant atteint de cancer en hospitalisation pédiatrique à domicile
title_full	Paroles d’enfants, paroles sur l’enfant atteint de cancer en hospitalisation pédiatrique à domicile
title_fullStr	Paroles d’enfants, paroles sur l’enfant atteint de cancer en hospitalisation pédiatrique à domicile
title_full_unstemmed	Paroles d’enfants, paroles sur l’enfant atteint de cancer en hospitalisation pédiatrique à domicile
title_sort	paroles d’enfants, paroles sur l’enfant atteint de cancer en hospitalisation pédiatrique à domicile
publisher	Association Anthropologie Médicale Appliquée au Développement et à la Santé
publishDate	2021
url	https://doaj.org/article/36e8929e9efa4e1285ac613199fbe44e
work_keys_str_mv	AT sarramougel parolesdenfantsparolessurlenfantatteintdecancerenhospitalisationpediatriqueadomicile
_version_	1718396582426050560

Paroles d’enfants, paroles sur l’enfant atteint de cancer en hospitalisation pédiatrique à domicile

Ejemplares similares