Patients educating health care providers on Lynch syndrome

Objective<strong>: </strong>Lynch syndrome (LS) patients are at an elevated risk for early-onset cancers, including endometrial and colorectal (CRC). Prior research has shown a deficit in provider knowledge of LS, which may affect patient satisfaction and adherence to recommended screeni...

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Autores principales:	Kelsey Hennig, Barry DeCoster, Rebecca Chu, Wendy Parker, Lisa Campo-Engelstein, Allison Burton-Chase
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2018
Materias:	lynch syndrome colorectal cancer patient-provider communication shared decision making patient-centered care Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/37051f47fbf348068e1963e242a534b0
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spelling	oai:doaj.org-article:37051f47fbf348068e1963e242a534b02021-11-15T04:25:59ZPatients educating health care providers on Lynch syndrome2372-0247https://doaj.org/article/37051f47fbf348068e1963e242a534b02018-11-01T00:00:00Zhttps://pxjournal.org/journal/vol5/iss3/12https://doaj.org/toc/2372-0247Objective<strong>: </strong>Lynch syndrome (LS) patients are at an elevated risk for early-onset cancers, including endometrial and colorectal (CRC). Prior research has shown a deficit in provider knowledge of LS, which may affect patient satisfaction and adherence to recommended screening and surveillance regimens. Studies suggest patients with LS may educate providers perceived as lacking LS knowledge; however, little is known about these interactions. The goal of this study is to assess patient-reported outcomes from clinical interactions where LS patients educate their providers. Methods<strong>: </strong>Participants (n=55) were asked to complete an in-depth telephone interview. <strong></strong> Results<strong>: </strong>Out of 55 participants, approximately two-thirds (n=37) reported engaging in educational interactions. Participants reported feeling satisfied with the provider response in over half of the reported educational interactions (n=24). Participants reported changes in their patient-provider relationship ranging from improvements in their relationship to termination of services.<strong> </strong>Conclusion<strong>: </strong>Patients with LS report educating providers on their diagnosis as well as their screening and surveillance requirements. Patient-reported outcomes of these educational interactions vary based on the provider’s response to the interaction. Providers should be open and receptive to these educational interactions and follow-up on the discussion to improve patient satisfaction. <strong></strong>Kelsey HennigBarry DeCosterRebecca ChuWendy ParkerLisa Campo-EngelsteinAllison Burton-ChaseThe Beryl Institutearticlelynch syndromecolorectal cancerpatient-provider communicationshared decision makingpatient-centered careMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2018)
institution	DOAJ
collection	DOAJ
language	EN
topic	lynch syndrome colorectal cancer patient-provider communication shared decision making patient-centered care Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	lynch syndrome colorectal cancer patient-provider communication shared decision making patient-centered care Medicine (General) R5-920 Public aspects of medicine RA1-1270 Kelsey Hennig Barry DeCoster Rebecca Chu Wendy Parker Lisa Campo-Engelstein Allison Burton-Chase Patients educating health care providers on Lynch syndrome
description	Objective<strong>: </strong>Lynch syndrome (LS) patients are at an elevated risk for early-onset cancers, including endometrial and colorectal (CRC). Prior research has shown a deficit in provider knowledge of LS, which may affect patient satisfaction and adherence to recommended screening and surveillance regimens. Studies suggest patients with LS may educate providers perceived as lacking LS knowledge; however, little is known about these interactions. The goal of this study is to assess patient-reported outcomes from clinical interactions where LS patients educate their providers. Methods<strong>: </strong>Participants (n=55) were asked to complete an in-depth telephone interview. <strong></strong> Results<strong>: </strong>Out of 55 participants, approximately two-thirds (n=37) reported engaging in educational interactions. Participants reported feeling satisfied with the provider response in over half of the reported educational interactions (n=24). Participants reported changes in their patient-provider relationship ranging from improvements in their relationship to termination of services.<strong> </strong>Conclusion<strong>: </strong>Patients with LS report educating providers on their diagnosis as well as their screening and surveillance requirements. Patient-reported outcomes of these educational interactions vary based on the provider’s response to the interaction. Providers should be open and receptive to these educational interactions and follow-up on the discussion to improve patient satisfaction. <strong></strong>
format	article
author	Kelsey Hennig Barry DeCoster Rebecca Chu Wendy Parker Lisa Campo-Engelstein Allison Burton-Chase
author_facet	Kelsey Hennig Barry DeCoster Rebecca Chu Wendy Parker Lisa Campo-Engelstein Allison Burton-Chase
author_sort	Kelsey Hennig
title	Patients educating health care providers on Lynch syndrome
title_short	Patients educating health care providers on Lynch syndrome
title_full	Patients educating health care providers on Lynch syndrome
title_fullStr	Patients educating health care providers on Lynch syndrome
title_full_unstemmed	Patients educating health care providers on Lynch syndrome
title_sort	patients educating health care providers on lynch syndrome
publisher	The Beryl Institute
publishDate	2018
url	https://doaj.org/article/37051f47fbf348068e1963e242a534b0
work_keys_str_mv	AT kelseyhennig patientseducatinghealthcareprovidersonlynchsyndrome AT barrydecoster patientseducatinghealthcareprovidersonlynchsyndrome AT rebeccachu patientseducatinghealthcareprovidersonlynchsyndrome AT wendyparker patientseducatinghealthcareprovidersonlynchsyndrome AT lisacampoengelstein patientseducatinghealthcareprovidersonlynchsyndrome AT allisonburtonchase patientseducatinghealthcareprovidersonlynchsyndrome
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Patients educating health care providers on Lynch syndrome

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